Search
Search
About
Log in
Join
Experiences with
Sickle-cell anaemia
Posts
Communities
8,357 public posts
Filter results
diagnosis and symptoms
Hello everyone - first post and looking for feedback. I have been low in B12 for some time. I would go to the doctor and told I need to take a supplement or a jab but no one ever looked into why I was deficient so I thought nothing of it. Fast forward to June of this year and I feel terrible - low B12
Hello everyone - first post and looking for feedback. I have been low in B12 for some time. I would go to the doctor and told I need to take a supplement or a jab but no one ever looked into why I was deficient so I thought nothing of it. Fast forward to June of this year and I feel terrible - low B12
Bluebell7575
in
Pernicious Anaemia Society
2 years ago
It is worth persevering!
I thought fellow RLS sufferers would be interested in the following sequence of events. Following advice from people on this website I wrote the following letter to my doctor: "[i]Dear Dr C,[/i] [i]I have suffered with severe Restless Legs Syndrome for four months now, often not being able to get to
I thought fellow RLS sufferers would be interested in the following sequence of events. Following advice from people on this website I wrote the following letter to my doctor: "[i]Dear Dr C,[/i] [i]I have suffered with severe Restless Legs Syndrome for four months now, often not being able to get to
Desperate100
in
Restless Legs Syndrome
2 years ago
Seeking info about impact of B12 deficiency in GI and digestion and changes in GI symptoms post B12 deficiency treatment
I watched 5 hours of resource videos on the PA youtube site, mainly a conference, and I came across some interesting slides that showed the small intenstine vili and cells of the GI tract before and after B12 injections. They healed! From what I understand, B12 deficiency can result in DNA replication
I watched 5 hours of resource videos on the PA youtube site, mainly a conference, and I came across some interesting slides that showed the small intenstine vili and cells of the GI tract before and after B12 injections. They healed! From what I understand, B12 deficiency can result in DNA replication
Beccy_123
in
Pernicious Anaemia Society
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Can oral B12 supplements help in a functional B12 deficiency and more q's
As a follow on from my first post here: https://healthunlocked.com/pasoc/posts/148543562/help-with-diagnosis-gp-and-anyone-sought-help-from-private-healthcare , I visited Dr K at Nuffield on Friday at Cambridge and he strongly suspects I have non-autoimmune functional B12 deficiency and based on history
As a follow on from my first post here: https://healthunlocked.com/pasoc/posts/148543562/help-with-diagnosis-gp-and-anyone-sought-help-from-private-healthcare , I visited Dr K at Nuffield on Friday at Cambridge and he strongly suspects I have non-autoimmune functional B12 deficiency and based on history
Beccy_123
in
Pernicious Anaemia Society
2 years ago
COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
lankisterguy
Volunteer
in
CLL Support
2 years ago
muscle stiffness
Hey guys, I am dealing with some of the side effects of a b12 deficiency. I am still awaiting the results from a blood test, testing for intrinsic factor. Most of my symptoms have improved a lot but I am left with a burning pain all down my leg, off balance and most importantly speech difficulty.
Hey guys, I am dealing with some of the side effects of a b12 deficiency. I am still awaiting the results from a blood test, testing for intrinsic factor. Most of my symptoms have improved a lot but I am left with a burning pain all down my leg, off balance and most importantly speech difficulty.
Hidden
in
Pernicious Anaemia Society
2 years ago
Update on “20 years old and Scared”
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Lc06091
in
MPN Voice
2 years ago
B12 vitamin
Morning all, I have hypothyroidsim and on my medichecks blood test in Jan this year my b12 was 89.800 (37.5-188). This seems low. I've been taking Thorne Basic b for 18months but just one tablet. Ive put in a call to my GP as I'm concerned this wasnt tested in my annual check with them last month
Morning all, I have hypothyroidsim and on my medichecks blood test in Jan this year my b12 was 89.800 (37.5-188). This seems low. I've been taking Thorne Basic b for 18months but just one tablet. Ive put in a call to my GP as I'm concerned this wasnt tested in my annual check with them last month
292426
in
Thyroid UK
2 years ago
2022 American College of Rheumatology Classification Criteria for Giant Cell Arteritis
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
Exflex
in
PMRGCAuk
2 years ago
Stopping B12 and folate supplementation to assist diagnosis??
As a follow up from my first post https://healthunlocked.com/pasoc/posts/148543562/help-with-diagnosis-gp-and-anyone-sought-help-from-private-healthcare, I wanted members thoughts about PA diagnosis protocol. I take B12 and methyl-folate supplementation orally. Hence my blood test discussed in my first
As a follow up from my first post https://healthunlocked.com/pasoc/posts/148543562/help-with-diagnosis-gp-and-anyone-sought-help-from-private-healthcare, I wanted members thoughts about PA diagnosis protocol. I take B12 and methyl-folate supplementation orally. Hence my blood test discussed in my first
Beccy_123
in
Pernicious Anaemia Society
2 years ago
Iron blood test results
I recently had a full iron panel done. I would be grateful if I could get some feedback on my results. I gave up vitamin c and my multivitamin patch which contains iron a week before my blood test. Many thanks CRP HS Inflammation 15 Sep 2022 0.38 mg/L (0 - 5 ) IRON 15 Sep 2022 23.2
I recently had a full iron panel done. I would be grateful if I could get some feedback on my results. I gave up vitamin c and my multivitamin patch which contains iron a week before my blood test. Many thanks CRP HS Inflammation 15 Sep 2022 0.38 mg/L (0 - 5 ) IRON 15 Sep 2022 23.2
Caze
in
Thyroid UK
2 years ago
Help with diagnosis (GP) and anyone sought help from private healthcare?
Hi, I recently learned about PA after googling my comprehensive blood test results recently. I joined the PA society this weekend and I have found myself here after chatting to a lovely lady in the helpdesk there. I am a wellness coach and have some knowledge of nutrition and improving resilience holistically
Hi, I recently learned about PA after googling my comprehensive blood test results recently. I joined the PA society this weekend and I have found myself here after chatting to a lovely lady in the helpdesk there. I am a wellness coach and have some knowledge of nutrition and improving resilience holistically
Beccy_123
in
Pernicious Anaemia Society
2 years ago
how to get IV iron infusion
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
Jukebox55
in
Restless Legs Syndrome
2 years ago
help with iron results please?
hi everyone, I have just had my medichecks results for my iron levels and wondered if I could kindly have some opinions/recommendations. I know they aren’t terrible but I am trying to increase my NDT and want to have as little issues as possible when trying to raise. Would you recommend trying
hi everyone, I have just had my medichecks results for my iron levels and wondered if I could kindly have some opinions/recommendations. I know they aren’t terrible but I am trying to increase my NDT and want to have as little issues as possible when trying to raise. Would you recommend trying
Beau55
in
Thyroid UK
2 years ago
COVID update: Who remains at higher risk? by LLS.org
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
lankisterguy
Volunteer
in
CLL Support
2 years ago
IMPORTANT: Nicotinamide riboside (or NAD+ or Tru Niagen) may be involved in neoplastic and metastatic processes
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
enjoy2013
in
Restless Legs Syndrome
2 years ago
Seemingly a sudden drop in ferritin but is it really?
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
Noelnoel
in
Thyroid UK
2 years ago
A loud, proud, lonely ride
She's rickety, an old yellow school bus no one knows how to fix With loose, rattling seats A freed bolt vibrating on the metal floor Rattling loud and groaning, a teeth clenching ride It's the prednisone in the gas that keeps her running And even though she ain't what she used to be She's my only
She's rickety, an old yellow school bus no one knows how to fix With loose, rattling seats A freed bolt vibrating on the metal floor Rattling loud and groaning, a teeth clenching ride It's the prednisone in the gas that keeps her running And even though she ain't what she used to be She's my only
WeAreAllMutants
in
PMRGCAuk
2 years ago
Moviprep and hashimotos
Hi. I have the delightful experience of a colonoscopy to look forward to. On the prep info it says that people with thyroid disease should check with their gp before taking the stuff. Has anyone used this prep?
Hi. I have the delightful experience of a colonoscopy to look forward to. On the prep info it says that people with thyroid disease should check with their gp before taking the stuff. Has anyone used this prep?
Catlover3
in
Thyroid UK
2 years ago
Hashimoto's patient feeling exhausted: full blood results, any advice?
Hello all, I've posted before and was advised to get a full set of blood tests and post the results here for the Thyroid experts :) to look at and advise on what else I might try to combat my fatigue. Here goes (blood taken Monday this week): ! Serum TSH level - (NWM2358) - Abnormal but improved
Hello all, I've posted before and was advised to get a full set of blood tests and post the results here for the Thyroid experts :) to look at and advise on what else I might try to combat my fatigue. Here goes (blood taken Monday this week): ! Serum TSH level - (NWM2358) - Abnormal but improved
Jacula
in
Thyroid UK
2 years ago
1
...
68
69
70
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3540 results
Thyroid UK
2438 results
MPN Voice
363 results
View top 10 communities
Sort by
Most Relevant
Newest