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Sickle-cell anaemia
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There’s no point to this post
Hi everyone, hope you’re all as well as can be. I’m approximately 3 1/2 years into this PMR. Sometimes it gets me down. I’ve been trying to start Humira for Ankylosing Spondylitis again, but the delivery company have been an absolute NIGHTMARE! It’s been so long since I last took it that I’m wondering
Hi everyone, hope you’re all as well as can be. I’m approximately 3 1/2 years into this PMR. Sometimes it gets me down. I’ve been trying to start Humira for Ankylosing Spondylitis again, but the delivery company have been an absolute NIGHTMARE! It’s been so long since I last took it that I’m wondering
Bramble2000
in
PMRGCAuk
9 months ago
Asking for support following GP 'Results Normal' response
Hello everyone, Right now I'm in sore need of massive hugs as I've just burst into tears. Yesterday I sent in a two page letter to the GP putting in all my recent results (posted elsewhere) and asking them to look at my folate, B12, Iron panel and consider increasing my levo to 100mcg. I detailed my
Hello everyone, Right now I'm in sore need of massive hugs as I've just burst into tears. Yesterday I sent in a two page letter to the GP putting in all my recent results (posted elsewhere) and asking them to look at my folate, B12, Iron panel and consider increasing my levo to 100mcg. I detailed my
Sneedle
in
Thyroid UK
1 year ago
"Scientists achieve breakthrough in treating 'neglected' polymyalgia rheumatica" - that's the headline but don't get too excited ...
https://www.news-medical.net/news/20231025/Scientists-achieve-breakthrough-in-treating-neglected-polymyalgia-rheumatica.aspx?utm_source=news_medical_newsletter&utm_medium=email&utm_campaign=rheumatology_newsletter_3_november_2023 The study is using sarilumab, aka Kevzara - not the first study, I'm sure
https://www.news-medical.net/news/20231025/Scientists-achieve-breakthrough-in-treating-neglected-polymyalgia-rheumatica.aspx?utm_source=news_medical_newsletter&utm_medium=email&utm_campaign=rheumatology_newsletter_3_november_2023 The study is using sarilumab, aka Kevzara - not the first study, I'm sure
PMRpro
Ambassador
in
PMRGCAuk
9 months ago
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B12 deficiency - it’s official! What next?
Thank you to all the kind people who responded to my first enquiry seven months ago - you can see the history here https://healthunlocked.com/pasoc/posts/149321418/should-i-be-asking-for-a-test-for-pa?responses=149357417 After correcting a folate deficiency at the beginning of the year my B12 levels
Thank you to all the kind people who responded to my first enquiry seven months ago - you can see the history here https://healthunlocked.com/pasoc/posts/149321418/should-i-be-asking-for-a-test-for-pa?responses=149357417 After correcting a folate deficiency at the beginning of the year my B12 levels
Realtiger
in
Pernicious Anaemia Society
9 months ago
Fundraising
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
I am very fortunate that I can pop down to P.A. Society Head Quarters to lend a hand. I did this morning. There are 4 volunteers helping the small amount of staff run the organisation . The person there today was inundated when I rocked up. As they are everyday. We could talk for weeks but I said, ‘No
Narwhal10
in
Pernicious Anaemia Society
11 months ago
Iron blood test - definitive list
I got my recent blood test back, haven’t yet posted all results to my profile, but my ferritin was rock bottom (7 out of 7-271 range) so I’m going to get a full iron test before I share all the numbers here and decide my next med change. What should I ask for: Iron Total iron-binding capacity (TIBC
I got my recent blood test back, haven’t yet posted all results to my profile, but my ferritin was rock bottom (7 out of 7-271 range) so I’m going to get a full iron test before I share all the numbers here and decide my next med change. What should I ask for: Iron Total iron-binding capacity (TIBC
FallingInReverse
in
Thyroid UK
9 months ago
Chillblains
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
GerryPL
in
CLL Support
9 months ago
Calquence and decreased hemoglobin
Hi Everyone! I have been on Calquence for just about a month and had my first labs yesterday. Neuts were normal. Platelets were steady at 120. My absolute WBC was 106,000 from 43,000, but that was to be expected. However, my hemoglobin was 10.3 from 11.2. I know it's just a slight decrease, but
Hi Everyone! I have been on Calquence for just about a month and had my first labs yesterday. Neuts were normal. Platelets were steady at 120. My absolute WBC was 106,000 from 43,000, but that was to be expected. However, my hemoglobin was 10.3 from 11.2. I know it's just a slight decrease, but
albie58
in
CLL Support
1 year ago
B12 testing...don't know what to do...
Hello all ... I've been looking into possible pernacious anemia, following the advice of a member on my blood test results...my levels have varied a lot over the past few years and despite increasing my dose of Thorne basic B, my overall levels have not increased. (See screenshot attached - the lowest
Hello all ... I've been looking into possible pernacious anemia, following the advice of a member on my blood test results...my levels have varied a lot over the past few years and despite increasing my dose of Thorne basic B, my overall levels have not increased. (See screenshot attached - the lowest
Molly161018
in
Thyroid UK
1 year ago
Blood tests online
Good Morning, im thinking of doing blood tests i was looking at Medichecks one to look at overall health there is a advanced womans health check up for £127 was £159 it looks good to me with their Drs comments but looking at some reviews Medichecks might not be the best one to use ive had
Good Morning, im thinking of doing blood tests i was looking at Medichecks one to look at overall health there is a advanced womans health check up for £127 was £159 it looks good to me with their Drs comments but looking at some reviews Medichecks might not be the best one to use ive had
Nellie2016
in
Thyroid UK
1 year ago
Buprenorphine timing
Hi , following on from my last posts, I am going to collect my script for the above in tablet form from the G.P. today - please can I ask what time people are taking the tablet for the best effect? The consultant has suggested 7pm. I have my 1st Iron Infusion booked for the 2nd August so I am keeping
Hi , following on from my last posts, I am going to collect my script for the above in tablet form from the G.P. today - please can I ask what time people are taking the tablet for the best effect? The consultant has suggested 7pm. I have my 1st Iron Infusion booked for the 2nd August so I am keeping
Ced60
in
Restless Legs Syndrome
1 year ago
b12 iron relationship?
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
Hi friends…I was diagnosed with a b12 deficiency in June, which is thankfully improving with injections (I had horrible neuro symptoms). I had my iron tested twice over the summer, both well in the good range (over 100). However, this week I had an iron panel showing my iron is 40 (literally the bottom
MuppDog
in
Pernicious Anaemia Society
9 months ago
Help with bloods please
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
I used to be on here under mandy72 Help with bloods pleaseBreathless, slow heart rate (dipping as low as 50) dizzy and nausea...... Reason for the blood tests apart from when I was at Dr's heart rate was low 60, ecg and chest xray all good Full blood count Haemoglobin concentration 142 g/L [115.0 - 165.0
Licklemoose
in
Thyroid UK
1 year ago
Iron deficiency
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
sewingroom
in
Thyroid UK
9 months ago
Results Advice
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
PrincessAnnie
in
Thyroid UK
9 months ago
Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
9 months ago
New papers on PA
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
jade_s
in
Pernicious Anaemia Society
11 months ago
Cirrhosis and elevated reticulocytes
Hi, has anyone with Cirrhosis had a blood test showing a high reticulocyte count ?
Hi, has anyone with Cirrhosis had a blood test showing a high reticulocyte count ?
Cat1218
in
British Liver Trust
1 year ago
Promethazine Hydrochloride
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
Hoochybaby
in
Restless Legs Syndrome
9 months ago
Ups and downs update
I finally received a phone call from my GP who was incredibly nice and friendly. But…… she wasn’t prepared to act on the advice I quoted from both NHS and NICE that as I was still suffering from pins and needles I needed every other day B12 injections until there was no further improvement. After
I finally received a phone call from my GP who was incredibly nice and friendly. But…… she wasn’t prepared to act on the advice I quoted from both NHS and NICE that as I was still suffering from pins and needles I needed every other day B12 injections until there was no further improvement. After
Kerrieblue
in
Pernicious Anaemia Society
1 year ago
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