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Sickle-cell anaemia
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Hi there , could anyone tell me where to buy methylcobalamine or hydroxocobalamine for self injection. Thank you
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
I was diagnosed with PA 11 years ago and started to SI just a year ago. My GP will only give me a prescription for 6 vials of hyhydroxocobalamine a year. Could anyone advice me where I can purchase more . Thanks
Helliborous
in
Pernicious Anaemia Society
1 year ago
Tocilizumab in the UK
I thought it may be helpful to share my Rheumy appointment yesterday. I have GCA and PMR and due to various reasons cannot tolerate Steriods. Instead I am treated with Methotrexate and tocilizumab which I received for a year as in standard in the UK. I was worried about what would happen when year expired
I thought it may be helpful to share my Rheumy appointment yesterday. I have GCA and PMR and due to various reasons cannot tolerate Steriods. Instead I am treated with Methotrexate and tocilizumab which I received for a year as in standard in the UK. I was worried about what would happen when year expired
WaltzG
in
PMRGCAuk
8 months ago
Mrjustatip
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
Hello, I'm 70 years old. Last week I had a vitamin B12 shot on Monday, and then on Tuesday I saw a hematologist because I wanted to rule out that I'm anemic. He ordered labs (they did them right there on site). A few minutes later, he said I was not anemic and was also probably not B12 deficient. (so
MrJustatip
in
Pernicious Anaemia Society
1 year ago
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Ferritin success, anyone wishing to try the same ... especially if vegan
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
After years with ferritin scraping along bottom of the range it has at last risen, to nearly double and I thought others might like to know to see if the same works for you too. There are two things I have done (after prescribed ferrous fumarate did not resolve the problem), 1) I regularly take
thyr01d
in
Thyroid UK
1 year ago
My evaluation of which form of B12 is best.
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
The best form of B12 is not known. What is in fashion is different in different countries. Supply, what has been used before, difficulty storing, profit, etc. It is also the newest and that is often seen as better. Hydroxocobalamin is often touted as the best. The only justification is that blood tests
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Advice on latest test results
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Hi, I got diagnosed with underactive thyroid in September 2023. I was put on 50g of Levothyroxine and iron tablets as I had low ferritin and anemic. My latest results show I'm no longer anemic but my ferritin is still relativity low despite having been on iron tablets for 2 months. Dr seems to be
Shoesy99
in
Thyroid UK
8 months ago
update pins n needles in both thumbs
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
hi , after blood test results, it appears I am low on folic acid, so Dr. Has given me prescription for 3 months worth of f/a pills. After which I am to have another blood test. I’ve checked symptoms of folic acid deficiency and it kinda ties in with how I’ve been feeling lately. (Bet I guess we can
9lives
in
PMRGCAuk
1 year ago
B12 and Serum Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Hi, My bloods come back low on B12 and Folate again this has been the case every time for 7 years. I suffer with severe dizziness and numbness, brain fog and extreme fatigue. Can someone advise on my results though as I can’t seem to find anything, my results are below - B12 - 201 ng/L Folate
Mumof3z
in
Pernicious Anaemia Society
1 year ago
Elevated enzymes from my blood test
I’m new here and was wondering if anyone had the same experience as me. When I was sick with flu like symptoms I had my bloodwork done. It came back with elevated liver enzymes. Then about 3 mos later another test done by my GI dr and still elevated. I have no symptoms and am in good health; just
I’m new here and was wondering if anyone had the same experience as me. When I was sick with flu like symptoms I had my bloodwork done. It came back with elevated liver enzymes. Then about 3 mos later another test done by my GI dr and still elevated. I have no symptoms and am in good health; just
Hope4me1
in
British Liver Trust
1 year ago
Conjecture
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
I use conjecture as part of my creative process. Thing is I do not pretend it is anything but conjecture. Using those who share their experience on this forum it seems to me that of the three forms readily commercially available Methylcobalamin has the most profound effect. As a person who is not
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
So nervous
Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wouldn't believe how I've been shaking and feeling so nervous and worried and not sleeping about my stomach. I've been having this little pin like mild aches in my stomach and these test you have to get with PA drives me up
Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wouldn't believe how I've been shaking and feeling so nervous and worried and not sleeping about my stomach. I've been having this little pin like mild aches in my stomach and these test you have to get with PA drives me up
25092
in
Pernicious Anaemia Society
10 months ago
still fighting for buprenorphine to be reinstated. I'm starting to lose battle with myself.
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Have not had any sleep again......my leg so painful and jerking non stop.....took 5mgs Targin that I had in cupboard, didn't even calm it down....this is the third night now I have had less than 2 hours sleep......nauseated and beaten. I have a box of Buprenorphine in pantry , the dr has stopped me on
Hidden
in
Restless Legs Syndrome
1 year ago
advice please b12/folate
Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, unexplained weight loss, funny sensations just to make a few. In the end I was really unwell and had Macrocytosis so I was started on loading doses of b12 (followed by injections every 3 months and folic acid. My levels went
Hi, So a few years ago I had a b12/folate deficiency. I had easy bruising, unexplained weight loss, funny sensations just to make a few. In the end I was really unwell and had Macrocytosis so I was started on loading doses of b12 (followed by injections every 3 months and folic acid. My levels went
Emmy1991
in
Pernicious Anaemia Society
1 year ago
iron results
I’d appreciate some feedback on my iron panel results please? I know my ferritin is too low, even if it’s above the bottom of the range. I upped how much black pudding, pate, or liver I’m eating at 5 out of 7 days a week for over a couple of months. Is my iron too decent enough to be able to take
I’d appreciate some feedback on my iron panel results please? I know my ferritin is too low, even if it’s above the bottom of the range. I upped how much black pudding, pate, or liver I’m eating at 5 out of 7 days a week for over a couple of months. Is my iron too decent enough to be able to take
Dandelade
in
Thyroid UK
8 months ago
Can you do subcut injection without pinching up skin?
Hello everyone! Previously, I have performed IM self injections. This has largely been fine and unproblematic, but a painful incident on the most recent attempt made me want to seek alternatives. I'm sure SC injections might be nicer for me as the needle is smaller and a lot of people on this forum
Hello everyone! Previously, I have performed IM self injections. This has largely been fine and unproblematic, but a painful incident on the most recent attempt made me want to seek alternatives. I'm sure SC injections might be nicer for me as the needle is smaller and a lot of people on this forum
Mereri
in
Pernicious Anaemia Society
1 year ago
Supplements
Hi lovely people. Just a question. In the past, I have had v low iron, folate rock bottom and prob other vitamins low that I never had checked. I have worked a lot on my micro biome/gut this past year plus supplementing continuously. I cut out gluten as leaky gut was diagnosed through a test.
Hi lovely people. Just a question. In the past, I have had v low iron, folate rock bottom and prob other vitamins low that I never had checked. I have worked a lot on my micro biome/gut this past year plus supplementing continuously. I cut out gluten as leaky gut was diagnosed through a test.
FoxyTed
in
Thyroid UK
8 months ago
cellulite in legs related to thyroid?
I have been exercising the same as always and eating clean, but have recently suffered from a cellulite appearance in my legs (when pressing on the skin or walking you can see it only). I am wondering if it is in fact celulite or water refention, and whether it is related to my Hashimoto’s disease.
I have been exercising the same as always and eating clean, but have recently suffered from a cellulite appearance in my legs (when pressing on the skin or walking you can see it only). I am wondering if it is in fact celulite or water refention, and whether it is related to my Hashimoto’s disease.
thyroidqueen12
in
Thyroid UK
1 year ago
symptoms with treated PA
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and intrinsic factor (IF). The loss of IF results in low B12. My general query is; are there consequences and symptoms connected to a lack of stomach
Laundretta
in
Pernicious Anaemia Society
11 months ago
Adrenals
Morning everyone. This is my first post on here. I was diagnosed with GCA in August 2022 and have been tapering down the Prednisolone to 5mg. I also take Tocilizumab and Methotrexate as I’ve had a difficult time with the Prednisolone so many side effects. How do I know if my adrenal glands are working
Morning everyone. This is my first post on here. I was diagnosed with GCA in August 2022 and have been tapering down the Prednisolone to 5mg. I also take Tocilizumab and Methotrexate as I’ve had a difficult time with the Prednisolone so many side effects. How do I know if my adrenal glands are working
Noni71
in
PMRGCAuk
9 months ago
RE iron tablet recommendations
Hi again I have to get my iron levels up.. I have one perscription from my GP for 305 mg Caps Ferrous fumurate (but when I go to the pharmacies here they only have Galfer which has sooo many horrible ingredients, some of which have been banned in Australia, some euro countries)... And my private Endo
Hi again I have to get my iron levels up.. I have one perscription from my GP for 305 mg Caps Ferrous fumurate (but when I go to the pharmacies here they only have Galfer which has sooo many horrible ingredients, some of which have been banned in Australia, some euro countries)... And my private Endo
ChristinaMay
in
Thyroid UK
9 months ago
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