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Sialic acid storage disorders
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Hypertrophy of segment 1 of the liver.
Hello, I have been diagnosted with PBC in 2018 and I am treated with ursodiol 500mg 3 x a day. 10 days ago I had a CT scan with injection for a suspected acuite acute diverticulitis and tested positive. I got my hand on the report that also says ; hypertrophy of segment 1 of the liver. I want to know
Hello, I have been diagnosted with PBC in 2018 and I am treated with ursodiol 500mg 3 x a day. 10 days ago I had a CT scan with injection for a suspected acuite acute diverticulitis and tested positive. I got my hand on the report that also says ; hypertrophy of segment 1 of the liver. I want to know
Ancolie
in
PBC Foundation
2 years ago
Four Supplements To Help With Long Covid Plus One More Supplement
It is now common knowledge that Covid-19, at least for many people, can still cause moderate to severe symptoms even after you are over the main symptoms of Covid-19 and test negative for the SARS-CoV2 virus. These symptoms can persist for months or even years, and some people seem unable to ever
It is now common knowledge that Covid-19, at least for many people, can still cause moderate to severe symptoms even after you are over the main symptoms of Covid-19 and test negative for the SARS-CoV2 virus. These symptoms can persist for months or even years, and some people seem unable to ever
chartist
in
Cure Parkinson's
2 years ago
My Long RLS + PLMD Story (so far) Half of a Victory
I've dealt with RLS since I was a teenager. It grew increasingly worse as I aged. (I just turned 63). I also suspected that my legs were twitching and moving around a lot in my sleep. Eventually I learned there was a clinical name for that, too: PLMD (Periodic Limb Movement Disorder) that frequently,
I've dealt with RLS since I was a teenager. It grew increasingly worse as I aged. (I just turned 63). I also suspected that my legs were twitching and moving around a lot in my sleep. Eventually I learned there was a clinical name for that, too: PLMD (Periodic Limb Movement Disorder) that frequently,
Wordsmith77
in
Restless Legs Syndrome
2 years ago
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Analysis please on my sister’s results from Ireland - Hashimoto’s and cognitive issues - mainly short term memory
Bloods taken 22/11/22 (will be retested on 28/2/23) NDA started on 1/12/22 1 grain 60mg (was previously taking 75mcg of Levo). She is now taking supplements of Vit D3, K2, Selenium, Zinc, Omega 3. She is now “gluten free” and taking no artificial sugars. Diet changed to include more leafy veg. fruits
Bloods taken 22/11/22 (will be retested on 28/2/23) NDA started on 1/12/22 1 grain 60mg (was previously taking 75mcg of Levo). She is now taking supplements of Vit D3, K2, Selenium, Zinc, Omega 3. She is now “gluten free” and taking no artificial sugars. Diet changed to include more leafy veg. fruits
Butterflycake1
in
Thyroid UK
2 years ago
my life...
I suffer from PTSD..cancer in remmision...depresion an anxiety and take no meds..how are you guys doing out there????👋
I suffer from PTSD..cancer in remmision...depresion an anxiety and take no meds..how are you guys doing out there????👋
lchipita
in
Anxiety Support
1 year ago
Zoledronic acid infusion for osteoporosis- I have to consider this
To fill in some historic details: I was treated for many years by Katharina Dalton for Premenstrual Migraine and Sinusitis using natural progesterone (Gestone Injections). Successfully. I hadn't been able to work for nine years but after treatment started went back to work full time. When she retired
To fill in some historic details: I was treated for many years by Katharina Dalton for Premenstrual Migraine and Sinusitis using natural progesterone (Gestone Injections). Successfully. I hadn't been able to work for nine years but after treatment started went back to work full time. When she retired
Mugs19
in
Thyroid UK
2 years ago
under active Thyroid with vitamins
I’ve been taken vitamins since October. I have had a full blood count last week all normal, my urine came back normal .I have noticed aches and pains in my upper arms, neck and shoulders.. This might sound silly just wondering if anyone experienced the same.I have got under-active thyroid should I still
I’ve been taken vitamins since October. I have had a full blood count last week all normal, my urine came back normal .I have noticed aches and pains in my upper arms, neck and shoulders.. This might sound silly just wondering if anyone experienced the same.I have got under-active thyroid should I still
Peggymae-18
in
Thyroid UK
2 years ago
Anxiety panic attack nightmare
I will be honest I've. Battled. With anxiety and nightmare in the middle of the night recently I did I woke up in the middle of the night and I had a huge panic attack . I was feeling scared if I have to tell anyone please be careful what u put on your mind and because I haven't been feeding my mindset
I will be honest I've. Battled. With anxiety and nightmare in the middle of the night recently I did I woke up in the middle of the night and I had a huge panic attack . I was feeling scared if I have to tell anyone please be careful what u put on your mind and because I haven't been feeding my mindset
Taylormidnights
in
Anxiety and Depression Support
1 year ago
RLS or something else?
Hi, I started vaping to replace a tobacco habit and got carried away with the vaping taking in far too much. Started off a light tingle in the arms initially for a few weeks but then spread to the legs where it is focused most. It happens when i am about to fall into a deep sleep. I can lie in bed
Hi, I started vaping to replace a tobacco habit and got carried away with the vaping taking in far too much. Started off a light tingle in the arms initially for a few weeks but then spread to the legs where it is focused most. It happens when i am about to fall into a deep sleep. I can lie in bed
Hidden
in
Restless Legs Syndrome
2 years ago
my fourth rheumatologist
Today Sunday I had an appointment to see my fourth rheumatologist in four years of my GCA and PMR journey. I have over these four years had no advice on reducing my pred how to take care of my disease. I have because of some medical knowledge been able to care for myself with the help of this forum and
Today Sunday I had an appointment to see my fourth rheumatologist in four years of my GCA and PMR journey. I have over these four years had no advice on reducing my pred how to take care of my disease. I have because of some medical knowledge been able to care for myself with the help of this forum and
Reddev
in
PMRGCAuk
2 years ago
Why is my heart beat faint now?
Hello all. I’ve had anxiety for 13 years and most of it was my heart being super aware of the beating and pounding. I caught Covid in Jan of 22 and again in August 22. The first time it left me with a few symptoms but the second time is when I started really feeling off. Physically numb mentally numb
Hello all. I’ve had anxiety for 13 years and most of it was my heart being super aware of the beating and pounding. I caught Covid in Jan of 22 and again in August 22. The first time it left me with a few symptoms but the second time is when I started really feeling off. Physically numb mentally numb
Maymay72194
in
Anxiety Support
1 year ago
Treating TBI sleep disorders
Hi folks. I'm currently in Uni and doing research for my master's thesis relating to my TBI experience. I came across a very recent study reviewing the history of sleep disorders following TBI and thought I'd share something that addresses insomnia which many people on here get (I had hypersomnia, excessive
Hi folks. I'm currently in Uni and doing research for my master's thesis relating to my TBI experience. I came across a very recent study reviewing the history of sleep disorders following TBI and thought I'd share something that addresses insomnia which many people on here get (I had hypersomnia, excessive
pinkvision
in
Headway
2 years ago
missed dose AA
on holiday I have forgotten to take my Sunday dose of Alendronic Acid. I have already taken my 7am pred and omniprazole - what should I do? Can I miss it for one week? Panicking!!
on holiday I have forgotten to take my Sunday dose of Alendronic Acid. I have already taken my 7am pred and omniprazole - what should I do? Can I miss it for one week? Panicking!!
Jantayl
in
PMRGCAuk
2 years ago
New Member
Hello, my son (5 y/o) was diagnosed with anxiety and dysregulated anger and aggression disorder about 1 year ago (children's mental health professional). He was then diagnosed with ADHD about 3 months ago (physiologist). I now have a clearer understanding that the ladder diagnosis has much to do with
Hello, my son (5 y/o) was diagnosed with anxiety and dysregulated anger and aggression disorder about 1 year ago (children's mental health professional). He was then diagnosed with ADHD about 3 months ago (physiologist). I now have a clearer understanding that the ladder diagnosis has much to do with
Jsunshine
in
CHADD's ADHD Parents Together
2 years ago
Found this in Waitrose (Bit pricey!) Lovely creamy Oat Kefir. Dairy, soya and gluten free... Edit ** Found a recipe they use milk grains**
£3!! and rather annoyingly really nice... heck I'm worth it! I only went in for a sneaky sushi treat 😏 Edit... actually cheaper in Waitrose as they sell the 500g where as the other only sell 250g £1.85 Oat Base (Water, Gluten-Free Oats (11%), Sunflower Oil, Salt), Coconut Cream, Stabilisers (Tapioca
£3!! and rather annoyingly really nice... heck I'm worth it! I only went in for a sneaky sushi treat 😏 Edit... actually cheaper in Waitrose as they sell the 500g where as the other only sell 250g £1.85 Oat Base (Water, Gluten-Free Oats (11%), Sunflower Oil, Salt), Coconut Cream, Stabilisers (Tapioca
TiggerMe
in
Thyroid UK
2 years ago
allergy to meds taken for GCA
diagnosed about 6 weeks ago. Put on prednisolone, Lansaprosol , Vitamin D & Alendronate. Last week ended up at A&E with severe allergic rash my body is just like it’s burnt so itch & sore. Been taken off everything except prednisolone. Has anyone else had a reaction like this
diagnosed about 6 weeks ago. Put on prednisolone, Lansaprosol , Vitamin D & Alendronate. Last week ended up at A&E with severe allergic rash my body is just like it’s burnt so itch & sore. Been taken off everything except prednisolone. Has anyone else had a reaction like this
CavalierKC3
in
PMRGCAuk
2 years ago
Obsessive thoughts about little things
I have been dealing with anxiety for quite some time by nowBut recently I have started getting compulsive thoughts about irrelevant things,I watched a short video which now I can't remember what was about and I can't search for it and that is making me annoyed and disturbed,even if I do find it I fear
I have been dealing with anxiety for quite some time by nowBut recently I have started getting compulsive thoughts about irrelevant things,I watched a short video which now I can't remember what was about and I can't search for it and that is making me annoyed and disturbed,even if I do find it I fear
sumeetthakur1981
in
Anxiety and Depression Support
2 years ago
Levothyroxine sodium loaded dissolving microneedle arrays for transdermal delivery
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
Have been waiting for this for, umm, years! Especially since many recent mentions of microneedle arrays for other medicines. And suddenly fell across it today. The idea that we just might have an option to avoid oral delivery of thyroid hormones is spectacularly great news. It might not be the best
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Azelaic acid and asthma
Hi, I have been prescribed a skin treatment for my rosacea that includes Azelaic acid. I have read that it could worsen my asthma, which is already severe. Has anyone any experience of azelaic acid? Thanks
Hi, I have been prescribed a skin treatment for my rosacea that includes Azelaic acid. I have read that it could worsen my asthma, which is already severe. Has anyone any experience of azelaic acid? Thanks
CraftyLego
in
Asthma Community Forum
2 years ago
Intrusive thoughts
Hi I’m so sorry to hear about the intrusive thoughts that you have been going through .I also have experienced them since being diagnosed with PP last year.What I found helpful is someone’s comment to imagine physically putting them on a cloud and floating away.Also remembering that everyone gets intrusive
Hi I’m so sorry to hear about the intrusive thoughts that you have been going through .I also have experienced them since being diagnosed with PP last year.What I found helpful is someone’s comment to imagine physically putting them on a cloud and floating away.Also remembering that everyone gets intrusive
Raindropsonroses44
in
Action on Postpartum Psychosis
2 years ago
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