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A little scared
Hi all, I'm scheduled to have back surgery next week. I'm okay about that - can't tolerate the nerve pain anymore. What scares me is my detailed haematological plan. Off aspirin and warfarin, bridge anticoagulation with clexane and then unfractionated heparin. I have a liver blood clot already, scared
Hi all, I'm scheduled to have back surgery next week. I'm okay about that - can't tolerate the nerve pain anymore. What scares me is my detailed haematological plan. Off aspirin and warfarin, bridge anticoagulation with clexane and then unfractionated heparin. I have a liver blood clot already, scared
Karol_Rua
in
MPN Voice
8 years ago
3 Weeks Post Cryoablation
When considering having an ablation procedure, I found it quite dfficult to find other people's experiences with ablation. It wasn't until I found this site that I found some more relevant experiences that helped me decide and understand what I was in for. I had visions of my leg being hacked off to
When considering having an ablation procedure, I found it quite dfficult to find other people's experiences with ablation. It wasn't until I found this site that I found some more relevant experiences that helped me decide and understand what I was in for. I had visions of my leg being hacked off to
Andyu80
in
AF Association
8 years ago
Should I be under the care of a specialist?
Hi, I was diagnosed with APS 6 years ago following several miscarriages. I did see a blood specialist at the time for a very brief meeting where I was giving a list of things I would need to do if I got pregnant ( wear support stockings and take heparin) and a list of symptoms for DVT and pulmonary thrombosis
Hi, I was diagnosed with APS 6 years ago following several miscarriages. I did see a blood specialist at the time for a very brief meeting where I was giving a list of things I would need to do if I got pregnant ( wear support stockings and take heparin) and a list of symptoms for DVT and pulmonary thrombosis
Caroline03
in
Hughes Syndrome APS Forum
8 years ago
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Heparin Injections Daily?
Further to previous posts (son in law's diagnosis of APS and Factor V Leiden ) his haematologist has now told him to arrange daily injections of Heparin, after discussion with her colleagues. He is to start these on monday 16/05/16 unsure how long for. He is getting pins and needles and feels very worried
Further to previous posts (son in law's diagnosis of APS and Factor V Leiden ) his haematologist has now told him to arrange daily injections of Heparin, after discussion with her colleagues. He is to start these on monday 16/05/16 unsure how long for. He is getting pins and needles and feels very worried
teldee
in
Hughes Syndrome APS Forum
8 years ago
Disappointed but grateful
Went in for my redo ablation on Wednesday. When my E.P.pierced the septum wall, the needle went into the aorta instead of the left atria. There was no way of knowing if any damage had been done so my E.P decided to call a halt to the procedure for my safety. I spent the night on coranary care being diligently
Went in for my redo ablation on Wednesday. When my E.P.pierced the septum wall, the needle went into the aorta instead of the left atria. There was no way of knowing if any damage had been done so my E.P decided to call a halt to the procedure for my safety. I spent the night on coranary care being diligently
dedeottie
in
AF Association
8 years ago
Blood thinning/turmeric & fish oil
I am taking warfarin for afib, and have seen the warnings regarding the consumption of turmeric not being recommended for people on an anticoagulant. " According to the National Institutes of Health, turmeric may slow blood clotting. Avoid combining turmeric with anticoagulant and/or antiplatelet drugs
I am taking warfarin for afib, and have seen the warnings regarding the consumption of turmeric not being recommended for people on an anticoagulant. " According to the National Institutes of Health, turmeric may slow blood clotting. Avoid combining turmeric with anticoagulant and/or antiplatelet drugs
barbara2
in
AF Association
8 years ago
Fighter
Hi all!!! I was diagnosed with Stage 4 lung cancer just about a year ago the beginning of April. Thought my allergies were acting up but my sat was in the 80's; I ended up in the ED for a workup; and ended up admitted on a heparin drip because of several clots in both my lungs! The subsequent stay and
Hi all!!! I was diagnosed with Stage 4 lung cancer just about a year ago the beginning of April. Thought my allergies were acting up but my sat was in the 80's; I ended up in the ED for a workup; and ended up admitted on a heparin drip because of several clots in both my lungs! The subsequent stay and
cyndicat16
in
Lung Cancer Support
8 years ago
APS or MS ????????
Hi , as I said previously my Neurologist has now decided that I have "probable MS " So him and my Gp decided to take me off Warfarin. Then my eyesight started playing up, big style. So they put me back on Warfarin. Until that thinned my blood I was on Heparin injections also. My bloods went up and down
Hi , as I said previously my Neurologist has now decided that I have "probable MS " So him and my Gp decided to take me off Warfarin. Then my eyesight started playing up, big style. So they put me back on Warfarin. Until that thinned my blood I was on Heparin injections also. My bloods went up and down
Totallysick
in
Hughes Syndrome APS Forum
8 years ago
Septrin 80mg/400mg
I've been on
Septrin
since June as CD4 is low which I completely understand. Does anyone know if
Septrin
cause change of Skin colour (make the skin darker). I was told that some antibiotics may cause skin issues but having read the leaflets there is mentioning abiut skin related issues.
I've been on
Septrin
since June as CD4 is low which I completely understand. Does anyone know if
Septrin
cause change of Skin colour (make the skin darker). I was told that some antibiotics may cause skin issues but having read the leaflets there is mentioning abiut skin related issues.
Positive80
in
HIV Partners
8 years ago
Hughs Syndrome Joint/neck pain?
Hi I was diagnosed with APS 15 years ago after multiple miscarriages. I went on to have three healthy children with lots of support, heparin (280 injections per pregnancy!) and asprin though my twins were very premature at 29 weeks. They were my 9th pregnancy. They are now 9 and 7 and I am 44.I have
Hi I was diagnosed with APS 15 years ago after multiple miscarriages. I went on to have three healthy children with lots of support, heparin (280 injections per pregnancy!) and asprin though my twins were very premature at 29 weeks. They were my 9th pregnancy. They are now 9 and 7 and I am 44.I have
pixie2011
in
Hughes Syndrome APS Forum
8 years ago
Professor Graham Hughes Monthly Blog April 2016
Monthly Blog April 2016 So soon after the March blog, here comes another. Like London buses – nothing for a while then two together. Hopefully I am making up for lost time following my illness. My topic this month is “Twins” - what can they teach us? In diseases where there is a suspicion of a genetic
Monthly Blog April 2016 So soon after the March blog, here comes another. Like London buses – nothing for a while then two together. Hopefully I am making up for lost time following my illness. My topic this month is “Twins” - what can they teach us? In diseases where there is a suspicion of a genetic
MaryF
Administrator
in
Hughes Syndrome APS Forum
8 years ago
Professor Graham Hughes' March Blog 2016
There is a link to a paper in this, (I will put the actual paper underneath). Monthly Blog March 2016 Easter weekend. A warm, sunny Good Friday after three months of grey skies. Time to return to my ‘blog’ and for me a long awaited return after illness. Last year, before my illness and operations
There is a link to a paper in this, (I will put the actual paper underneath). Monthly Blog March 2016 Easter weekend. A warm, sunny Good Friday after three months of grey skies. Time to return to my ‘blog’ and for me a long awaited return after illness. Last year, before my illness and operations
MaryF
Administrator
in
Hughes Syndrome APS Forum
8 years ago
Lupus positive and pregnant
Hi All, I suffered a miscarriage in my second trimester during 20weeks. Did my blood tests after 6 months of miscarriage and found I am Lupus Anticoagulant positive whereas my Antibodies IGg is negative. I am now 6 weeks pregnant and have seen the Rheumatologist. He said he couldn't recommend me to
Hi All, I suffered a miscarriage in my second trimester during 20weeks. Did my blood tests after 6 months of miscarriage and found I am Lupus Anticoagulant positive whereas my Antibodies IGg is negative. I am now 6 weeks pregnant and have seen the Rheumatologist. He said he couldn't recommend me to
Caljase
in
LUpus Patients Understanding and Support
8 years ago
Scariest few days !
Hi, I'm Jules (Julie), About 5 weeks ago I saw my dr as both of my feet were incredibly swollen and painful on the tops. I naturally thought it was due to the arthritis. Dr.B said it looked like water retention, to walk around and keep them raised every few hours. Last Monday I had to see a locum.He
Hi, I'm Jules (Julie), About 5 weeks ago I saw my dr as both of my feet were incredibly swollen and painful on the tops. I naturally thought it was due to the arthritis. Dr.B said it looked like water retention, to walk around and keep them raised every few hours. Last Monday I had to see a locum.He
kohai
in
Foggy's "Invisible Illness" Support
8 years ago
Why cant I stop worrying
Hi, today was my first day of injecting myself with heparin (I am taking innohep) and 75mg aspirin a day, I am literally just pregnant at 4weeks and 5 days, I have previously had 2 late miscarriages one at 16 weeks and one at 20 and I am absolutely thrilled to be pregnant and want to have a successful
Hi, today was my first day of injecting myself with heparin (I am taking innohep) and 75mg aspirin a day, I am literally just pregnant at 4weeks and 5 days, I have previously had 2 late miscarriages one at 16 weeks and one at 20 and I am absolutely thrilled to be pregnant and want to have a successful
katemurray1985
in
Hughes Syndrome APS Forum
8 years ago
Update from surgery
Hi all!! As promised, here is an update after my surgery. The procedure went very well, the doctor placed rods and screws in my back...very little blood loss during surgery. I am very surprised that I do not have as much pain as I thought I would have. What pain I am having is very well controlled,
Hi all!! As promised, here is an update after my surgery. The procedure went very well, the doctor placed rods and screws in my back...very little blood loss during surgery. I am very surprised that I do not have as much pain as I thought I would have. What pain I am having is very well controlled,
becca10
in
Hughes Syndrome APS Forum
8 years ago
Ablations and Blood Thinners
10 years ago I was diagnosed with an AVM. Which never gave me any disturb so far. 3 years ago I was diagnosed with A-Fib . My episodes vary from once a month to once every three to four months. Now I am in a dispute with our health authorities about having an ablation. Because I cannot take any blood
10 years ago I was diagnosed with an AVM. Which never gave me any disturb so far. 3 years ago I was diagnosed with A-Fib . My episodes vary from once a month to once every three to four months. Now I am in a dispute with our health authorities about having an ablation. Because I cannot take any blood
Gaetan
in
AF Association
8 years ago
Worried about pregnancy and positive Lupus Anticoagulant
Hi all - I haven't posted for a while, but today I read a new article about a study that confirmed those of us with a positive Lupus Anticoagulant are more likely to have adverse pregnancy outcomes. This was even more true of those who have had a thrombotic event in the past or positive antibodies on
Hi all - I haven't posted for a while, but today I read a new article about a study that confirmed those of us with a positive Lupus Anticoagulant are more likely to have adverse pregnancy outcomes. This was even more true of those who have had a thrombotic event in the past or positive antibodies on
merrohawk83
in
Hughes Syndrome APS Forum
8 years ago
Pea sized lump under skin from heparin injection?
Hi, I've been injecting heparin for about 3 months since I found out I was pregnant. I've been lucky enough to have very minimal bruising. However, last night I noticed a small lump under the skin near an injection site where there is a little bruise, it's about the size of a pea. I'm assuming it's
Hi, I've been injecting heparin for about 3 months since I found out I was pregnant. I've been lucky enough to have very minimal bruising. However, last night I noticed a small lump under the skin near an injection site where there is a little bruise, it's about the size of a pea. I'm assuming it's
Tlove
in
Hughes Syndrome APS Forum
8 years ago
1 positive test, pregnant -advice please...!
Hi all, I am fairly new to all this and would love some advice on my current situation. I have a 5 year old son and a 2 year old son. I then had 3 miscarriages (one at 10 weeks, but not developed past 5-6 weeks, then 2 v. Early at 5 weeks). I was tested and results came back positive for anti cardiolipin
Hi all, I am fairly new to all this and would love some advice on my current situation. I have a 5 year old son and a 2 year old son. I then had 3 miscarriages (one at 10 weeks, but not developed past 5-6 weeks, then 2 v. Early at 5 weeks). I was tested and results came back positive for anti cardiolipin
Pregnantk
in
Hughes Syndrome APS Forum
8 years ago
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