Hi , as I said previously my Neurologist has now decided that I have "probable MS " So him and my Gp decided to take me off Warfarin. Then my eyesight started playing up, big style. So they put me back on Warfarin. Until that thinned my blood I was on Heparin injections also. My bloods went up and down,wouldn't stabilize. At one point they were 5.9 ! I was getting my blood checked regularly as I was going to Florida 9th April,and they weren't settling at same level often enough. The day before I was due to fly,my bloods were low again,and a locum Gp came into nurse,s room and told me he didn't want me to fly. If I went against his wishes then I wasn't insured. Well I went.As I was going to a Wedding on the 12th. As you can gather,from reading this , I made it back !
Because I refused ,and went anyway. He stopped my Warfarin and put me on Clopidogrel. When I got back , I got my blood checked,and it was 1. So I was put on 3mg Wafain until this Tuesday. When it will be checked again.
I was put back ontoWarfarin after my eyes started refusing to work together. I haven't driven my car since February. Because I'm not confident with my Driving at present. The letter I received from the Neurologist states " probable primary progressive multiple sclerosis. With Isolated lupus anticoagulant. With no other features of APS or Sle. Recommendation to stop Warfarin,and get a repeat Lupus Anticoagulant test in June. He wants me to see a Consultant of Rehabilitation Medicine in a fortnight. Haven't got a clue what that is. He has assigned an MS nurse also. After years of treating me for APS,having a Stroke etc etc he now thinks that my MRI scans that showed an infarction he now thinks is an "unusual MS plaque " if when I get my blood tests in June if they are still elevated , then he will consider low dose Aspirin.
SoI am totally and utterly confused. One minute its APS,the next MS. If its MS,then WHY is the Gp checking my bloods and put me back on Wafarin. What is a " normal " persons blood. I asked the nurse on Friday,she didn't know,but wouldn't test her own to find out.
Sorry for the long winded confused moan. But thoughtI would update my latest situation i