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Itchy feet burning sensation while on heparin
Hi just wondering if anyone else gets itchy feet on heparin , as sometimes at night I feel a slight warm burning sensation then my foot feel really itchy this only seems to happen mainly at nighttime although have experience it in daytime on a few occasions very irritating
Hi just wondering if anyone else gets itchy feet on heparin , as sometimes at night I feel a slight warm burning sensation then my foot feel really itchy this only seems to happen mainly at nighttime although have experience it in daytime on a few occasions very irritating
Lopat
in
Anticoagulation Support
7 years ago
Brain fog, Trimethoprin and asthma?
I'm allergic to
Septrin
, which contains Trimethoprin, but this info had mysteriously disappeared from my notes. I have mild asthma and this drug also caused breathlessness which I managed with my blue inhaler. However, the fog in my head has been awful.
I'm allergic to
Septrin
, which contains Trimethoprin, but this info had mysteriously disappeared from my notes. I have mild asthma and this drug also caused breathlessness which I managed with my blue inhaler. However, the fog in my head has been awful.
RestlessOwl
in
Pain Concern
7 years ago
Low INR again
Hi guys me again . INR still fluctuating gone from 4.1 ,3.7, 3.1 and now 2.6 this morning. Feel rough and worried . Still waiting for vein test . Thank gif I'm seeing Prof Haye next Monday . Think I might need Heparin as well 😐
Hi guys me again . INR still fluctuating gone from 4.1 ,3.7, 3.1 and now 2.6 this morning. Feel rough and worried . Still waiting for vein test . Thank gif I'm seeing Prof Haye next Monday . Think I might need Heparin as well 😐
amy1808
in
Hughes Syndrome APS Forum
7 years ago
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Hughes syndrome.... very anxious
Hi all, I have been browsing this site while being under investigation at the recurrent miscarriage clinic. I have had a miscarriage at 7 weeks then I had a ruptured ectopic 2 months after which resulted in my left tube being removed, 5 months later I experienced another miscarriage. After having bloods
Hi all, I have been browsing this site while being under investigation at the recurrent miscarriage clinic. I have had a miscarriage at 7 weeks then I had a ruptured ectopic 2 months after which resulted in my left tube being removed, 5 months later I experienced another miscarriage. After having bloods
Rachel-c
in
Hughes Syndrome APS Forum
7 years ago
APS & Extreme Fatigue
Hello, I've had APS for awhile and usually just take a baby aspirin except during pregnancy when I've taken heparin too. I'm in the Dallas, TX area. Recently, I've had very bad extreme exhaustion, migraines, Raynaud's phenomenon and bad circulation. I was also diagnosed with Fibromyalgia almost 15
Hello, I've had APS for awhile and usually just take a baby aspirin except during pregnancy when I've taken heparin too. I'm in the Dallas, TX area. Recently, I've had very bad extreme exhaustion, migraines, Raynaud's phenomenon and bad circulation. I was also diagnosed with Fibromyalgia almost 15
TxMama79
in
Hughes Syndrome APS Forum
7 years ago
Prof Graham Hughes Monthly Blog - September 2017
Many of us with SLE also have the antiphospholipid antibody (Hughes) syndrome. I am therefore reposting here. Thanks to:
APsnotFab SB HS Support
BLOG – September 2017 One of the recurring themes of history-taking in patients with Hughes Syndrome – or even in those with the suspected diagnosis
Many of us with SLE also have the antiphospholipid antibody (Hughes) syndrome. I am therefore reposting here. Thanks to:
APsnotFab SB HS Support
BLOG – September 2017 One of the recurring themes of history-taking in patients with Hughes Syndrome – or even in those with the suspected diagnosis
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Baby is here!
Hi everyone, What a journey! After 6 pregnancies I gave birth this morning to our second daughter - Amelie Rose. Born at 39 weeks weighing 7lbs 5oz. So surprised to get that far and baby be so big. Miracles do happen! We are stopping at two as feel incredibly grateful for the medical care and treatment
Hi everyone, What a journey! After 6 pregnancies I gave birth this morning to our second daughter - Amelie Rose. Born at 39 weeks weighing 7lbs 5oz. So surprised to get that far and baby be so big. Miracles do happen! We are stopping at two as feel incredibly grateful for the medical care and treatment
Hopingforababy
in
Hughes Syndrome APS Forum
7 years ago
Heparin hit
I think regulars on here are aware of my recent health issues and hospital stay. This morning I had what is known as a Anti X Tena Assay blood test. The results have shown I have reduced platelets so the hospital have arranged another test on Tuesday. They seem quite
I think regulars on here are aware of my recent health issues and hospital stay. This morning I had what is known as a Anti X Tena Assay blood test. The results have shown I have reduced platelets so the hospital have arranged another test on Tuesday. They seem quite
Jillymo
in
Hughes Syndrome APS Forum
7 years ago
Apixaban
Hi diagnosed with DVT 2 weeks ago had two shots of heparin and been on APIXABAN since, been advised about bleeding so far so good, no adverse symptoms as of yet only mild symptoms is lightheadedness every so often, My only anxiety is it feels like a ticking time bomb, Consultant and his pharmacist
Hi diagnosed with DVT 2 weeks ago had two shots of heparin and been on APIXABAN since, been advised about bleeding so far so good, no adverse symptoms as of yet only mild symptoms is lightheadedness every so often, My only anxiety is it feels like a ticking time bomb, Consultant and his pharmacist
Bazaafc
in
Anticoagulation Support
7 years ago
APS how it changed my life.
Hi everyone. I'm 64 and just diagnosed with APS. I am seeing a specialist in hematology who suspects I've had active APS for many years but misdiagnosed until 2 PEs 30 days apart starting on July 4th this year with second one August 3rd. Both lungs have clots but my right lung is the worse with all 3
Hi everyone. I'm 64 and just diagnosed with APS. I am seeing a specialist in hematology who suspects I've had active APS for many years but misdiagnosed until 2 PEs 30 days apart starting on July 4th this year with second one August 3rd. Both lungs have clots but my right lung is the worse with all 3
NorrieW
in
Hughes Syndrome APS Forum
7 years ago
Hey
Hi I thought I'd just introduce myself as I'm new to this. I'm Rosie (as you can probably see by my user name 🙂) I'm 27, symptoms started when I was 8. With arthritis. Then ITP symptoms started at 13. Correctly diagnosed with APS after a stroke at 19. I have been struggling to medicate as my heamotologist
Hi I thought I'd just introduce myself as I'm new to this. I'm Rosie (as you can probably see by my user name 🙂) I'm 27, symptoms started when I was 8. With arthritis. Then ITP symptoms started at 13. Correctly diagnosed with APS after a stroke at 19. I have been struggling to medicate as my heamotologist
Rosiek90
in
Hughes Syndrome APS Forum
7 years ago
Heparin
Hi all, I have managed to brake my ankle while on holiday, not able to explain I may have pbc, they have given me heparin to stop any blot clots but I'm not sure I should use it. Does anyone know if it's ok? Bearing in mind I will be flying home in 4 days. Thanks Sylvia
Hi all, I have managed to brake my ankle while on holiday, not able to explain I may have pbc, they have given me heparin to stop any blot clots but I'm not sure I should use it. Does anyone know if it's ok? Bearing in mind I will be flying home in 4 days. Thanks Sylvia
sylviaj
in
PBC Foundation
7 years ago
MTHFR treatment
all my symptoms started when i was given
Septrin
which wiped out all my folic acid and caused a long un-diagnosed deficiency, followed by B12 def all of which causing permanent nervous system damage and now diagnosed with GAD. reason for post, during a massive fight to get b12 injections i saw a private
all my symptoms started when i was given
Septrin
which wiped out all my folic acid and caused a long un-diagnosed deficiency, followed by B12 def all of which causing permanent nervous system damage and now diagnosed with GAD. reason for post, during a massive fight to get b12 injections i saw a private
br74649
in
Pernicious Anaemia Society
7 years ago
Long term Clexane or any form of heparin
Hi guys , On july 25th of last year i was diagnosed with several small blood clots in my lungs . I have no blood disorders or genetic conditions. After a deep ultrasound of my legs they could never find where the clot came from or the cause . I am 32 dont smoke , dont drink not overweight so mine was
Hi guys , On july 25th of last year i was diagnosed with several small blood clots in my lungs . I have no blood disorders or genetic conditions. After a deep ultrasound of my legs they could never find where the clot came from or the cause . I am 32 dont smoke , dont drink not overweight so mine was
Joncostarica
in
Hughes Syndrome APS Forum
7 years ago
Anticardiolipins false positive
Hello everyone, I had been tested for APS after pre eclampsia and death of my son. No history of miscarriage. The first test done 15 days after my c section was positive for anticardiolipins (48). They repeated the tests 4 months after, came back at 1.2 so strong negative. All other tests are negative
Hello everyone, I had been tested for APS after pre eclampsia and death of my son. No history of miscarriage. The first test done 15 days after my c section was positive for anticardiolipins (48). They repeated the tests 4 months after, came back at 1.2 so strong negative. All other tests are negative
Theomom
in
Hughes Syndrome APS Forum
7 years ago
Another baby update
Here I am 32 weeks into another hopefully successful pregnancy. I had a growth scan a few days ago and the baby is an estimated above average size and weight at the moment. This is a miracle for APS babies as blood flow can often be compromised and babies born on the smaller side. Not in this case. Aspirin
Here I am 32 weeks into another hopefully successful pregnancy. I had a growth scan a few days ago and the baby is an estimated above average size and weight at the moment. This is a miracle for APS babies as blood flow can often be compromised and babies born on the smaller side. Not in this case. Aspirin
Hopingforababy
in
Hughes Syndrome APS Forum
7 years ago
I'm new here.
I am a 73 yr old widow. I have heart disease & 3 stents since 2009 & have have had AFib for over 2 years & now it has gotten to be nearly a daily occurrence. I tried Warfarin in January when I was having AFib about twice a month & could not tolerate it, so chose to not take anything. I’ve been taking
I am a 73 yr old widow. I have heart disease & 3 stents since 2009 & have have had AFib for over 2 years & now it has gotten to be nearly a daily occurrence. I tried Warfarin in January when I was having AFib about twice a month & could not tolerate it, so chose to not take anything. I’ve been taking
Mimi44
in
AF Association
7 years ago
Any Experience With ECOS/ Activase Drip Block Buster ( clot site direct Activase bath?)
My Vascular surgeon called rather late last night to discuss TOS ( which we are both pretty sure I do not have, just needs to be ruled out) venogram test and best practice surgical procedure if positive. I told him I was in current active clot again with approx 2 to 2.5 inches of non compressible
My Vascular surgeon called rather late last night to discuss TOS ( which we are both pretty sure I do not have, just needs to be ruled out) venogram test and best practice surgical procedure if positive. I told him I was in current active clot again with approx 2 to 2.5 inches of non compressible
KellyInTexas
Administrator
in
Hughes Syndrome APS Forum
7 years ago
Professor Graham Hughes' Monthly Blog June 2017
BLOG – June 2017 Wimbledon has started in a blaze of sunshine. What a wonderful summer we are having (at least here in the South-East) - surely it can’t go on. June was, for me, “Midlands Month”. A lecture on Hughes syndrome, lupus and Sjogren’s to the annual meeting of The Royal College of GPs – this
BLOG – June 2017 Wimbledon has started in a blaze of sunshine. What a wonderful summer we are having (at least here in the South-East) - surely it can’t go on. June was, for me, “Midlands Month”. A lecture on Hughes syndrome, lupus and Sjogren’s to the annual meeting of The Royal College of GPs – this
MaryF
Administrator
in
Hughes Syndrome APS Forum
7 years ago
Episodes of vision loss...
Hello, I just discovered this forum which is a relief because I've been having a hard time getting information on peoples experience with APS. I was diagnosed Dec/2016 with APS following a blood clot in my right eye that left me with permanent partial blindness in that eye. Before this happened, I
Hello, I just discovered this forum which is a relief because I've been having a hard time getting information on peoples experience with APS. I was diagnosed Dec/2016 with APS following a blood clot in my right eye that left me with permanent partial blindness in that eye. Before this happened, I
jaymacz28
in
Hughes Syndrome APS Forum
7 years ago
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