My Vascular surgeon called rather late last night to discuss TOS ( which we are both pretty sure I do not have, just needs to be ruled out) venogram test and best practice surgical procedure if positive.
I told him I was in current active clot again with approx 2 to 2.5 inches of non compressible vein with no flow. The report stated " chronic" and the vein itself was appearing way too small. He explained that meant epeated DVT's ( and so frequently are a real concern) are taking a toll on integrity of cellular lining of vein.
He had a thought- and a question. I told him I would ask my hematologist today and this group! ( I know APsnot fab / Mary/ others archive medical journals / abstracts pertaining to APS sometimes my docs don't even have.)
Here's his question:
Since your INR is over 3.5, and your hematologist does not feel comfortable using systemic heparin in any form, I'd like to find a rapid way to dissolve that DVT to open that occluded vein up.
There is a device called an ECOS that is threaded into the arm . It contains a slow drip of a clot busting medication called Activase and it bathes the clot at the site.
What experience have any of you had? Appointment with internist in 1.5 hours.
While I was typing this surgeon called again- internist is going to call hematologist in Princeton. My hematologist here still hasn't bothered to call.
This surgeon just might go ahead with my internist here and do this. We have got to get flow. I'm growing impatient of waiting for my San Antonio hematologist to call. It's been over 24 hours. I have had NO TREATMENT.