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Seize Control - your route to better treatment
We estimate that with better treatment 108,000 more people could become
seizure
free. The campaign supports you to ask for better treatment if your seizures are not controlled. https://www.epilepsy.org.uk/involved/campaigns/seize-control
We estimate that with better treatment 108,000 more people could become
seizure
free. The campaign supports you to ask for better treatment if your seizures are not controlled. https://www.epilepsy.org.uk/involved/campaigns/seize-control
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
9 years ago
Help
Earlier this year my husband came home from work and had a massive
seizure
, he has a brain tumour..... Life has been very stressful. About 3 months ago I was rushed into hospital as I thought I was having a heart attack , After ECG and blood tests I was told I'd had a panic attack ....
Earlier this year my husband came home from work and had a massive
seizure
, he has a brain tumour..... Life has been very stressful. About 3 months ago I was rushed into hospital as I thought I was having a heart attack , After ECG and blood tests I was told I'd had a panic attack ....
Mummy40
in
Anxiety Support
9 years ago
Improvement and then disaster
I had a
seizure
in March, the second in three years and only the second one that I know of.
I had a
seizure
in March, the second in three years and only the second one that I know of.
TrampyJDWench
in
Foggy's "Invisible Illness" Support
9 years ago
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Trying to get through uni
Below is a link to a survey I have created to try to gain an understanding of the need and understanding of
seizure
alert dogs. http://www.smartsurvey.co.uk/s/S3LVQ/ Thank you for your time and support :)
Below is a link to a survey I have created to try to gain an understanding of the need and understanding of
seizure
alert dogs. http://www.smartsurvey.co.uk/s/S3LVQ/ Thank you for your time and support :)
Hb94
in
Epilepsy Research Institute
9 years ago
Trying to get through uni
Below is a link to a survey I have created to try to gain an understanding of the need and understanding of
seizure
alert dogs. http://www.smartsurvey.co.uk/s/S3LVQ/ Thank you for your time and support :)
Below is a link to a survey I have created to try to gain an understanding of the need and understanding of
seizure
alert dogs. http://www.smartsurvey.co.uk/s/S3LVQ/ Thank you for your time and support :)
Hb94
in
Epilepsy Action
9 years ago
VERY scary episode of sleep paralysis
It felt so painful that I thought I was having a
seizure
or a stroke or something, but my boyfriend said I wasn't moving at all. I was freaking out and I still am. It was so scary. Now I feel nauseous and my head hurts along with my stomach. Is this dangerous?
It felt so painful that I thought I was having a
seizure
or a stroke or something, but my boyfriend said I wasn't moving at all. I was freaking out and I still am. It was so scary. Now I feel nauseous and my head hurts along with my stomach. Is this dangerous?
Hidden
in
Anxiety Support
9 years ago
Cerebral Vasculitis (mis)diagnosis/RCVS/vasospasms
I was disoriented and felt as if I was having a
seizure
. My friends were pretty shaken up and it was clear the nurses and doctors thought I was either on drugs or detoxing from drugs.
I was disoriented and felt as if I was having a
seizure
. My friends were pretty shaken up and it was clear the nurses and doctors thought I was either on drugs or detoxing from drugs.
Jennabug954
in
Vasculitis UK
9 years ago
Coping with the constant feeling that you're going to die?
I am so so scared every second that I'm going to die or have a
seizure
or faint even though I have never had a
seizure
or fainted. Now it is worse because I'm switching medications and feeling really sick, which to me means death is coming. How can I stop these thoughts in the moment?
I am so so scared every second that I'm going to die or have a
seizure
or faint even though I have never had a
seizure
or fainted. Now it is worse because I'm switching medications and feeling really sick, which to me means death is coming. How can I stop these thoughts in the moment?
Hidden
in
Anxiety Support
9 years ago
Risperdal making me sick?
These side effects scare me (the risperdal is only .5 mg by the way) because I have severe health anxiety and fear of having a
seizure
or fainting. at my worst I am certain I'm about to have a
seizure
. It feels like one coming on (though I've never even had one).
These side effects scare me (the risperdal is only .5 mg by the way) because I have severe health anxiety and fear of having a
seizure
or fainting. at my worst I am certain I'm about to have a
seizure
. It feels like one coming on (though I've never even had one).
Hidden
in
Anxiety Support
9 years ago
Struggling to cope
We told the neurologist, but was told that this was unlikely the cause, even though this happened a week or so prior to his first tonic, clonic
seizure
( he also suffers absence seizures about 10 - 20 times a day, more frequent in the mornings).
We told the neurologist, but was told that this was unlikely the cause, even though this happened a week or so prior to his first tonic, clonic
seizure
( he also suffers absence seizures about 10 - 20 times a day, more frequent in the mornings).
elnino
in
Epilepsy Action
9 years ago
How can you be diagnosed?
This episode seemed more like a
seizure
. The heart recording showed the heart raising from 90bpm to 170bpm which I am told is normal by her cardiologist. I am thinking she has epilepsy? During the shaking she was rigid and she rolled onto her front from her back.
This episode seemed more like a
seizure
. The heart recording showed the heart raising from 90bpm to 170bpm which I am told is normal by her cardiologist. I am thinking she has epilepsy? During the shaking she was rigid and she rolled onto her front from her back.
Katiex
in
Epilepsy Action
9 years ago
Reapplying for my driving licence - advice
I know there is a general rule of being
seizure
free for 12 months but I am not sure whether this applies when my licence was not 'taken away' (DVLA's words not mine!). I am just so eager to start driving again!!!! Thanks in advance folks.
I know there is a general rule of being
seizure
free for 12 months but I am not sure whether this applies when my licence was not 'taken away' (DVLA's words not mine!). I am just so eager to start driving again!!!! Thanks in advance folks.
RD_RAB_2874
in
Epilepsy Action
9 years ago
Epilepsy Research Task
2.Please describe what you experience during a
seizure
? 3.How often do you get seizures? 4.What medication/therapy are you currently taking/undergoing? 5.Please list the side effects of the medication/therapy and give an opinion on how effective the medication/therapy is?
2.Please describe what you experience during a
seizure
? 3.How often do you get seizures? 4.What medication/therapy are you currently taking/undergoing? 5.Please list the side effects of the medication/therapy and give an opinion on how effective the medication/therapy is?
NimiB
in
Epilepsy South Africa
9 years ago
Derealisation 3 years strong.. no end in sight
Its given me health anxiety, I fear I'm going to have a
seizure
or faint all the time. I never have but I'm sure I will. I'm also pretty sure that every day is the last day of my life. This is a nightmare.
Its given me health anxiety, I fear I'm going to have a
seizure
or faint all the time. I never have but I'm sure I will. I'm also pretty sure that every day is the last day of my life. This is a nightmare.
Hidden
in
Anxiety Support
9 years ago
Dealing with uncertainty
I find it really difficult to deal with the uncertainty of not knowing when I am going to have a fit or
seizure
as many call it.I never ever get any warning signs and that scares me when I think about it as I could and do fall down anywhere at any time.So it means I cant go anywhere without being accompanied
I find it really difficult to deal with the uncertainty of not knowing when I am going to have a fit or
seizure
as many call it.I never ever get any warning signs and that scares me when I think about it as I could and do fall down anywhere at any time.So it means I cant go anywhere without being accompanied
Hidden
in
Epilepsy Research Institute
9 years ago
Triggers and recognising them.
I just wish I knew what as its worrying not knowing when its going to happen.The biggest problem I have is i rarely remember anything previous to my
seizure
or indeed anything about my stay in hospital after them.In fact only last year i had to stay in hospital for 8 days as i had a cluster of seisures
I just wish I knew what as its worrying not knowing when its going to happen.The biggest problem I have is i rarely remember anything previous to my
seizure
or indeed anything about my stay in hospital after them.In fact only last year i had to stay in hospital for 8 days as i had a cluster of seisures
Hidden
in
Epilepsy Research Institute
9 years ago
Stopping in tracks while remembering something?
Thanks to your helpful advice I saw my GP who has said she believes I am showing
seizure
activity, caused by an atypical migraine or epilepsy. She was leaning towards epilepsy. Just to rule out other things I am having a CT scan before I see a neuro in May.
Thanks to your helpful advice I saw my GP who has said she believes I am showing
seizure
activity, caused by an atypical migraine or epilepsy. She was leaning towards epilepsy. Just to rule out other things I am having a CT scan before I see a neuro in May.
kittyIM
in
Epilepsy Research Institute
9 years ago
Epilepsy support in Oxfordshire
Good afternoon all, My wife was diagnosed with epilepsy after a tonic clonic
seizure
that came out of nowhere. Nearly two years on and She is still struggling to come to terms with her diagnosis and although she knows her condition does not define her, it is affecting her work and her life.
Good afternoon all, My wife was diagnosed with epilepsy after a tonic clonic
seizure
that came out of nowhere. Nearly two years on and She is still struggling to come to terms with her diagnosis and although she knows her condition does not define her, it is affecting her work and her life.
Martin1980
in
Epilepsy Research Institute
9 years ago
ICH and the NHS
In Oct 14 I had a
seizure
in my sleep, so, off to A&E blue lights flashing, I went. I felt very unwell and was in and out of consciousness but when hubby asked about a scan he was told it was too big a radiation risk.
In Oct 14 I had a
seizure
in my sleep, so, off to A&E blue lights flashing, I went. I felt very unwell and was in and out of consciousness but when hubby asked about a scan he was told it was too big a radiation risk.
LifelongLandlady
in
Headway
9 years ago
Pacemakers?
The last
seizure
was in hospital under monitoring and she had a 32 second asystole (heart not beating). It has been suggested that she needs a pacemaker. Has anyone had experience with this?
The last
seizure
was in hospital under monitoring and she had a 32 second asystole (heart not beating). It has been suggested that she needs a pacemaker. Has anyone had experience with this?
LaurenMiller
in
STARS
9 years ago
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