It just got worse..: Well, I've been... - Myalgic Encephalo...

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It just got worse..

Ihatedrs40 profile image
5 Replies

Well, I've been doing pretty bad lately and now have lost feeling in both legs and collapsed. I feel like I'm having a seizure but awake and don't know what to do! I'm to scared to go to the er, in fear they will treat me like shit. I've had a horrible migraine for 7 days now that gets worse when I stand up and can't breath when I lay flat in bed. Any ideas to get someone to listen, believe me and help??? Before something worse happens?

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Ihatedrs40 profile image
Ihatedrs40
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5 Replies

Get to the Drs.! If you ve had a headache and you've lost feeling in your legs and can't breath you need checking out! It's probably nothing, what's worse? they treat you badly or you don't go and something bad happens.

Go now don't wait, good luck and let me know how you get on.

Ihatedrs40 profile image
Ihatedrs40 in reply to Lucylongstockings

I might suck it up tomorrow and go to urgent care but really don't want to hear their bullshit again. Still have kankles and not feeling to hot! Ughhh. .

msBrightside profile image
msBrightside

I have severe migraines and I have had seizures since I was 14

I really hope things get better for you don't let the fear take over

Push aside the horrible feelings doctors are giving you its not your fault they don't understand

Message me anytime x

Ihatedrs40 profile image
Ihatedrs40 in reply to msBrightside

I know I need to get help but these drs have really f***** my head up. I had a phone appt yesterday with my dr and the asshole never called me!! I'm still swollen and feel ugly. I did the cold bath, salts and put my legs up. No change :(

msBrightside profile image
msBrightside in reply to Ihatedrs40

That's ridiculous you shouldn't be left like that have you thought of trying alternative therapies

It's really crucial for you to have support and no negativity is there not another surgery you could go to

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