Search
Search
About
Log in
Join
Experiences with
Seizure
Posts
Communities
1,914 public posts
Filter results
Long QT Syndrome
Hi, I posted the other day about me being on holiday in Crete where I had a
seizure
then stopped breathing and my husband had to perform CPR on me. Since then, I’ve been diagnosed with “possible” Long QT Syndrome to be confirmed when I FINALLY get home. Does anybody on here have this condition?
Hi, I posted the other day about me being on holiday in Crete where I had a
seizure
then stopped breathing and my husband had to perform CPR on me. Since then, I’ve been diagnosed with “possible” Long QT Syndrome to be confirmed when I FINALLY get home. Does anybody on here have this condition?
BeeBee79
in
British Heart Foundation
2 years ago
Keppra, memory problems
my problem is , I don't recall having them after the night
seizure
, and before I started taking Keppra. a gap of a few weeks Now I'm not sure if its epilepsy, or a medication side effect!
my problem is , I don't recall having them after the night
seizure
, and before I started taking Keppra. a gap of a few weeks Now I'm not sure if its epilepsy, or a medication side effect!
Hermanm
in
Epilepsy Action
2 years ago
Advice on switching from lamotragine due to side affects
Then Dec 2021 I had a
seizure
, totally out of the blue. I was started on lamotragine. I had 2 further seizures and have had none since. I have been on full dosage 125 m X 2 since April. I am struggling with the side affects, constant sleepiness and brain fog.
Then Dec 2021 I had a
seizure
, totally out of the blue. I was started on lamotragine. I had 2 further seizures and have had none since. I have been on full dosage 125 m X 2 since April. I am struggling with the side affects, constant sleepiness and brain fog.
Owl32
in
Epilepsy Action
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Constant Seizures
Is epilepsy a meaning for types of
seizure
. I think I am getting demensia along with this, Hey Well I will do my ususal and think that there is always someone worse off than me THANKS FOR READING
Is epilepsy a meaning for types of
seizure
. I think I am getting demensia along with this, Hey Well I will do my ususal and think that there is always someone worse off than me THANKS FOR READING
Wheesy
in
Epilepsy Action
2 years ago
How do I go about getting help/a diagnosis?
I had my first aura and PNES based
seizure
yesterday. It had to have been psychological I believe because the
seizure
lasted over 30 minutes. I've talked to some others with the same symptoms as me who were diagnosed with PNES and I am just wondering what to do.
I had my first aura and PNES based
seizure
yesterday. It had to have been psychological I believe because the
seizure
lasted over 30 minutes. I've talked to some others with the same symptoms as me who were diagnosed with PNES and I am just wondering what to do.
artisticrat
in
Functional Neurological Disorder - FND Hope
2 years ago
MRI and EEG confirm no stroke! 😮💨
They feel this is what caused the original
seizure
. He will continue on the
seizure
medication and they hope to move his brain radiation up (before Wednesday). They anticipate discharge on Wednesday.
They feel this is what caused the original
seizure
. He will continue on the
seizure
medication and they hope to move his brain radiation up (before Wednesday). They anticipate discharge on Wednesday.
Pancake_Lefse
in
Advanced Prostate Cancer
2 years ago
Increase in levetiracetam from 500mg to 750mg twice a day
Up until my last
seizure
2 months ago, I was taking 500mg twice a day of levetiracetam which i was fine with. After this
seizure
, neurologist increased to 750mg twice a day. Since then I havent been right in myself and am wondering whether i should ask to be reduced back to the 500mg twice daily.
Up until my last
seizure
2 months ago, I was taking 500mg twice a day of levetiracetam which i was fine with. After this
seizure
, neurologist increased to 750mg twice a day. Since then I havent been right in myself and am wondering whether i should ask to be reduced back to the 500mg twice daily.
Dawn43
in
Epilepsy Action
2 years ago
Has anyone experienced numbness in the hands with a loss of coordination following a seizure?
I can’t find much information of people suffering from this following a
seizure
so I was hoping someone might have any information or advice that might be useful please?
I can’t find much information of people suffering from this following a
seizure
so I was hoping someone might have any information or advice that might be useful please?
Dexols
in
Epilepsy Action
2 years ago
Why ………..
Whilst the paramedics where on site my husband had a
seizure
. He was taken to our local A&E where he had another
seizure
. Whilst in A&E (resus) the doctor came over to us and asked if we knew what was going on and had we been told anything.
Whilst the paramedics where on site my husband had a
seizure
. He was taken to our local A&E where he had another
seizure
. Whilst in A&E (resus) the doctor came over to us and asked if we knew what was going on and had we been told anything.
JL76
in
The Roy Castle Lung Cancer Foundation
2 years ago
ASMR?
She also suffers with urine infections that can trigger a
seizure
of her temp spikes. Does anyone use a weighted blanked for their teenager or for themselves? If so, what are your thoughts on them? Good? Or Bad? Thank you xx
She also suffers with urine infections that can trigger a
seizure
of her temp spikes. Does anyone use a weighted blanked for their teenager or for themselves? If so, what are your thoughts on them? Good? Or Bad? Thank you xx
Foreverhopefu1
in
Epilepsy Action
2 years ago
Memory
I tend to notice my memory is really bad after a
seizure
but it starts to come back after some time, but I think with some decline. I had one last week?, first for 1 year and 4 months, am devastated
I tend to notice my memory is really bad after a
seizure
but it starts to come back after some time, but I think with some decline. I had one last week?, first for 1 year and 4 months, am devastated
Golfer60
in
Epilepsy Action
2 years ago
Symptoms but no seizure
a
seizure
.
a
seizure
.
Dawn43
in
Epilepsy Action
2 years ago
Sobbing seizures?
Hubby was diagnosed with autoimmune encephalitis in January and has been on steroids and anti
seizure
meds since then. 3 weeks ago he started having episodes where he shakes and sobs uncontrollably as waves of pain go over his head. Has anyone else had symptoms like this?
Hubby was diagnosed with autoimmune encephalitis in January and has been on steroids and anti
seizure
meds since then. 3 weeks ago he started having episodes where he shakes and sobs uncontrollably as waves of pain go over his head. Has anyone else had symptoms like this?
Kw55
in
Encephalitis International
2 years ago
advice please regarding my 14 year old granddaughter
She has the following symptoms Weakness ..shortness of breath from time to time ...fatigue .. sleeps most of the day .. lack of appetite.. irritability ...
seizure
(happened once) .. concentration problems .. depression ... headache .. dizziness.. ringing in her ears from time to time.
She has the following symptoms Weakness ..shortness of breath from time to time ...fatigue .. sleeps most of the day .. lack of appetite.. irritability ...
seizure
(happened once) .. concentration problems .. depression ... headache .. dizziness.. ringing in her ears from time to time.
Lincsangel1
in
Pernicious Anaemia Society
2 years ago
ROPINIROLE IS THE DEVIL FOR SURE!
I lie exhausted but wide awake at the same time, throwing one leg out the bed the other over the other side of the bed - it’s almost like a grandmas
seizure
but without the
seizure
with all the lower leg thrashing! I punch my legs.
I lie exhausted but wide awake at the same time, throwing one leg out the bed the other over the other side of the bed - it’s almost like a grandmas
seizure
but without the
seizure
with all the lower leg thrashing! I punch my legs.
Ropinirole-is-SATAN
in
Restless Legs Syndrome
2 years ago
MRI results
Also suffer with Inflammatory Bowel Disease and since last year, seizures and also had a Sub Arachnoid Haemorrage with second
seizure
. Anxiety is through the roof as I am still waiting for an ENT appt to investigate right mastoid and middle ear opacification. Sick with worry 😟
Also suffer with Inflammatory Bowel Disease and since last year, seizures and also had a Sub Arachnoid Haemorrage with second
seizure
. Anxiety is through the roof as I am still waiting for an ENT appt to investigate right mastoid and middle ear opacification. Sick with worry 😟
Dawn43
in
Neuro Support
2 years ago
Gastroscopy/ Throat spray/Medazolam sedative
Also the day after my first gastroscopy, I had a
seizure
and this is worrying me that it could happen again.
Also the day after my first gastroscopy, I had a
seizure
and this is worrying me that it could happen again.
Dawn43
in
Oesophageal & Gastric Cancer
2 years ago
Epilepsy medication increasing risk of dementia
They have been controlled by 1000mg levetiracetam a day initially & neurologist said I could stop if I wanted after being
seizure
free for 2 years. Instead I tried reducing the dose to 500mg a day & after a while I had a
seizure
so went back up to 750mg & have been ok with this.
They have been controlled by 1000mg levetiracetam a day initially & neurologist said I could stop if I wanted after being
seizure
free for 2 years. Instead I tried reducing the dose to 500mg a day & after a while I had a
seizure
so went back up to 750mg & have been ok with this.
Dobradee
in
Epilepsy Action
2 years ago
Essential oils
I have been admitted to hospital twice and have had an immense increase in my
seizure
activity. I have had medication changes but no help and my my rescue medication is not working too.
I have been admitted to hospital twice and have had an immense increase in my
seizure
activity. I have had medication changes but no help and my my rescue medication is not working too.
car67
in
Epilepsy Action
2 years ago
A mountain of tiredness,a moderate amount of regret and a tidal wave of aches and pains
But I should've known better. the lights and sounds took there affect slowly, my seizures having a pre aura of mania, which makes me feel so high for a short while,but then into
seizure
after
seizure
.
But I should've known better. the lights and sounds took there affect slowly, my seizures having a pre aura of mania, which makes me feel so high for a short while,but then into
seizure
after
seizure
.
LottieLou96
in
LUPUS UK
2 years ago
1
...
13
14
15
...
96
Next page
10
20
30
40
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
Epilepsy Action
304 results
Anxiety Support
187 results
Headway
143 results
View top 10 communities
Sort by
Most Relevant
Newest