Levothyroxine - anxiety , chronic fatigue, HRT and eating disorder - does anyone else have these symptoms ?

[Sarahpoppe232]

hi thyroiders - I am yo-yoing from extreme anxiety to extreme fatigue . I am getting really low thoughts as I can’t sustain a relationship -

I can barely look after my children and they live with me half the time.

I feel so afraid as over the last 16 years this is getting worse and worse

Just started T3 0.25 today and reduced Levothyroxine from 125 to 100 over last 4 days before starting t3

Started citalopram 5mg 8 days ago - I was on sertraline but lost all sexual feeling and now have again lost sexual sensation and have a numbness in my mind and my body .

I have an eating disorder and so struggle with over eating but am back in the program for recovery on that

I have started HRT two months ago

Does anyone else have anxiety, thyroid, hormone imbalance HRT and eating disorder with fatigue and anxiety ?

I am fed up of resting when fatigue gets so bad - I know this is not in my head - the fatigue is so boring. I don’t invite anyone over or plan anything as I will have to cancel.

I would really appreciate to meet anyone else with these symptoms

[beaubeau1121]

I am so sorry!!!!

Hope the gradual dosage of T3 helps... but be patient.

[fiftyone]

I take levo, HRT patches and have suffered extreme fatigue but tests showed my ferratin levels were very low. I was given liquid medication and I used an iron oral spray, but my iron was still dropping. Now trying iron and vitamin C patches and referred for an iron infusion. This may not apply to you, if course. Also I am low on B12 which affects fatigue and I now have regular B12 injections. Just worth thinking outside the box and getting anything checked which could cause fatigue.

[birkie]

Hi sarahpoppe232❤️

By far one of my worst symptoms is fatigue.... I hate it😠I hate it.. I hate it.. 😠

First I have no thyroid, since full thyroidectomy in 2019 my gp/endo have treated me like a guinepig trying me on every thyroid drug going t4/T3 because I'm lactose intolerant and have colitis I can only take the lactose free ones and there's not many to choose from🤦‍♀️

I found T4 unbearable just couldn't stomach any of it, so I got on to T3 it's been, and still is a up hill struggle, I've managed to reach 25mg per day split 15mg morning 10mg later afternoon but even at this I feel so ill not withstanding the stomach and bowle issues I just feel like this drug is not doing anything for me😔

Also just mentioning the menupause... I started going threw it in 2007 the only symptom I had which took me to my gp was I flushed in my face and chest, and it was my partner at the time who urged me to go, blood test confirmed I was going through the menupause, over those years I never needed any treatment as I only had the flush nothing else until around 2014 when I suddenly started sweating for England with a very small hand tremor gp said its your menupausal state.

But unfortunately it was not.. It was in fact hyperthyroidism (graves) which I was eventually Diagnosed with in 2018 had thyroidectomy 2019 came out of thyroidectomy all symptoms had disappeared.. No sweating, no tremors I thought thank the lord for that!!!!

But the nightmare began again when I was put on T4 125mg my first dose after 2 days I started to sweat bad again and my tremors were back 🤷‍♀️😢 surgeon said you still have antibodies in your system you will start to feel better as the months go by, I saw him again and he de- creased my t4 to 100 then 75 as I was presenting as hyper eventho my T3 was not over range.

So this is how I've been left by my gp and endo, I'm at my wits end with my health, I study like a student (I'm far from a student I'm 61😁) but I started to look at why I feel so bad, my last bloods showed a TSH at 6.25 and someone wrote next to it in the print out(OK for this person) WTH!! How can a TSH of 6.25 be normal? for one it's out of range 😠

But I've also been asking myself... Could taking thyroid hormone replacement affect the menupause? Could it make it worse? After all its all hormonal, and since going on thyroid hormone replacement I feel like I'm either A, going through a very bad menupause or B, the thyroid drugs are doing something to me that my body doesn't like🤷‍♀️

I feel like I'm in limbo and like you my gp is not good, and trying to get an appointment is near hand impossible.

I do like yourself have other health issues, 2 endocrinologist in 2020 said I may have primary hyperparathyroidism after my calcium and parathyroid came back over range twice but they didn't want to bother with me just wait and see approach 🤦‍♀️I took this into my own hands and saw a private parathyroid surgeon who as now identified a nodule in my neck, he says my bloods actually show normocalcemic hyperparathyroidism, I'm having a chlorine pet scan on Aug 9th at Liverpool 👍 so I'm rather hoping that some of my symptoms may be linked to this condition also.

I feel for you❤️ it's a nightmare when after we take the thyroid drug we don't feel any better, and my gp had me on sertaraline to, it made me feel like a zombie, I took myself off it after a year, as for HRT when I was hyperthyroid (gp didn't Diagnose it😠) he put me on the HRT gel obviously it made no difference as it wouldn't being I was actually hyperthyroid 🤦‍♀️ but I sweat for England still, still have bad palpitations , still have small hand tremors, and a weird sensation where I swear my bones are vibrating especially in my thighs /ankles, it's such an awful sensation and no gp I see will help me.

I hope we can both get to the bottom of why we feel like we do❤️🤷‍♀️ I remember my thyroidectomy surgeon saying to me after the op.. Take these as instructed (T4) you'll never look back!!! Well I'd like to tell him my head is now permanently looking back!! Because even after thyroidectomy I feel just as bad as before😠

Big hugs to for you.. 🤗🤗

[Sarahpoppe232 in reply to birkie]

Gosh yea it makes me feel better to see you are also trying to navigate all these symptoms alone with no medical guidance. I really hope you get some answers with your scan

Kind regards

Sarah