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Rituximab
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FCR may CURE some of us - Dr Sharman
[i]"In today's CLL climate, web informed patients are rebelling against FCR - and in many cases, I think it is for good reason. FCR is a tough regimen. Even in the German CLL8 study, about 4% of patients die in the first 12 months after starting therapy. In the MD Anderson data set, it appears that
[i]"In today's CLL climate, web informed patients are rebelling against FCR - and in many cases, I think it is for good reason. FCR is a tough regimen. Even in the German CLL8 study, about 4% of patients die in the first 12 months after starting therapy. In the MD Anderson data set, it appears that
AussieNeil
Partner
in
CLL Support
9 years ago
iFCR Phase II Study Looks Promising
My wife, a younger, fit, otherwise healthy person diagnosed with CLL (unmutated IGHV, 11q deletion) began a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With Chronic Lymphocytic Leukemia (iFCR) at Dana Farber in Boston. She just completed 1st month of treatment with
My wife, a younger, fit, otherwise healthy person diagnosed with CLL (unmutated IGHV, 11q deletion) began a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With Chronic Lymphocytic Leukemia (iFCR) at Dana Farber in Boston. She just completed 1st month of treatment with
ltcbbaker
in
CLL Support
9 years ago
Benefit Help Please
I'm on: Fluoxentine Colofac Co-Codamol Dihydrocodeine Folic Acid Arcoxia 120mg - For RA Sufasalazine 2000mg-For RA Quinoric 400mg-For RA Methotrexate Injections 20ml-For RA
Rituximab
Intravenous Infusion 1st 22/9/15 2nd 06/10/15-For RA TRIED ANTI-TNF 7 MONTHS DID NOT WORK Phenergan Baclofen Climavil
I'm on: Fluoxentine Colofac Co-Codamol Dihydrocodeine Folic Acid Arcoxia 120mg - For RA Sufasalazine 2000mg-For RA Quinoric 400mg-For RA Methotrexate Injections 20ml-For RA
Rituximab
Intravenous Infusion 1st 22/9/15 2nd 06/10/15-For RA TRIED ANTI-TNF 7 MONTHS DID NOT WORK Phenergan Baclofen Climavil
cheekyminx
in
Fibromyalgia Action UK
9 years ago
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Update on rheumatologist appointment
Thanks to all who commented on my
rituximab
post. Was at the rheumatologist today. He wants me to reduce to a three day week until next treatment takes effect. While I agree I currently have no balance and spend all time away from work trying to give my kids time and recovering to start over.
Thanks to all who commented on my
rituximab
post. Was at the rheumatologist today. He wants me to reduce to a three day week until next treatment takes effect. While I agree I currently have no balance and spend all time away from work trying to give my kids time and recovering to start over.
Stynk
in
NRAS
9 years ago
Silly question....
Hi I was diagnosed with CLL in October 2013 I had treatment in October 2014 (bendamustine and
Rituximab
) and finished treatment in March of this year. I saw my haematologist yesterday and he said there is no trace of the leukaemia in my blood . My question is do I still have CLL?
Hi I was diagnosed with CLL in October 2013 I had treatment in October 2014 (bendamustine and
Rituximab
) and finished treatment in March of this year. I saw my haematologist yesterday and he said there is no trace of the leukaemia in my blood . My question is do I still have CLL?
icklemand
in
CLL Support
9 years ago
Fish Test Results and Treatment Decisions
Hi everyone. I was with my consultant haematologist today and my FISH test results show no abnormalities - I didn't think that this was even possible. On the face of it, its good news, but has anyone else had such a result? I haven't been tested re mutated / unmutated status - seemingly not available
Hi everyone. I was with my consultant haematologist today and my FISH test results show no abnormalities - I didn't think that this was even possible. On the face of it, its good news, but has anyone else had such a result? I haven't been tested re mutated / unmutated status - seemingly not available
KateEvaLen
in
CLL Support
9 years ago
Influenza (flu) vaccinations in lupus
Rituximab
treatment can reduce response to vaccinations. If you are receiving
Rituximab
you should have your vaccinations one month pre
Rituximab
or four months after your infusion.
[u]Can the flu jab and other vaccines be given at the same time? [/u]
Yes.
Rituximab
treatment can reduce response to vaccinations. If you are receiving
Rituximab
you should have your vaccinations one month pre
Rituximab
or four months after your infusion.
[u]Can the flu jab and other vaccines be given at the same time? [/u]
Yes.
Paul_Howard
LUPUS UK
in
LUPUS UK
9 years ago
Statistical analysis of REACH trial patients identifies Progression Free Survival prognostic factor for FCR patients
REACH (NCT0090051) was an open-label randomized (1:1) phase III trial in relapsed CLL comparing FC with FCR, (that is comparing traditional chemotherapy using Fludarabine+Cyclophosphamide, compared to immunochemotherapy in which the monoclonal CD20 antibody
Rituximab
/Mabthera is added to the Fludarabine
REACH (NCT0090051) was an open-label randomized (1:1) phase III trial in relapsed CLL comparing FC with FCR, (that is comparing traditional chemotherapy using Fludarabine+Cyclophosphamide, compared to immunochemotherapy in which the monoclonal CD20 antibody
Rituximab
/Mabthera is added to the Fludarabine
AussieNeil
Partner
in
CLL Support
9 years ago
Update
He has been receiving Idelalisib+
Rituximab
for 2 weeks now and all is well at the moment. His blood counts were good today and as he is feeling so much better on this treatment Dr Bloor does not want to see him again for 3 months.
He has been receiving Idelalisib+
Rituximab
for 2 weeks now and all is well at the moment. His blood counts were good today and as he is feeling so much better on this treatment Dr Bloor does not want to see him again for 3 months.
june65
in
CLL Support
9 years ago
Feedback from the new Northumberland and Cumbria first support group meeting
Two doctors from the Freemans Hospital popped into talk about vasculitis, the hospital in Newcastle, Cyclophosphamide and
Rituximab
. Dr Lordan and Dr Griffiths both stayed on to answer lots of questions.
Two doctors from the Freemans Hospital popped into talk about vasculitis, the hospital in Newcastle, Cyclophosphamide and
Rituximab
. Dr Lordan and Dr Griffiths both stayed on to answer lots of questions.
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
Confusion of being told my lupus has 'disappeared' because I'm nearing 60 years of age
In 2011 I had another CNS and Myelitis flare up and St Thomas' asked my local MS Clinic to arrange
Rituximab
infusions which I had in 2012 followed by a weekly dose of 20mg Methotrexate. Since the summer of 2014 the Lupus has been in semi-remission.
In 2011 I had another CNS and Myelitis flare up and St Thomas' asked my local MS Clinic to arrange
Rituximab
infusions which I had in 2012 followed by a weekly dose of 20mg Methotrexate. Since the summer of 2014 the Lupus has been in semi-remission.
hazel595
in
St Thomas Lupus Trust
9 years ago
Which treatment is best for eye problems?
A recent review by his often inconsistent rheumatologist has changed his dx to sero positive Palindromic Rheumautism (despite joint erosions) and she recommends either Methotrexate or
Rituximab
as the best treatments for his eye problems.
A recent review by his often inconsistent rheumatologist has changed his dx to sero positive Palindromic Rheumautism (despite joint erosions) and she recommends either Methotrexate or
Rituximab
as the best treatments for his eye problems.
Fennella02
in
NRAS
9 years ago
Tooth extractions
Hi would just like some advice, I have WG taking Pred,Methotrexate,
Rituximab
and lots of other medications. I have not got very good teeth and the whole of my bottom jaw has been very sore for a few months.
Hi would just like some advice, I have WG taking Pred,Methotrexate,
Rituximab
and lots of other medications. I have not got very good teeth and the whole of my bottom jaw has been very sore for a few months.
may-3-6
in
Vasculitis UK
9 years ago
A weekend of vomiting
The other doctors I saw on the Assessment Unit wanted to make sure the treatment they started (increased Prednisolone and antibiotics) was right as they weren't sure of the reading of the bloods and the fact I was given
Rituximab
in June and July.
The other doctors I saw on the Assessment Unit wanted to make sure the treatment they started (increased Prednisolone and antibiotics) was right as they weren't sure of the reading of the bloods and the fact I was given
Rituximab
in June and July.
Maureenpearl
in
LUPUS UK
9 years ago
Sad news
A very thoughtfull gentleman who talked me through my horrible reaction to
rituximab
. He was a real inspiration and calming influence. Amazingly it turned out we only lived in the next village and we became good mates as did our partners.
A very thoughtfull gentleman who talked me through my horrible reaction to
rituximab
. He was a real inspiration and calming influence. Amazingly it turned out we only lived in the next village and we became good mates as did our partners.
grizzlebear
in
CLL Support
9 years ago
FCR soon/confused
I am 49 and was dx. In April 2015. I have been on watch & wait or should I say watch & worry. I am being followed by a cll doctor at Dana Farber in Boston. My markers are 11q (less than 10 per cent), CD 38 positive, Zap 70 negative an unmutated ighv. My only symptoms are many swollen lymph nodes ( neck
I am 49 and was dx. In April 2015. I have been on watch & wait or should I say watch & worry. I am being followed by a cll doctor at Dana Farber in Boston. My markers are 11q (less than 10 per cent), CD 38 positive, Zap 70 negative an unmutated ighv. My only symptoms are many swollen lymph nodes ( neck
Dinasantos
in
CLL Support
9 years ago
Ibrutinib + FCR Phase II Study
My wife Michele began treatment with Ibrutinib last week, one week prior to FCR chemo as part of a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With CLL (iFCR), NIH Trial Number: NCT02251548. The goal of this study is to be cancer free (minimum residual disease MRD
My wife Michele began treatment with Ibrutinib last week, one week prior to FCR chemo as part of a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With CLL (iFCR), NIH Trial Number: NCT02251548. The goal of this study is to be cancer free (minimum residual disease MRD
ltcbbaker
in
CLL Support
9 years ago
Rituximab
Does anyone else have experience of
Rituximab
please. I would value your feedback. Thank you in advance. Delia. X
Does anyone else have experience of
Rituximab
please. I would value your feedback. Thank you in advance. Delia. X
d-creasey
in
NRAS
9 years ago
Are you biologically young enough for FCR?
Wondering if you are biologically young and fit enough to tolerate say FCR (Fludarabine, Cyclophosphamide
Rituximab
), or whether a gentler treatment protocol such as BR (Bendamustine
Rituximab
) would suit you better?
Wondering if you are biologically young and fit enough to tolerate say FCR (Fludarabine, Cyclophosphamide
Rituximab
), or whether a gentler treatment protocol such as BR (Bendamustine
Rituximab
) would suit you better?
AussieNeil
Partner
in
CLL Support
9 years ago
How good are we meant to feel again?
I am taking
rituximab
and reducing steroids monthly. I am feeling pretty good but just wondered if we ever feel completely well again on medicine and in remission. I always have some sort of symptom still, tired, achy and brain fog.
I am taking
rituximab
and reducing steroids monthly. I am feeling pretty good but just wondered if we ever feel completely well again on medicine and in remission. I always have some sort of symptom still, tired, achy and brain fog.
joannebond360
in
LUPUS UK
9 years ago
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