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LUPUS UK
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Permanent make up

Hey everyone.

Has anyone had permenent make up? I have booked myself in for microblading on my eyebrows, just dawned on me that it might not be ok with us lupies πŸ™ˆ I'm on prednisilone and rituximab. I have had a tattoo years ago and that was ok.

Thank you.

Jo

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I really would ask your doctor - it isn't something I would choose to do while on immunosuppressant medication. There is a high risk of infection of the tattooed area - it is effectively an open wound. And I would also be concerned about my immune system having a hissy fit at the chemicals being injected into my skin. It is a bit late once it has happened.

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Lady Gaga seems to be ok think she has had everything done so go for it , we need cheering up sometimes x

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Something I have wanted to for ages! Oh yeah she has hasn't she? πŸ˜‚ We definitely do need cheering up.

Thank you

Jo x

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That is true but my understanding is although Lady Gaga has the genetic predisposition to lupus, hers hasn't been triggered yet, i.e. she is symptom free. I think I'd check with my Rheumy and/or Dermy first. PS I've always wanted my nose pierced - don't ask me why as I have no idea just fancied it - but was a lawyer for 11 years and then worked in a school, so didn't really seem like the right time. Now I think I've missed my chance as on immune suppressant and have thus horrible feeling it wouldn't heal or something, it would be just my luck. x

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Lady gaga does not have lupus. She has fibromyalgia

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My friend owns a salon...she was trying to get me to have my eyebrows done about the same time my SLE was being re-diagnosed in 2011...she discussed my case & my lupus with her supplier who told her she must not work on me. Lupus was specifically contraindicated by her suppliers terms & conditions. That was that....πŸ€·β€β™€οΈ

πŸ€πŸ€πŸ€πŸ€ coco

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Will have to speak to Addenbrookes and find out! Will see what they say 😒

Thank you Barnclown

Jo

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Will you let us know what they say, is be really interested to know. x

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Yeah I will. Got a horrible feeling it will be a NO! 😩

X

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I have a permanent black marker lol

But my shakes are bad just now x

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Might have to resort to that, hahahaha x

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I have read that it's safe to get tattoos with lupus so I don't know why this would be any different!

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Do you think tattoos and piercings are one of the things lupus doctors will disagree on? Some saying yes it's OK and others an outright no.

Are you a sensitive / allergic person?

I can't even dye my hair anymore, as that became so painful on my sore scalp.

It's frustrating for us that we can't enjoy these things we used to, to pamper ourselves and give us a confidence boost.

X

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Yeah I think your right. Got a feeling it's going to be a BIG FAT No 😒

No I'm not allergic or sensitive. Still get my hair dyed and hair waxing etc with no problem.

It really is frustrating. I actually didn't think about it when I booked it! πŸ™ˆ

Xx

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My scalp is frequently hot and pink with uncomfortable bumps. Strangely enough it never seems to be triggered by hair dye. I keep my fingers crossed it doesn't change or I'll end up looking like a badger withe the grey roots!!!

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Hi joannebond360,

Here is what 'The Lupus Encyclopedia' by Donald E Thomas Jr. says,

"People who have SLE should not get tattoos for several reasons. Although many tattoo artists are professionals and pride themselves on using proper sterile technique, infections can and do occur. These infections include hepatitis B, hepatitis C, Staphylococcus aureus, endocarditis (heart infection), and HIV. If someone is on a medication that suppresses the immune system, the occurrence of one of these infections could be potentially deadly. If people are not on an immunosuppressant medicine at the time of getting the tattoo, but they acquire a chronic infection such as hepatitis B or hepatitis C this would greatly decrease the number of medications that could be safely used for their lupus in the future if their lupus were to worsen. In addition, some people who have lupus have actually developed cutaneous lupus at the tattoo site because of the tattoo itself."

Saying this, I am aware of some people who have SLE and have had tattoos with no apparent adverse effects. There is an inherent risk in doing this though.

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Hi Paul

Thank you so much for that. That's really interesting and makes very good sense.

Jo

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Ah yes - but WHERE did you read it? If you look hard enough you can find something on the internet that will tell you it is fine to do anything. Doesn't mean it is right though.

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Yes I too have been told not a problem as very strong hygiene is required in all salons. I'm fine after a decade of lupus and have great brows. Oh and a small foot tattoo with no problems xx

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That's brilliant, thank you!

Jo xxx

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Even a clean salon cannot overcome contaminated water in the dye which was shipped to the salon. Many of the ingredients could be contaminated. Many reports of serious infections that are also disfiguring. Is the risk worth the reward?

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Hi joannebond360

I had my brows done couple years back before I knew I had lupus. Was fine but I was looking into having it done again and it says in small print people with autoimmune diseases can't 😞. I've lots of tattoos too. Might not stop me doing them though 😝 But I Spose each person is different

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I don't see the difference between tattoos and what they do with your eyebrows! I thought it was the same sort of thing! Xx

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I agree, it is and the eyebrows are semi permanent, unlike the tattoo ink. I think if you sensitive to hair dyes, tattoos then best not. It's basically to cover them legally I think incase goes wrong xx

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I have gotten one tattoo since my diagnosis. The area was red for a few days and then went away. No problems since.

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I have definitely pondered more tattoos but since my diagnosis I have decided against 😭.

What I have found is that I am becoming allergic to things as time goes on. I can't use the same deodorant I have used for 10 years, i now have to use the 0% aluminium and paraben free stuff. Some plasters, dissolvable stitches and other along with my hair dye now and most recently the face powder I use. I have never been so sensitive. In my case just because I haven't been sensitive before doesn't mean I won't in the future.

I think they use different inks between tattooing and microblading. If you want to take the chance go for it, but would definitely ask the manufacturer about it.

L x

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I am on the same medication as you plus morphine and fentanyl pain patches and just taken off hydroxychloroquine after 10years. I had my brows done before and after lupus and am totally fine. Intend having an annual top up. I feel so much better with brows. Hope this helps.

Anne x

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Hey Anne.

Thank you! That's fantastic. Ive asked the hospital I'm under and they have said it's ok. I have told the lady doing it but waiting for her to contact me back about it so fingers crossed 😁 I'm booked in for June 😁

Good on you!

Jo xx

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I want to do it too..I have mild lupus.just photosensitivity and joint and muscle pain.just let us know how it goes please..I am scared to do keratine and eye brows microblading..I did my lips a couple of years before my diagnosis and no problems at all

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Just to update everyone. I was advised it was ok to have and have had my eyebrows done, look and feel amazing, no problems.

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Hi Joanne,

That's fab - I had mine microbladed last September (well before my flare up and before any diagnosis!!!) And I was OK. It is brutal though!! Did you put the numbing cream on? (Forgot name of it...) I'm desperate for a top up but I'm feeling a bit poorly at the minute. It's wonderful to get up and have eyebrows though πŸ˜† mine have faded a bit so I pencil in when I'm going anywhere but it has been known for me to do it in purple... brain fog strikes again...

Well done you, I'm well jell!😘😘😘

C xx

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Yeah she used numbing cream! Was still a bit ouchy! πŸ™ˆ But so worth it. Love getting up and not having to fill them in.

Got to go back in a few weeks for her to touch them up.

Haha! Nothing wrong with purple eyebrows πŸ˜‚πŸ˜‚

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Hi just wanted to know if you got your eyebrows microbladed and if you had any reaction? I’ve just booked mine in for 2 weeks time and am now worried after reading comments. Need to check with my doctor. My skin is sensitive. Thanks Sonia xx

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I got them done and absolutely love them, will be getting them done again in June.

My consultant gave me permission and said it was fine.

Hope it goes ok and you love them.

Jo

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Thank you. Gonna check with consultant first. Just keep reading things saying Don’t do it πŸ˜•xx

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Your consultant will know best.

I kept reading things too but really wanted it done and trusted what the hospital said.

Keep me posted xx

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You ladies need a wee pick me up now and again jo got hers done and they were fine and if not I’ll give you same offer I gave her I have a black permanent marker but my hands are shaky lol x

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