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Rituximab pins and needles
Anybody else experienced this ? I had my infusion last Monday , Wednesday had pins and needles in my leg so much so that I had a numb foot .i stood up and my ankle buckled crashed to the floor and have broken my ankle .Ouch Currently off work and won’t be back for at least 2 months as my job involves
Anybody else experienced this ? I had my infusion last Monday , Wednesday had pins and needles in my leg so much so that I had a numb foot .i stood up and my ankle buckled crashed to the floor and have broken my ankle .Ouch Currently off work and won’t be back for at least 2 months as my job involves
Fifi2
in
NRAS
6 years ago
Are these symptoms part of your RD?
I’ve been diagnosed with RD for about 5 years now and am on MTX and
Rituximab
. But during the last few months these periods of feeling ill have all joined up and now I’m unable to anything other than lie on the sofa.
I’ve been diagnosed with RD for about 5 years now and am on MTX and
Rituximab
. But during the last few months these periods of feeling ill have all joined up and now I’m unable to anything other than lie on the sofa.
StormySeas
in
NRAS
6 years ago
Neutrophils level
Hi guys my husbands FCR treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Hi guys my husbands FCR treatment has be postponed the past three week due to him neutrophils levels being low any recommendations as docs saying will come up naturally :(
Sailormoon11
in
CLL Support
6 years ago
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Medical update
Hi all I know some of you have been following my story since being refused treatment with Ibrutinib as NHS England decided not to follow NICE guidelines. I'm currently being reviewed on a 3 weekly basis. I was put on sreriods antivirals and antibiotics to treat the symptoms not the cause. The steroids
Hi all I know some of you have been following my story since being refused treatment with Ibrutinib as NHS England decided not to follow NICE guidelines. I'm currently being reviewed on a 3 weekly basis. I was put on sreriods antivirals and antibiotics to treat the symptoms not the cause. The steroids
Mick491
in
CLL Support
6 years ago
Just getting through the day. Do you find this a supportive site/ informative site?
Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until the
RItuximab
dose its magic! One weary lass.
Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until the
RItuximab
dose its magic! One weary lass.
Mougette
in
Vasculitis UK
6 years ago
Lessons from five years of ibrutinib experience
Or would we be better hitting the illness harder with a combination of specific drugs say ibrutinib plus either
rituximab
or venetoclax so it’s completely wiped our and doesn’t have the chance to evolve and come back.
Or would we be better hitting the illness harder with a combination of specific drugs say ibrutinib plus either
rituximab
or venetoclax so it’s completely wiped our and doesn’t have the chance to evolve and come back.
AdrianUK
in
CLL Support
6 years ago
Just learning
Hello all I have recently joined, I was diagnosed with SLE in the middle of last year, docs still not sussed my treatment so recently had
rituximab
drip - been four weeks and not one sign of any improvement - I know doc said could take 2-16 weeks to work - patience is not a virtue I possess much of
Hello all I have recently joined, I was diagnosed with SLE in the middle of last year, docs still not sussed my treatment so recently had
rituximab
drip - been four weeks and not one sign of any improvement - I know doc said could take 2-16 weeks to work - patience is not a virtue I possess much of
HelenL75
in
LUPUS UK
6 years ago
Just Finished my First Round FCR!
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
It still feels like an out of body experience. I was on W&W 12 years with no pains/ illnesses, etc. I was fortunate to have my first treatment admitted to hospital for 4 days last week. It was comforting knowing that if anything happened, I was already with medical professionals. My port made the treatment
GMa27
in
CLL Support
6 years ago
Rituximab
They now want to try me on this new medication '
Rituximab
' infusion treatment. I was just wondering if anyone else has had this treatment? If it has worked for them? And possible side effects? And just general how did u feel after? Thank you for reading
They now want to try me on this new medication '
Rituximab
' infusion treatment. I was just wondering if anyone else has had this treatment? If it has worked for them? And possible side effects? And just general how did u feel after? Thank you for reading
Charl1503
in
LUPUS UK
6 years ago
Does my daughter have ana negative neurophyschiatric SLE? Cyclophosamide side effects?
She's had 3 relapses and intially treated with antibiotics, steroids, immunoglobulin, plasmatheresis, followed by
rituximab
then more immunoglobulin and
rituximab
in August 2017.
She's had 3 relapses and intially treated with antibiotics, steroids, immunoglobulin, plasmatheresis, followed by
rituximab
then more immunoglobulin and
rituximab
in August 2017.
Vickysmum
in
LUPUS UK
6 years ago
What if venetoclax and/or ibritinib stops working?
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
JanAmsterdam
in
CLL Support
6 years ago
Manuka Honey
Hi has anyone taken anything particularly Manuka honey to help with low neutrophil ??? Or any ideas as how to get levels up as it’s delaying 2nd round FCR for my husband
Hi has anyone taken anything particularly Manuka honey to help with low neutrophil ??? Or any ideas as how to get levels up as it’s delaying 2nd round FCR for my husband
Sailormoon11
in
CLL Support
6 years ago
RITUXIMAB
Anyone had this infusion?? Nervous, but joints so bad need something else. Start in 3weeks, so gotta make my mind up soon. Side effects worry me the most Thanks x
Anyone had this infusion?? Nervous, but joints so bad need something else. Start in 3weeks, so gotta make my mind up soon. Side effects worry me the most Thanks x
Kjmarsh
in
LUPUS UK
6 years ago
** NHSE and NICE Ibrutinib update **
Sean O'Neill, Chief Reporter from The Times who broke the story about the failure of NHSE to prescribe Ibrutinib as per the NICE Guidance will be on the
Jeremy Vine show today at 1pm.
He will be talking about his CLL and the fight to get the right treatment, Ibrutinib, following his relapse after
Sean O'Neill, Chief Reporter from The Times who broke the story about the failure of NHSE to prescribe Ibrutinib as per the NICE Guidance will be on the
Jeremy Vine show today at 1pm.
He will be talking about his CLL and the fight to get the right treatment, Ibrutinib, following his relapse after
Jm954
Administrator
in
CLL Support
6 years ago
International Prognostic Index Calculator
ALERT: avoid this post if you are the kind of person who does not want to know about statistics and odds of disease progression. This is deliberately an unlocked post so do not share your own results in the comments section unless you are happy for them to be shown in google search results. Feel free
ALERT: avoid this post if you are the kind of person who does not want to know about statistics and odds of disease progression. This is deliberately an unlocked post so do not share your own results in the comments section unless you are happy for them to be shown in google search results. Feel free
AdrianUK
in
CLL Support
6 years ago
what happens after treatment of CLL ?
After treatment of CLL through FCR and getting into remission hopefully, how will the life of the CLL patient be, I mean do I have to do regular tests yearly or every 3 months to check if CLL is gone or came back, can anyone shed the light on this issue please, thanks. Firas
After treatment of CLL through FCR and getting into remission hopefully, how will the life of the CLL patient be, I mean do I have to do regular tests yearly or every 3 months to check if CLL is gone or came back, can anyone shed the light on this issue please, thanks. Firas
Nour80Leen2011
in
CLL Support
6 years ago
CLL treatment and hair loss
Hi everyone I am about to start treatment for CLL soon and most probably the treatment will be FCR meaning a mix of chemotherapy, are am I going to lose my hair? Can anyone share his/her experience with me, thanks. Firas
Hi everyone I am about to start treatment for CLL soon and most probably the treatment will be FCR meaning a mix of chemotherapy, are am I going to lose my hair? Can anyone share his/her experience with me, thanks. Firas
Nour80Leen2011
in
CLL Support
6 years ago
Drug Induced Lupus?
I'm on
Rituximab
infusions, & my Rheumatologist discounted that as the cause So when I saw a Dermotologist & he said it could be DIL, I was shocked to say the least. I'm having a Biopsy to confirm it is DIL, but that will not show which drug is causing the blotches.
I'm on
Rituximab
infusions, & my Rheumatologist discounted that as the cause So when I saw a Dermotologist & he said it could be DIL, I was shocked to say the least. I'm having a Biopsy to confirm it is DIL, but that will not show which drug is causing the blotches.
AgedCrone
in
LUPUS UK
6 years ago
Rash?! Sun, drugs or something else??
Hi all, I’m being treated for GPA with
rituximab
infusions and steroids, currently 20mg a day down from 60mg a day. I’ve developed a rash that started on my face and neck and is now on the back of my hands but nowhere else. My face seems to have died down a bit now.
Hi all, I’m being treated for GPA with
rituximab
infusions and steroids, currently 20mg a day down from 60mg a day. I’ve developed a rash that started on my face and neck and is now on the back of my hands but nowhere else. My face seems to have died down a bit now.
Wengle82
in
Vasculitis UK
6 years ago
Cold
Hi guys I think I’m taking a cold or something how can I help to try and save giving this to my husband who’s having FCR treatment ???
Hi guys I think I’m taking a cold or something how can I help to try and save giving this to my husband who’s having FCR treatment ???
Sailormoon11
in
CLL Support
6 years ago
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