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Relapsing polychondritis
I believe this is very rare ,3.5 people in a million is quoted but would like to know what the best treatment is if
Rituximab
is not working. Thank you.
I believe this is very rare ,3.5 people in a million is quoted but would like to know what the best treatment is if
Rituximab
is not working. Thank you.
trebar
in
Vasculitis UK
6 years ago
unmutated cll patient treatment with fcr
hi there. i would like pls to know if unmutated cll patients as i am have complete remision for several years after FCR treatment or they all relaps after 2 to 3 years .fish test necative to 17p deletion. [i]Image of overall survival comparison with FC and FCR for IGHV mutated and unmutated added by
hi there. i would like pls to know if unmutated cll patients as i am have complete remision for several years after FCR treatment or they all relaps after 2 to 3 years .fish test necative to 17p deletion. [i]Image of overall survival comparison with FC and FCR for IGHV mutated and unmutated added by
Neoklis
in
CLL Support
6 years ago
Frustrated with ITP and not sure be able to keep working as a physical therapist
I have been working as a PT for 20 years and in my mid 50-this was diagnosed with ITP, had multiple
Rituximab
infusions but still running low 20K (lowest was 14K), had no bleeds but bruised often and now can not work 10 hours days or keep up with physical load of being physical therapist due to fatigue
I have been working as a PT for 20 years and in my mid 50-this was diagnosed with ITP, had multiple
Rituximab
infusions but still running low 20K (lowest was 14K), had no bleeds but bruised often and now can not work 10 hours days or keep up with physical load of being physical therapist due to fatigue
hannaITP
in
ITP Support Association
6 years ago
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Fusion
After five months of no RA meds only a steroid jag to keep me going I am awaiting phone call from nurse to arrange
rituximab
infusion. Apprehensive as so far I have not tolerated methotrexate or humira. In my system for six months if I have a problem
After five months of no RA meds only a steroid jag to keep me going I am awaiting phone call from nurse to arrange
rituximab
infusion. Apprehensive as so far I have not tolerated methotrexate or humira. In my system for six months if I have a problem
28maggie11
in
NRAS
6 years ago
Start FCR next week advice please
Hi All! Im 40 was diagnosed with CLL 3 and half years ago.. Starting FCR next week, any words of advice would be much appreciated! I plan to work during treatment,really do hope its not wishful thinking and I can do it need the money. I know everyone is different, is there anyone out there that pulled
Hi All! Im 40 was diagnosed with CLL 3 and half years ago.. Starting FCR next week, any words of advice would be much appreciated! I plan to work during treatment,really do hope its not wishful thinking and I can do it need the money. I know everyone is different, is there anyone out there that pulled
Shirty78
in
CLL Support
6 years ago
A little news to share ....
Two years ago today I began FCR. It was a challenge at times and it was this group that dragged me through it ...sometimes kicking and screaming! Today I've been busy at work, booked a holiday and feel very grateful for the poison that , so far so good, did a decent job. My life was turned upside down
Two years ago today I began FCR. It was a challenge at times and it was this group that dragged me through it ...sometimes kicking and screaming! Today I've been busy at work, booked a holiday and feel very grateful for the poison that , so far so good, did a decent job. My life was turned upside down
Bethan49
in
CLL Support
6 years ago
Blood transfusion after first round of FCR
The start of the FCR went so well, though I was breathless from the first dose of
Rituximab
. That went worse as time went on and my heart felt like it was labouring.
The start of the FCR went so well, though I was breathless from the first dose of
Rituximab
. That went worse as time went on and my heart felt like it was labouring.
Mandy56
in
CLL Support
6 years ago
F.C.R.
How long after each treatment do you feel reasonable?
How long after each treatment do you feel reasonable?
Bamboon62
in
CLL Support
6 years ago
FCR treatment - anyone else had burning sensation in bowels?
Hi my partner as just started FCR treatment on the 27/07/2018 he was ok till yesterday night he went to toilet several time and complain of a burning sensation in his bowel. Hi this caused by treatment [i] [/i] [i]Title changed for easier search access - Admin[/i]
Hi my partner as just started FCR treatment on the 27/07/2018 he was ok till yesterday night he went to toilet several time and complain of a burning sensation in his bowel. Hi this caused by treatment [i] [/i] [i]Title changed for easier search access - Admin[/i]
Angus1953
in
CLL Support
6 years ago
EGPA and Bronchiectasis
Rituximab
, mycophenalate -no effect. Now just diagnosed with bronchiectasis and feel rotten. Diagnosis via chest consultant not vasculitis chap, so as yet, unsure of connection. My question is... anyone out there diagnosed with both? If so how do you manage??
Rituximab
, mycophenalate -no effect. Now just diagnosed with bronchiectasis and feel rotten. Diagnosis via chest consultant not vasculitis chap, so as yet, unsure of connection. My question is... anyone out there diagnosed with both? If so how do you manage??
vivavida
in
Vasculitis UK
6 years ago
anyone had or tried eltrombopag or romiplostim
hi im coming of steroids and platelet count dropping,might have to have
rituximab
again but it only kept platelets high for over a year, has anyone had or heard of eltrombopag or romiplostim as consultant is on about trying this on me,apparently its only about 5 years old, regards
hi im coming of steroids and platelet count dropping,might have to have
rituximab
again but it only kept platelets high for over a year, has anyone had or heard of eltrombopag or romiplostim as consultant is on about trying this on me,apparently its only about 5 years old, regards
inxs1212
in
ITP Support Association
6 years ago
Working diagnosis Vasculitis responsible for Neuropathy secondary to R/A. Previous PMR diagnosis
For working diagnosis
Rituximab
intrusion (8 hours) spared with 250mlg of steroid intrusion (New dug to us, any comments welcome)?
For working diagnosis
Rituximab
intrusion (8 hours) spared with 250mlg of steroid intrusion (New dug to us, any comments welcome)?
Sonofjimmy
in
PMRGCAuk
6 years ago
Low white cell count - raising it with smoothies ?😳
Hello all , recap of probelm , wbc fluctuating between low and very low since August due to
rituximab
treatment for Sjögrens , slipped disc in December and need disc surgery .
Hello all , recap of probelm , wbc fluctuating between low and very low since August due to
rituximab
treatment for Sjögrens , slipped disc in December and need disc surgery .
weathervane
in
LUPUS UK
6 years ago
Big pharma and cancer
Go to ft.com/pharmaceuticals There was also an article: « Drugmakers take an unorthodox route to cancer biosimilars » about the NHS buying Chinese biosimilar version, which they call « copycat » of
Rituximab
, Trastuzumab marketed as Herceptin, Bevacizumab marketed as Avastin.
Go to ft.com/pharmaceuticals There was also an article: « Drugmakers take an unorthodox route to cancer biosimilars » about the NHS buying Chinese biosimilar version, which they call « copycat » of
Rituximab
, Trastuzumab marketed as Herceptin, Bevacizumab marketed as Avastin.
Hidden
in
Lung Conditions Community Forum
6 years ago
Second day of first FCR
So second dose of FCR with the long dose of
Rituximab
. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now!
So second dose of FCR with the long dose of
Rituximab
. Got a bit hot and tired at the end, but no nausea or other nastiness and felt fine since. Even managed a quorn shepherds pie after, though it’s lying like a stone on my tummy now!
Mandy56
in
CLL Support
6 years ago
Thoughts on CLL treatment and watch and wait
Speaking of FCR another option might be to combine ibrutinib with the R of FCR,
rituximab
. Or who knows maybe use all three together. If we combine all the main weapons in our arsenal together do we get a better, deeper,longer response? Or possibly even a cure?
Speaking of FCR another option might be to combine ibrutinib with the R of FCR,
rituximab
. Or who knows maybe use all three together. If we combine all the main weapons in our arsenal together do we get a better, deeper,longer response? Or possibly even a cure?
AdrianUK
in
CLL Support
6 years ago
Burning Pins & Needles!
I also had my first 2 cycles of
Rituximab
in December and touch wood since then have felt better than I have for a long, long time. I think, fingers crossed, that it seems to be working. My problem is for the last 6 months I have had this burning pain (like pins & needles on steroids!)
I also had my first 2 cycles of
Rituximab
in December and touch wood since then have felt better than I have for a long, long time. I think, fingers crossed, that it seems to be working. My problem is for the last 6 months I have had this burning pain (like pins & needles on steroids!)
Bakbre
in
LUPUS UK
6 years ago
Starting Rituximab infusions for EGPA/Churg-Strauss
Help! I'm starting Rituxan infusions next Monday and I'm apprehensive. My EGPA-ChurgStrauss was being controlled (sorta) by prednisone (up and down a lot but was tapered to 8mg) + 150mg Azathioprine, plus a host of others meds for related... seemed ok for about a year. Recently, after a difficult winter
Help! I'm starting Rituxan infusions next Monday and I'm apprehensive. My EGPA-ChurgStrauss was being controlled (sorta) by prednisone (up and down a lot but was tapered to 8mg) + 150mg Azathioprine, plus a host of others meds for related... seemed ok for about a year. Recently, after a difficult winter
grindhaus
in
Vasculitis UK
6 years ago
First time post!
She talked to us about 2 types of treatment Ibrutinib or a combo of
Rituximab
/Bendamustine. Waiting on results from the BM test. Trying to read up on them, what are some of the markers from his tests that I need to look for? I know she said he was unmutated IGVH.
She talked to us about 2 types of treatment Ibrutinib or a combo of
Rituximab
/Bendamustine. Waiting on results from the BM test. Trying to read up on them, what are some of the markers from his tests that I need to look for? I know she said he was unmutated IGVH.
brees
in
CLL Support
6 years ago
Rituximab
Hi- has anyone received the
Rituximab
drip and what type of side effects have people been experiencing? I have had a cough for the last 4 weeks with sore swollen glands?
Hi- has anyone received the
Rituximab
drip and what type of side effects have people been experiencing? I have had a cough for the last 4 weeks with sore swollen glands?
yasmine
in
LUPUS UK
6 years ago
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