Similarities/difference with Waldenstroms? ? - CLL Support

CLL Support

23,339 members40,047 posts

Similarities/difference with Waldenstroms? ?

0 Replies

I actually have Waldenstroms macroglobulinemia with associated fairly severe neuropathy. I read somewhere it's very similar to CLL with similar or same treatments?Fully diagnosed about 2 years ago, now apparently backdated to 2016 when the monoclonal peak was discovered. Treatments tried; Dexamethasone alone several months. (Some neuropathy recovery 👍, but with side effects). 2. Rituximab alone. Effective. Neuropathy much improved, but relapse after relatively short period (3 months). Now newly started on Rituximab+ Ibrutinib. I 'm not feeling any response yet with the neuropathy but my monoclonal spike is going down! 👍

Read more about...

Not what you're looking for?

You may also like...

GAZYVA® (Obinutuzumab) gains TGA approval for 1st line treatment of CLL in combination with Chlorambucil in Australia

GAZYVA, a new anti-CD20 monoclonal antibody, is now Therapeutic Goods Administration (TGA)...
AussieNeil profile image
Partner

Myelin Associated Glycoprotein (MAG) Antibody

Hello all, I have been on W&W for 8 years now, and my Dr. says that my CLL has been "indolent" in...

Rituximab hailed as a breakthrough for millions with Chronic Fatigue

A couple of days ago Sue (wroxham) mentioned yuppie flu in response to Ducksoup's post 'Fatigue,...
AussieNeil profile image
Partner

A Conversation with Dr Tam about Zanubrutinib: A Novel BTK Inhibitor

How does zanubrutinib differ from ibrutinib in pharmacokinetics and target occupancy? Zanubrutinib...
Jm954 profile image
Administrator

The failing effectiveness of COVID-19 monoclonal antibodies against BA.1, BA.4-5, BA.4.6, BA.2.75, BJ.1 and BQ.1.1

This post is in response to a couple of recent posts highlighting concerning changes in the...
AussieNeil profile image
Partner

Moderation team

See all
CLLerinOz profile image
CLLerinOzAdministrator
AussieNeil profile image
AussieNeilAdministrator
Newdawn profile image
NewdawnAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.