Similarities/difference with Waldenstroms? ? - CLL Support

CLL Support

22,532 members38,709 posts

Similarities/difference with Waldenstroms? ?

0 Replies

I actually have Waldenstroms macroglobulinemia with associated fairly severe neuropathy. I read somewhere it's very similar to CLL with similar or same treatments?Fully diagnosed about 2 years ago, now apparently backdated to 2016 when the monoclonal peak was discovered. Treatments tried; Dexamethasone alone several months. (Some neuropathy recovery 👍, but with side effects). 2. Rituximab alone. Effective. Neuropathy much improved, but relapse after relatively short period (3 months). Now newly started on Rituximab+ Ibrutinib. I 'm not feeling any response yet with the neuropathy but my monoclonal spike is going down! 👍

Read more about...

You may also like...

Clinical trial for waldenstrom

watch and wait to treatment based on blood tests not symptoms. The potential side effects of the 2...

Has anyone had a similar situation?

had these problems. I have been on Rituximab and Bendamustine treatment since the end of January...

Stomach Pain- similar feeling to acid

Hi all, I was diagnosed with CLL 3 months ago at 41. Had no real symptoms other than swollen lymph...

Words make a difference at diagnosis

telling people they have a good cancer is not very effective. We need only read the posts here to...

End of FLAIR. No more Ibrutinib. Great improvement!

2015, finished Rituximab end of March. Suffered side effect from Ibrutinib of severe muscle and...