Experiences with

Respiratory tract infections (RTIs)

After 4 or 5 covid vaccines with very minimal side effects , the most recent vaccine left me sick with fever and several lymph nodes swelling up within a few days. 2 nodes in armpit under the vaccine were extremely swollen and very painful. so much so, that I could not sleep on that side for weeks

Hi, just saying, I had the Covid booster on Monday ,on Tuesday I was extremely ill , Temperature of 38.6 ,tremors on and of all day , face swollen ,hearing totally gone , very cold but burning inside ,and nauseous ( but no rash ) all my Vasculitis symptoms, as well as the Covid booster affects ,violent

Hi. the doctor changed my inhaler to Alvesco 160, one dose twice a day. Does anyone of you have experience with this inhaler? How long does it take for the inhaler to start working? And I wonder if this is a sufficient dose if I have severe asthma? Thank you for all your replies. Regards

I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier

I had my latest Covid Vaccination yesterday and have had no side affects. I had the Moderna this time. Before with the Pfizer I was quite unwell the night after with severe pain for about six hours and rigors. Having had the same problems with my second Shingrix vaccination, I wasn't surprised to

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica, Fibromyalgia, Raynauds Syndrome, Osteoarthritis, Hypermobility, Essential Tremor, Vertigo, Trochanteric Bursitis, Haemangioma - spinal, Sciatica,

Hi. I am just looking for some reassurance. I am off to Vietnam and Cambodia soon having not really flown since Covid. I will be masked in the airports and on the planes and am having my covid booster tomorrow. I used to fly long haul without really thinking about it although looking back I often got

Tired Tavern is community server for people with CFS/ME and/or Long Covid (PACS). We currently have over 400+ members since starting last December. It's a community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie

Hi. Trying to check the latest on having COVID booster and do I need to stop my Benepali jab? My appointment is later tomorrow, Tuesday 4pm. I had my last Benepali on Saturday.Can't get hold of Rheumy nurse. I've seen they now recommend stopping mtx for 2 weeks after the booster but wondered about Benepali

I was recently diagnosed with CLL after a year plus of repeating colds and respiratory infections. My whites were in the high 20's sometimes almost doubling in a couple of weeks time. Now they are in the low to mid teens and I feel good. So, my question is has anyone used Ivermectin with any success?

Recent posts have asked questions about Covid booster eligibility for those taking prednisolone and being immuno-suppressed, potentially.I flippantly replied to PMRPro recently that I would accept my invitation via the NHS messaging service, book an appointment with my local pharmacist and see if they

just recently diagnosed PMR however having increasingly often jaw and ear ache my daughter insisted I go to Aand E but was told my obs ok go back to gp - any ideas or experiences of jaw pain please

I’ve now successfully tapered from initial 15mg Pred dose to 12.5mg over 5 weeks using DLady slow taper, then from 12.5 to 10mg, and just about to start next taper from 10mg to 9mg… but woke up yesterday with sore throat and aching lower back that persisted all day. Took Covid test just in case but that

Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8 days ago) that I'm experiencing fingers and toes tingling. Do you know if antibiotics can cause b12 depletion? I take daily 3000 mgs sublingually

Haven’t posted for a long time. Some of you may know that after reaching my goal of a 10k continuous run I contracted COVID in September 2022. Diagnosed with Long Covid in December 2022, really struggled to even walk 400 yards but saw an improvement last Summer and got to Week 7 all be it very slowly

Hi has any one had any flares after these vaccines. GP Practice slow so will have to chase. Had the flu one OK had to go to pharmacy as Gp had stopped doing them. Bit concerned about Covid one and RA flares.

Hello My wife is 48 and she went to hospital diagnosed with Listeria Meningitis at mid march, she was put into induced coma due to severe case of hydracaphelec and had EVD to discharge the excess CSF. She is a healthy adult and didn't have any immunity issues. This was for three weeks, since then she

good morning to all of you amazing members. I’m debating on getting my ninth Covid booster. Last fall I had a retinal bleed that occurred during a three week interval between eye examinations. There was quite the debate as to what caused the bleed I read an article from the NIH that discussed retinal

The Phase 1 successfully met its primary outcome measures, demonstrating that UB-312 was generally well-tolerated and induced anti-aggregated α-synuclein (αSyn) antibody responses in healthy volunteers and PD patients. Specifically, 12 of 13 PD patients who completed dosing developed anti-αSyn antibodies

I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of