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Respiratory syncytial virus (RSV) infections
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Finished Venetoclax, then Covid
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
My doctor prescribed Venetoclax after two rounds of chemo/immuno infusions to fight CLL. I felt great! Swimming half a mile, felt strong. Then bronchitis, pneumonia, and Covid. Was hospitalized and released in 6 days. But my home convalescence is not what I expected. Weakness, coughing, general severe
Healmenow
in
CLL Support
7 months ago
Colds
Have another really bad cough and cold (not COVID) - is this related to the immune system being reduced by pred ? I am on 6 mg after about 5 years
Have another really bad cough and cold (not COVID) - is this related to the immune system being reduced by pred ? I am on 6 mg after about 5 years
Daffodilia
in
PMRGCAuk
1 year ago
Help. Icu
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Hi all I'm new here but I'm also lost and don't know what to do. My mom currently needs a liver transplant but she has pneumonia and they had her sedated now she's awake but won't listen to orders.
Joccelyn
in
ICUsteps
3 months ago
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PMR & Cellulitis
Hi, some of you may remember that I posted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left leg
Hi, some of you may remember that I posted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left leg
GreatGranny4
in
PMRGCAuk
3 months ago
PMR & Cellulitis
Hi, some of you may remember that I Tposted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left
Hi, some of you may remember that I Tposted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left
GreatGranny4
in
PMRGCAuk
3 months ago
reoccurring thrush on dienogest
Hello everyone, just thought I’d ask for some advice as I’m struggling with reoccurring thrush at the moment and although that doesn’t sound awful, on top of all the other pain it’s the last thing I want. Little bit of back story, I was diagnosed with endo last year. Had a laparoscopy and ablation
Hello everyone, just thought I’d ask for some advice as I’m struggling with reoccurring thrush at the moment and although that doesn’t sound awful, on top of all the other pain it’s the last thing I want. Little bit of back story, I was diagnosed with endo last year. Had a laparoscopy and ablation
Livylou1112
in
Endometriosis UK
3 months ago
Stomach pain common with IBS?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Is stomach pain common with IBS?If so, where do you feel the pain? I feel pain right in the center pit of my stomach... sometimes gnawing sensation, sometimes a cramping sensation Do you feel it there in the center pit of your stomach too?
Catsandsunsets
in
IBS Network
3 months ago
Famotidine
I have been on 20mg of Famotidine for about a year, over the past 6 months while taking Famotidine I seem to have developed heartburn has any one else suffered with heartburn while on Famotidine? I was on Omeprazole previously for nearly 3 years without any problems but a blood test revealed low sodium
I have been on 20mg of Famotidine for about a year, over the past 6 months while taking Famotidine I seem to have developed heartburn has any one else suffered with heartburn while on Famotidine? I was on Omeprazole previously for nearly 3 years without any problems but a blood test revealed low sodium
Phed
in
PMRGCAuk
3 months ago
interstitial cystitis
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Mascot68
in
IBS Network
28 days ago
Next instalment. I thought I`d better do this now before I start working.
In fact, I don't remember ever seeing my dad drunk, except for one occasion when he had had, perhaps, an excess of drink. We were on a family holiday in Ireland, in a horse drawn caravan, which in itself was an experience, especially for the horse as we had no prior experience whatsoever of the care
In fact, I don't remember ever seeing my dad drunk, except for one occasion when he had had, perhaps, an excess of drink. We were on a family holiday in Ireland, in a horse drawn caravan, which in itself was an experience, especially for the horse as we had no prior experience whatsoever of the care
LissacFrance
in
Lung Conditions Community Forum
4 months ago
Travelling with interferon/pegasys
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Sunnyhunny
in
MPN Voice
4 months ago
RA and live flu vaccine
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
Julia31
in
NRAS
10 months ago
Streptococcal Bacterial Meningitis
Hi, everyone! I was admitted to the hospital on March 11 and diagnosed with Streptococcal Bacterial Meningitis and hospitalized for 17 days. Just released last Thursday. This was all brought on by an ear infection that I guess turned into meningitis. I had all the tests and scans and was told I was lucky
Hi, everyone! I was admitted to the hospital on March 11 and diagnosed with Streptococcal Bacterial Meningitis and hospitalized for 17 days. Just released last Thursday. This was all brought on by an ear infection that I guess turned into meningitis. I had all the tests and scans and was told I was lucky
Fjreed23
in
Meningitis Now
4 months ago
Interferon and the liver
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
dbus1417
in
MPN Voice
4 months ago
Flu and lupus flare
Hi everyone hope this finds you as well as can be expected, Has anyone had the Flu and had an odd flare when you get pains under rib cage but can take deep breath okay but the at random chest goes tight and feel lightheaded and have to rest on bed? Blood pressure seems normal. this has been going on
Hi everyone hope this finds you as well as can be expected, Has anyone had the Flu and had an odd flare when you get pains under rib cage but can take deep breath okay but the at random chest goes tight and feel lightheaded and have to rest on bed? Blood pressure seems normal. this has been going on
Geeforce99
in
LUPUS UK
10 months ago
Finger nails and raynauds
Hi ..I have raynauds and limited schleroderma and was wondering if anyone has the problem of there finger nails being discoloured and lifting off the nail bed ..I have tried lots of treatments but nothing seems to work and am now worried that I may lose some nails altogether!
Hi ..I have raynauds and limited schleroderma and was wondering if anyone has the problem of there finger nails being discoloured and lifting off the nail bed ..I have tried lots of treatments but nothing seems to work and am now worried that I may lose some nails altogether!
Tmontana
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
clavicle/collar bone swelling - YouTube Vid
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
hi there, A few of us have been talking about swelling in the pits of the collar bone. Instagram must’ve been listening 👂🏼 as this expert popped up in my feed. apparently this area is called the terminus, left and right so different jobs. I’ve watched this YouTube and immediately had gunk running
Regenallotment
in
Thyroid UK
4 months ago
benign paroxysmal positional vertigo
I suffer with this occasionally. I take methotrexate and hydroxychloroquine. Is this a drug side effect and does anyone else suffer? Thanks.
I suffer with this occasionally. I take methotrexate and hydroxychloroquine. Is this a drug side effect and does anyone else suffer? Thanks.
Pognose123
in
NRAS
4 months ago
Positive update and jopefully helpful advice/suggestions..💗
Hey guys,I haven't been on here a while, but I've been busy trying new ways to manage and get better (and also had bad anxiety for a while which is the main reason I wasn't here😕) and I wanted to share in hopes that it could help someone else. So last year a had trouble walking, looking at people when
Hey guys,I haven't been on here a while, but I've been busy trying new ways to manage and get better (and also had bad anxiety for a while which is the main reason I wasn't here😕) and I wanted to share in hopes that it could help someone else. So last year a had trouble walking, looking at people when
Turquoisesummer
in
Fibromyalgia Action UK
1 year ago
How can I help my intubated father in ICU?
I am desperately frightened as my father is fighting for his life, he has septic shock due to a liver abscess which has resulted in complications to his kidneys, brain and liver. Yesterday I saw him and he was so sleepy he could barely open his eyes and speak, although he was able to tell me he was in
I am desperately frightened as my father is fighting for his life, he has septic shock due to a liver abscess which has resulted in complications to his kidneys, brain and liver. Yesterday I saw him and he was so sleepy he could barely open his eyes and speak, although he was able to tell me he was in
Pluto8
in
ICUsteps
4 months ago
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