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Respiratory syncytial virus (RSV) infections
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Rituximab
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
Welshwomanprestatyn
in
NRAS
8 months ago
anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
4 months ago
Flare up after ear infection
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
Bue2
in
Fibromyalgia Action UK
9 months ago
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unintended weight loss
hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because my cortisol levels are stubbornly low ( 58 -80) I have now got a very itchy raised skin problem which my doctor cannot diagnose.I also had Covid in October. So, my question in has anyone had weight loss , 5 pounds since
hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because my cortisol levels are stubbornly low ( 58 -80) I have now got a very itchy raised skin problem which my doctor cannot diagnose.I also had Covid in October. So, my question in has anyone had weight loss , 5 pounds since
Crochetgardener
in
PMRGCAuk
8 months ago
Advice re covid jab
I had Covid in early September. Not sure when to go for booster. I think I should wait for a few months. Any thoughts ?
I had Covid in early September. Not sure when to go for booster. I think I should wait for a few months. Any thoughts ?
Ana-16
in
PMRGCAuk
8 months ago
Taste loss
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
Rich806
in
Acoustic Neuroma Support
9 months ago
Baby Athletes Foot
My baby is 5 months old and I think he may have athletes foot if that’s at all possible! I think it’s probably from where he has had sweaty feet and then worn baby gros overnight with covered feet, we keep his feet bare during the day when at home to let them air out and dry. Is there anything over the
My baby is 5 months old and I think he may have athletes foot if that’s at all possible! I think it’s probably from where he has had sweaty feet and then worn baby gros overnight with covered feet, we keep his feet bare during the day when at home to let them air out and dry. Is there anything over the
PrincessGurn1984
in
Pregnancy and Parenting Support
8 months ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
4 months ago
Covid vaccine during tapering down PMR?
Thanks so much for the valuable responses, which I am studying ongoing,to my previous posts. I was dubious about the Covid vaccine possibly bringing back my PMR symptoms. Having read the posts here I am largely reassured, but I would like to check for my own circumstances. I have never had a problem
Thanks so much for the valuable responses, which I am studying ongoing,to my previous posts. I was dubious about the Covid vaccine possibly bringing back my PMR symptoms. Having read the posts here I am largely reassured, but I would like to check for my own circumstances. I have never had a problem
kangaroojohn
in
PMRGCAuk
8 months ago
Rising PSA last Lutetium 177 December 2022
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
Janhpr
in
Advanced Prostate Cancer
8 months ago
Post meningitis
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Lovehope2
in
Meningitis Now
8 months ago
Should I suspend my methotrexate and hydroxychloroquine until my covid is over?
I have RA and take methotrexate and hydroxychloroquine. Today I tested positive for Covid. Should I stop taking them until I'm better?
I have RA and take methotrexate and hydroxychloroquine. Today I tested positive for Covid. Should I stop taking them until I'm better?
Hellerup
in
NRAS
8 months ago
Lunch chat about vaccines
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
I've just been out to lunch with a u3a group, all getting on in years and many with various medical complaints. Some at my end of the table were saying that they are [i]not[/i] having any more Covid jabs as 'they had had enough' now and had declined the appointments that they had been offered. I tried
oldtimer2
in
NRAS
8 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
8 months ago
Lichenoid Dermatitis
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
Skywriter0
in
MY SKIN
10 months ago
GCA relief of symptoms?
Hi, help please.I have had a GCA flare, headaches, sore temples, total fatigue, dizzy spells and jaw pain. Rheumatologist appt 20 Sept 2023 increased pred to 40mgs a day for 3 weeks, then reducing. 16 days later though, I still have the symptoms. Does that sound ok? Previously I had been on 3mgs of
Hi, help please.I have had a GCA flare, headaches, sore temples, total fatigue, dizzy spells and jaw pain. Rheumatologist appt 20 Sept 2023 increased pred to 40mgs a day for 3 weeks, then reducing. 16 days later though, I still have the symptoms. Does that sound ok? Previously I had been on 3mgs of
Chespoll
in
PMRGCAuk
10 months ago
Preventing COVID-19 & Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months Tuesday, December 5, 2023 12:30 PM ET – 2 PM ET / 9:30 AM PT – 11 AM PT / 10:30 AM MT – 12 PM MT / 11:30 AM CT – 1 PM CT https://cllsociety.org/preventing-covid-19-and-other-respiratory-infections-in-those-with-cll-sll-during-peak-winter-months
lankisterguy
Volunteer
in
CLL Support
8 months ago
Covid and platelets
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
EdwinaJ
in
MPN Voice
8 months ago
well another drug fail.
Rituximab after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks. Given a steroid injection and will see me in 2 months
Rituximab after 3 months is a failure. I have been so much worse the last 6 weeks unable to walk or use my hands peripheral neuropathy off the scale . Managed to see another rheumatologist at the clinic . 3 infections and bed bound these last 6 weeks. Given a steroid injection and will see me in 2 months
J1707-
in
NRAS
8 months ago
New to PMR
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Hi everyone -- I am new here and have had PMR for about five months now. I can't help wondering if the last Covid vaccine I received may have possibly triggered it, since my symptoms started less than a month after that. (I had already had five previous Covid vaccines.) I was also going through a period
Charlotteab
in
PMRGCAuk
8 months ago
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