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PKD with liver involvement
hi, anyone with PKD community had a liver transplant after a kidney transplant. My liver has grown uncomfortably large and transplant is an option. Jo
hi, anyone with PKD community had a liver transplant after a kidney transplant. My liver has grown uncomfortably large and transplant is an option. Jo
PostivelyJo
in
Kidney Transplant
1 year ago
Diet and Liver Disease
Good morning, As there have been a few posts about diet in the last few days, members might find it useful to take a look at this page on our website: https://britishlivertrust.org.uk/information-and-support/living-with-a-liver-condition/diet-and-liver-disease/ If you have liver disease eating a good
Good morning, As there have been a few posts about diet in the last few days, members might find it useful to take a look at this page on our website: https://britishlivertrust.org.uk/information-and-support/living-with-a-liver-condition/diet-and-liver-disease/ If you have liver disease eating a good
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Husband’s first Docetaxel, day 4 and struggling
Hi all, Is there a posting or other source listing details and ways to victoriously endure 6 rounds of Docetaxel? My husband is 70 stage 4 . He is on immune suppressants due to a prior liver transplant. He was given Neulasta for the day after Docetaxel(D). His biggest struggle right now is sleeplessness
Hi all, Is there a posting or other source listing details and ways to victoriously endure 6 rounds of Docetaxel? My husband is 70 stage 4 . He is on immune suppressants due to a prior liver transplant. He was given Neulasta for the day after Docetaxel(D). His biggest struggle right now is sleeplessness
Newdiag-NC
in
Advanced Prostate Cancer
1 year ago
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liver transplant
I got my own last Thursday, waited two and half years and had one faulty call got to the hospital and it wasn’t as we wanted . But it’s been in since Thursday and all good so far 👍🤞. Keeping fingers crossed that it keeps going well, I would like to thank everyone that sent me best wishes. Stay safe
I got my own last Thursday, waited two and half years and had one faulty call got to the hospital and it wasn’t as we wanted . But it’s been in since Thursday and all good so far 👍🤞. Keeping fingers crossed that it keeps going well, I would like to thank everyone that sent me best wishes. Stay safe
Dogbot
in
British Liver Trust
1 year ago
Liver issues and leg pain?
Fairly random question but while I wait for a drs appointment I thought I'd ask....I am awaiting a liver transplant for PSC and I'm getting those dulcit aches in my side that usually indicate imminent cholangitis, but! Whenever this happens I get really bad sharp aching down the outside of my upper leg
Fairly random question but while I wait for a drs appointment I thought I'd ask....I am awaiting a liver transplant for PSC and I'm getting those dulcit aches in my side that usually indicate imminent cholangitis, but! Whenever this happens I get really bad sharp aching down the outside of my upper leg
Katt12340
in
British Liver Trust
1 year ago
Information.
Hi everyone.A few days ago I went for a normal blood test and it picked up Elevated liver enzymes and the receptionist phoned to tell me an appoint with my Dr for 2 weeks time and I'm really freaking out because I used DR Google because I panicked and keep thinking the DR has got bad news to tell me
Hi everyone.A few days ago I went for a normal blood test and it picked up Elevated liver enzymes and the receptionist phoned to tell me an appoint with my Dr for 2 weeks time and I'm really freaking out because I used DR Google because I panicked and keep thinking the DR has got bad news to tell me
ToastyToast
in
British Liver Trust
1 year ago
Supplements for arthritis and rivaoxaban
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Janau
in
Atrial Fibrillation Support
1 year ago
1300"+ steps per day 9 weeks pregnant
i've been finding that i've been unintentionally racking up almost 15000 steps a day because of running around after family, moving house and other stuff. I was put on modified bed rest at the start of my pregnancy due to bleeding and severe cramping. And i get quote a lot of lower torso /back ache at
i've been finding that i've been unintentionally racking up almost 15000 steps a day because of running around after family, moving house and other stuff. I was put on modified bed rest at the start of my pregnancy due to bleeding and severe cramping. And i get quote a lot of lower torso /back ache at
pinky30
in
Fertility Network UK - Pregnancy Support
2 years ago
Ambroxol: Experimental treatment for PD
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Does anyone know anything about the clinical trials going on in the UK with Ambroxol as a treatment for PD (a repurposed cough medicine)? The preliminary results look good. I understand that results have been released but I can't find It. Please reply if you have info. Thanks
Badmouth
in
Cure Parkinson's
1 year ago
thank you
I would like to thank all of you for your comments and replying to my post, it is such a reassurance to chat with others and their experiences , I had only 1 tumour measuring 3 and a half centimetres , which since the 1 TACE treatment has shrunk on each occasion I have had the 2 scans , I also went
I would like to thank all of you for your comments and replying to my post, it is such a reassurance to chat with others and their experiences , I had only 1 tumour measuring 3 and a half centimetres , which since the 1 TACE treatment has shrunk on each occasion I have had the 2 scans , I also went
Willow1950
in
British Liver Trust
1 year ago
New test reliable?
Hello everyone. I hope your Saturday is going well. I spoke with my GP this morning to receive blood test results. She said my liver tests are good, my ALT only 50. She explained they did a fairly new test too, called fibrosis 4, known as fib 4 and that assessed scarring of the liver. It was really low
Hello everyone. I hope your Saturday is going well. I spoke with my GP this morning to receive blood test results. She said my liver tests are good, my ALT only 50. She explained they did a fairly new test too, called fibrosis 4, known as fib 4 and that assessed scarring of the liver. It was really low
LtAngua52
in
British Liver Trust
1 year ago
Abnormal liver results
Hi I’ve had raised ALT, AST and GGT for circa 15 years now. My ALT has been up and down between 55 and 90, the AST around the mid 40s and the GGT between 90 and 200. I am 56, overweight, but with a muscly physique due to several years of resistant training. I have drank alcohol all my life and feel
Hi I’ve had raised ALT, AST and GGT for circa 15 years now. My ALT has been up and down between 55 and 90, the AST around the mid 40s and the GGT between 90 and 200. I am 56, overweight, but with a muscly physique due to several years of resistant training. I have drank alcohol all my life and feel
Clown12
in
British Liver Trust
1 year ago
liver levels
hi everybody I was just wondering if anyone else has high levels other then the alp? I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT 248 I’ve been on urso for 1 year now and theses level r worring me, don’t no if anyone else has had these kind of numbers many thanks Lena
hi everybody I was just wondering if anyone else has high levels other then the alp? I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT 248 I’ve been on urso for 1 year now and theses level r worring me, don’t no if anyone else has had these kind of numbers many thanks Lena
Lena2011
in
PBC Foundation
1 year ago
Gamma GT
I was previously a heavy binge drinker, i had liver function tests which were ok but slightly raised GGT. I stopped drinking completely a couple of months ago and had the blood test again, it has risen rather than going down. i am otherwise very fit, healthy BMI and a good diet. Does anyone know why
I was previously a heavy binge drinker, i had liver function tests which were ok but slightly raised GGT. I stopped drinking completely a couple of months ago and had the blood test again, it has risen rather than going down. i am otherwise very fit, healthy BMI and a good diet. Does anyone know why
annebyrne21
in
British Liver Trust
1 year ago
TIPS Procedure
I had a TIPS procedure done three weeks ago after ruptured varacies during a banding session. I was just wondering what others experience has been with TIPS. “Transjugular intrahepatic portosystemic shunt (TIPS) is a procedure that involves inserting a stent (tube) to connect the portal veins to adjacent
I had a TIPS procedure done three weeks ago after ruptured varacies during a banding session. I was just wondering what others experience has been with TIPS. “Transjugular intrahepatic portosystemic shunt (TIPS) is a procedure that involves inserting a stent (tube) to connect the portal veins to adjacent
BearWood2
in
British Liver Trust
1 year ago
Follow up Endoscopy for Cirrhosis
My husband has his first follow up endoscopy next week after having Decompensated Cirrhosis almost 2 years ago (was meant to be sooner but had to chase up). He had 2 varices which they put bands on initially (one burst after food poisoning, they were surprised they didn’t find more). He is really anxious
My husband has his first follow up endoscopy next week after having Decompensated Cirrhosis almost 2 years ago (was meant to be sooner but had to chase up). He had 2 varices which they put bands on initially (one burst after food poisoning, they were surprised they didn’t find more). He is really anxious
Squirrel77
in
British Liver Trust
1 year ago
Update on my Cirrhosis
Good morning all. Just a quick update on my cirrhosis diagnosis caused by alcohol, smoking and obesity. I'm 18 months Alcohol and Cigarettes free now and lost nearly 3 stone through stopping drinking alcohol, smoking, eating healthy and getting plenty of exercise. I feel a lot healthier now than I have
Good morning all. Just a quick update on my cirrhosis diagnosis caused by alcohol, smoking and obesity. I'm 18 months Alcohol and Cigarettes free now and lost nearly 3 stone through stopping drinking alcohol, smoking, eating healthy and getting plenty of exercise. I feel a lot healthier now than I have
Nip1
in
British Liver Trust
1 year ago
What is the Kpa score on a Fibroscan that indicates cirrhosis?
I recently had a Fibroscan and had a score of 9 which has freaked me out a bit, so I’ve tried to cut back on drinking and eat healthily. I’ve seen my GP for a follow up and he didn’t seem too concerned, I thought I was close to cirrhosis so am pretty scared, as I thought the Kpa for cirrhosis was 10
I recently had a Fibroscan and had a score of 9 which has freaked me out a bit, so I’ve tried to cut back on drinking and eat healthily. I’ve seen my GP for a follow up and he didn’t seem too concerned, I thought I was close to cirrhosis so am pretty scared, as I thought the Kpa for cirrhosis was 10
Hogeyzz
in
British Liver Trust
1 year ago
liver transplant , I have cirrhosis and liver cancer but when I spoke to the specialist he said I would not be eligible for a transplant, I
I was told by a Harley street Consultant, my best way of a cure was a liver transplant, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
I was told by a Harley street Consultant, my best way of a cure was a liver transplant, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
Willow1950
in
British Liver Trust
1 year ago
Mental health and cirrhosis
Me and my partner have together for a year now. Started as friends, knew from the word go,he had cirrhosis. But it didn't change anything, still wanted to form a relationship with him. He had a call from a liver nurse today. She was very blunt and matter of fact. She triggered him again. She talked about
Me and my partner have together for a year now. Started as friends, knew from the word go,he had cirrhosis. But it didn't change anything, still wanted to form a relationship with him. He had a call from a liver nurse today. She was very blunt and matter of fact. She triggered him again. She talked about
lifebegins53
in
British Liver Trust
1 year ago
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