I got my own last Thursday, waited two and half years and had one faulty call got to the hospital and it wasnโt as we wanted . But itโs been in since Thursday and all good so far ๐๐ค. Keeping fingers crossed that it keeps going well, I would like to thank everyone that sent me best wishes.
Stay safe All
Dogbot ๐ถ๐
Written by
Dogbot
To view profiles and participate in discussions please or .
Hi Flowergirl I would really like to talk, I am out of ICU in 3 days on solid food two meals but then was really sick ๐คข , so back on clear fluids for the day now on soup yesterday. Now I expected more pain but itโs really not that bad you do have pain but manageable, is that about what happened to you??
I was in ICU for three days before going to my room afterwards (QE Birmingham). I don't recall eating in those three days. The first day was very groggy. I only remember them asking to undo the 'belt around my stomach' as it was too tight. I now realised it was the new liver and the swelling did go down. The second and third days were fine - I think I must have been pressing the morphine button all of the time. because there was no pain at all! I do remember telling the staff I wanted to go for a walk on day three so holding onto two nurses, I walked around ICU. I was sick afterwards only in the fact that I had drunk a glass of water just before and I could feel the water moving around in my stomach - like being on a boat.
Once leaving ICE and in my room on the ward, I ate for England. I had shrunk down to virtually nothing - a dried small prune the size of a child. I was told I would have the TP by the end of 2019. Covid came along and I had the TP in May 20 and made it by the nick of time. I remember my surgeon telling that transplants are amazing as once the operation is finished, just watching the difference so quickly is incredible. Guess that's why they love their jobs.
Recovery time is different for everyone. The morphine really helped with the pain. They like to start reducing the dosage - from memory - when I left ICU. It was a slow process so you don't feel the pain depending on your circumstances. I eventually weaned myself off it as it was making me sleepy and lethargic when I was trying to go for my daily walks and I didn't want to become dependent on it as I recall during an early clinic visit, the surgeon told me that sometimes, they have terrible problems trying to get people off it because they have become addicted to it.
There is no right or wrong way but to listen to your body and follow the experts advice.
I wish you a speedy recovery. FYI: there are two FaceBook groups that are absolutely brilliant. One is the Liver Transplant Support Group QE Birmingham and the other is Liver Transplant Support UK if your not on one of these. There are people who are waiting or had their TPs, family, friends etc, all posting thoughts, questions etc. And of course, this great group too.
Thanks Flowergirl , yes on food today . Must say I do get pain from eating but itโs not that serious and can get buy. Yes Iโve had some wonderful people on this site wishing me luck itโs marvellous to see the good in people around the world. Hope everything goes great for you and everyone else.
Thank you so very much. We are already planning a holiday for next year with two of our friends only to Spain but we have so much fun,then of course try for travel insurance for the USA to see our son and wife and grandson.
Well you enjoy a well deserved holiday with your Friends and how lovely it will be for your son and his family to see and you too to see them specially your grandson. Wishing all the luck in the world. My Husband is being sent to Leeds for tests to see if he is suitable for a new liver as heโs been told if he doesnโt get one heโs looking at five years max, Heโs been through the ringer these last couple years with one thing after another. Heโs never smoked or drunk alcohol, but it lifts your spirits when you hear someone as got their life back it so precious ๐ซถ
Thank you so very much for the lovely reply, I sincerely hope that your husband gets his liver. My wife and I are sending you all our thoughts and wishes. Hang in there ๐๐๐.
Congratulations, here's to an uncomplicated recovery. now take it easy and don't rush your recovery, was generally takes a year to recover from transplant surgery.Hilary
Great news remember take your time to fully recover if your going to Spain on holiday keep out of the sun use plenty of factor 50 your skin will be sensitive to the sun with the anti rejection drugs
A bit late in the day but I wanted to send you all good wishes. I know you had to be so patient and youโve gone through so much to get to where you are. So glad your day came and now you can recover in the NHSs good hands. Try and relax let nature do itโs healing. I had mine 12 years ago, so grateful.
Take it very slow post transplant. Your body doesn't get well just because you have a new liver. Your body has been sick a long time. Give everything in your body time to heal and catch up to your new miracle liver. I'm 12 1/2 years post transplant and going strong.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.