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Never ending circle
Morning everyone, just looking for advice and to vent a little. I have posted a few times about my journey but finally thought I had got some answers. Quick recap- after years of being fobbed off by my GP, I eventually went private to see a rheumatologist who actually listened. Initially he diagnosed
Morning everyone, just looking for advice and to vent a little. I have posted a few times about my journey but finally thought I had got some answers. Quick recap- after years of being fobbed off by my GP, I eventually went private to see a rheumatologist who actually listened. Initially he diagnosed
Mctd
in
LUPUS UK
3 months ago
Elevated ca125 over time
hello, I have 4 times of blood tests and the results showed ca125 values of 71, 45, 95, and 140. I have also have two myomas with the size of 4.7 x 4.9 cm. I have done hydrosalpinx surgery to cut apart of ovarian tube. Pls give me your advices. I’m worried about ovarian cancer. Thank you.
hello, I have 4 times of blood tests and the results showed ca125 values of 71, 45, 95, and 140. I have also have two myomas with the size of 4.7 x 4.9 cm. I have done hydrosalpinx surgery to cut apart of ovarian tube. Pls give me your advices. I’m worried about ovarian cancer. Thank you.
ntson
in
SHARE Ovarian Cancer Support
3 months ago
Input on Timing of Initial ADT after RP/SRT Failed
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
dans_journey
in
Advanced Prostate Cancer
3 months ago
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Seen my GP who says MART therapy is now used & suggested Fobumix inhaler Any thoughts?
Hi I posted last week after my Asthma review with a health care assistant at my GP surgery who basically tried to tell me to use my Fostair as both a preventer & reliever & tried to remove my Salbutamol Inhaler. I have since spoken to a GP who says the nurse is correct & they are using MART Therapy
Hi I posted last week after my Asthma review with a health care assistant at my GP surgery who basically tried to tell me to use my Fostair as both a preventer & reliever & tried to remove my Salbutamol Inhaler. I have since spoken to a GP who says the nurse is correct & they are using MART Therapy
Otto11
in
Lung Conditions Community Forum
3 months ago
No Cominarty Vaccine!!
I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out a heart arrhythmia that seemed to have been triggered by it. My cardiologist said he'd seen a really significant number of new patients, all
I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out a heart arrhythmia that seemed to have been triggered by it. My cardiologist said he'd seen a really significant number of new patients, all
Kendrew
in
PMRGCAuk
3 months ago
reaction to Spikevax XBB 1.5Moderna
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Just want to share that I had the above covid booster on Thursday (2nd May) and it appears to have triggered a lupus flare (in my case, rash, aching joints, splitting headache, extreme fatigue). I normally take prednisolone when I have a flare but feel it would be counter productive to what the vaccination
Larks0ng
in
LUPUS UK
3 months ago
double standards
why does the medical industry refuse to acknowledge a double standard exists in the treatment of men versus women when it comes to intimate care? The obvious reason is the imbalance in gender representation on the personal care level. The solution that I have experienced is to to lead the unsuspecting
why does the medical industry refuse to acknowledge a double standard exists in the treatment of men versus women when it comes to intimate care? The obvious reason is the imbalance in gender representation on the personal care level. The solution that I have experienced is to to lead the unsuspecting
Lumpy1968
in
Sensitive Issues for Men
3 months ago
Patient Access app change
I went online yesterday to order my repeat prescription and found that the Patient Access app now wants me to do 2 step verification by installing another app. I don’t want to do this as I have several devices (iPads and iPod) and I don’t use (nor want to) 2 step verification on those. I haven’t got
I went online yesterday to order my repeat prescription and found that the Patient Access app now wants me to do 2 step verification by installing another app. I don’t want to do this as I have several devices (iPads and iPod) and I don’t use (nor want to) 2 step verification on those. I haven’t got
Cruise1
in
British Heart Foundation
3 months ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
3 months ago
daft question, but I'm puzzled!
while I am waiting for my next CT scan next Thursday, and the latest batch of blood test results, can anybody else who has the same 'badly controlled asthma with bronchiectasis on top' tell me if painful and weak thighs and upper arms are part of the symptom bundle, or am I on my own! I haven't changed
while I am waiting for my next CT scan next Thursday, and the latest batch of blood test results, can anybody else who has the same 'badly controlled asthma with bronchiectasis on top' tell me if painful and weak thighs and upper arms are part of the symptom bundle, or am I on my own! I haven't changed
Tiggertheterrier
in
Lung Conditions Community Forum
3 months ago
blue badge
can anybody here give me any advice please. Applied for the renewal of my blue badge sent off all the relevant information it came back they need more information. As I am not techno savvy my son emailed and scanned relevant information of consultants trips physio et cetera. Again. have no received
can anybody here give me any advice please. Applied for the renewal of my blue badge sent off all the relevant information it came back they need more information. As I am not techno savvy my son emailed and scanned relevant information of consultants trips physio et cetera. Again. have no received
orange33
in
NRAS
3 months ago
Salvage options?
Hello again, I have a few more questions, to help my husband decide between surgery and brachyboost. For context, he is localized Gleason 9. (1) Is the course of salvage radiation after RP typically the same as it would have been if the initial treatment had been radiation therapy? Or would it require
Hello again, I have a few more questions, to help my husband decide between surgery and brachyboost. For context, he is localized Gleason 9. (1) Is the course of salvage radiation after RP typically the same as it would have been if the initial treatment had been radiation therapy? Or would it require
EvFC
in
Advanced Prostate Cancer
3 months ago
Advice - Surgery or Radiation?
Hi all, apologies for the long post, hoping to give as much info as possible. Background: Diagnosis: Unfavorable int-risk prostate cancer (T2a, Gleason 4+3, PSA 5.2) (I spoke to a surgeon today who said it was T3a so now I am confused) Age: 59 PSA 5.2 (H) 01/31/2024 PSA 4.4 (H) 11/06/2023 PSA
Hi all, apologies for the long post, hoping to give as much info as possible. Background: Diagnosis: Unfavorable int-risk prostate cancer (T2a, Gleason 4+3, PSA 5.2) (I spoke to a surgeon today who said it was T3a so now I am confused) Age: 59 PSA 5.2 (H) 01/31/2024 PSA 4.4 (H) 11/06/2023 PSA
Blue1320
in
Prostate Cancer Network
3 months ago
Paul Tube implant for Glaucoma
Hello, I am new here and wonder if anyone else has experience of having this surgery? After many years of using various eye drops and also an unsuccessful SLT on my right eye, my consultant advised me to have this surgery in an attempt to lower my IOP thus preventing even further loss of vision. He chose
Hello, I am new here and wonder if anyone else has experience of having this surgery? After many years of using various eye drops and also an unsuccessful SLT on my right eye, my consultant advised me to have this surgery in an attempt to lower my IOP thus preventing even further loss of vision. He chose
Rainyday2024
in
Glaucoma UK
3 months ago
How to deal with GP who is not keen on tests
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
thyroidsymtoms
in
Thyroid UK
3 months ago
Mitral Valve re-repair
In November 2023 I found out I had endocarditis. As a result I had surgery to repair my mitral valve. At the time it was successful and I was recovering well. However, when I had my follow up echo, around 3 months later, I found out the valve was leaking again and I am now waiting for surgery once I
In November 2023 I found out I had endocarditis. As a result I had surgery to repair my mitral valve. At the time it was successful and I was recovering well. However, when I had my follow up echo, around 3 months later, I found out the valve was leaking again and I am now waiting for surgery once I
sshady
in
British Heart Foundation
3 months ago
Cyanocobalamin
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Syuri
in
Pernicious Anaemia Society
3 months ago
Blood
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
ChillyAsh34
in
MPN Voice
3 months ago
Not feeling to well.. BP abnormal 🤦
Hi everyone ❤️ Can I ask for a bit of advice 🙏 Backstory... Started to feel ill on Sunday 28th with a cough and aches and pains with a slight bad headache, thought ho it's probably a head cold /flu. Started with paracetamol for symptoms all was OK, by Wednesday my aches and pains were easing my cough
Hi everyone ❤️ Can I ask for a bit of advice 🙏 Backstory... Started to feel ill on Sunday 28th with a cough and aches and pains with a slight bad headache, thought ho it's probably a head cold /flu. Started with paracetamol for symptoms all was OK, by Wednesday my aches and pains were easing my cough
birkie
in
Thyroid UK
3 months ago
Inflammatory Arthritis with Levothyroxine
Has anyone else had severe pains in their tendons and muscles due to Levothyroxine? 18 years ago I had an ESR blood test at my G.P.'s surgery as I had severe pains on Levothyroxine, this proved I had Inflammatory Arthritis, so I bought Armour Thyroid from the US as the only alternative at that time.
Has anyone else had severe pains in their tendons and muscles due to Levothyroxine? 18 years ago I had an ESR blood test at my G.P.'s surgery as I had severe pains on Levothyroxine, this proved I had Inflammatory Arthritis, so I bought Armour Thyroid from the US as the only alternative at that time.
Denise500
in
Thyroid UK
3 months ago
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