How to deal with GP who is not keen on tests - Thyroid UK

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How to deal with GP who is not keen on tests

thyroidsymtoms profile image
10 Replies

I am having issues where my GP would rather no give advise or tests.

I have to remember and follow up on test to be done and even then he can deny the tests requested.

I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with another person i was told these are symptoms of hypothyroidism. Again apointment happen in 1 month are over before we start . Mostly it an eye wash and it like me seeking to dig information out of doctor who is not keen diagnosis and enviornment as if i am troublesome patients.

Doctor can make statement there any people in the surgery and we are very busy. Surgery will not entertain an request on email when few months back i was told by surgery to send email for any information .

My GP was not keen on blood test but when I result showed i had b12 he claimed i am vegetarian that is the reason for it. Though i asked for reffreal to gastro which he was not keen but. after 8 month when gastro person spoke to me first thing i was told was b12 deficiency mean my upper gut has issues and i should have biposy . I have had gut issue for ages but my doctor used to say it because of anxiety . Though now under NHS i am told biposy will happen in 13 months time.

I used to feel small insects are crawling all over my body and doctor would that anxiety but after b12 and levothroxine those sysmptoms but i remeber i used to be so embarrased feeling possibly my bed is not clean and would keep changing bed sheets

I dont trust the GP and GP system which has put me in this state.Not sure if other are same boat.

Regards

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thyroidsymtoms
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10 Replies
SlowDragon profile image
SlowDragonAdministrator

welcome to the forum

How much levothyroxine are you taking, which brand

How long at this dose

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

As vegetarian it’s your responsibility to self supplement and take B12 daily

And also essential to test full iron panel including ferritin

Likely to have low iron/ferritin on vegetarian diet, especially when on levothyroxine

Forestgarden profile image
Forestgarden

Hi there, so sorry you're suffering. Unfortunately many of us on here have had to battle our GPs. If you can post your results there are many knowledgeable people on here who can help you move forward.

SlowDragon profile image
SlowDragonAdministrator

As vegetarian or vegan, likely need to separate daily B12 supplements as well as daily vitamin B complex

academic.oup.com/nutritionr...

The present review of the literature regarding B12 status among vegetarians shows that the rates of B12 depletion and deficiency are high. It is, therefore, recommended that health professionals alert vegetarians about the risk of developing subnormal B12 status. Vegetarians should also take preventive measures to ensure adequate intake of this vitamin, including the regular intake of B12 supplements to prevent deficiency.

Considering the low absorption rate of B12 from supplements, a dose of at least 250 μg should be ingested for the best results.3

thyroidsymtoms profile image
thyroidsymtoms

Many thanks for your responses. my mind has gotten better now

Apologies for not responding soon enough I was in bad shape so was not able to read the messages .

1) Please find the result attached from Aug 2023 , nov-dec 2023 and May 2024.

2) I am on levothrozine 50 mg teva brand as of now. I did not know the brand also effect i think brand keep changing every time I order.

3) For B12 , I was given Hydroxocobalamin 1mg/1ml solution for injection ampoules for one week

4) I have in last week been diagnosed with Vitamin D deficiency as of today (24th May) . My GP has told me he will start me on

Colecalciferol 50,000unit capsules To take One capsule once weekly for 6 weeks 6 capsule

I was told I should ask for vitamin D3 for the body ache though my GP claims Colecalciferol is vitamin D3

I have also been referred to biopsy by the gastro team as she felt i might have a b12 absorption issue in the upper gut. I stil waiting for an appointment.( though my GP felt their is no need for it but I insisted on gastro referral)

I am not a vegetarian. My gp keeps telling me stuff, he also claims my vitamin d is also low because I go out in sun enough.

I look forward to your suggestions.

18 Aug 2023 when i was diagnosed with hypothroidism
thyroidsymtoms profile image
thyroidsymtoms

As i cannot post all my test result please find Nov -Dec 2023 test when I was taking levothroxine for 3 months

Nov-Dec 2023 results
thyroidsymtoms profile image
thyroidsymtoms in reply tothyroidsymtoms

My result of test for May 2024. My doctore refuses the test I had asked for .

My GP has told me he will start me on

Colecalciferol 50,000unit capsules To take One capsule once weekly for 6 weeks 6 capsule

20 May 2024
TiggerMe profile image
TiggerMeAmbassador in reply tothyroidsymtoms

So the result in Nov 2023 shows you needed an increase in your Levo dose (did that happen?) as does your recent result

Can't really do anything about B12 if you are waiting for a referral but a loading dose of D3 is certainly needed and to aid absorption you need some magnesium...

healthline.com/nutrition/ma...

I tend to pick a complex

thyroidsymtoms profile image
thyroidsymtoms

Hmm my GP did not mention any thing about increasing the dose of levo. Can you please advise why you think Levo does need to be increased.

B12 was given in October. Do you think B12 does is needed again even though it is not in read.

I am already take multi vitamin with minerals which has magenisim,zinc ,iron , b12 and omega 3 . Plus I do eat almonds every day.

One doctor I spoke to told if you gut is not absorbing these vitamins take supplements would not help and it will best to diagnose the root cause issue in ur gut. He said it good that I am having biopsy.

TiggerMe profile image
TiggerMeAmbassador in reply tothyroidsymtoms

Your TSH at 3.81 is too high and 50mcg is a starter dose and unless you are petit unlikely to be the correct dose for you, B12 needs to be kept near top of range and yours is again very low.

Multi vits aren't much use as they contain things that interact badly and rarely contain enough of anything to do any good anyway, Dr actually on to something there and often sublingual B12 and Vit D are more effective

thyroidsymtoms profile image
thyroidsymtoms

The doctor I mentioned is not in UK who told about absorption is not in uk. I reached out to him as i felt i being taken for ride by my GP. For example today when i asked can this be absorption issue and i was told no by GP . As per GP vitamins D absorbed VIA skin out via liver eventhough i was told my lower intestine is were vitamin D is absorbed. I knew about did not call me GP mistake as he gets very irritated if speak about medicine by name instead of symptoms

My gp only gave vitamin d3 today which shows in red in test result. i doubt he looks at any other number which is not in red.

i am correct to say that you are suggesting that I ask for a GP for b12 medication (oral not injection ) and an increase in levothyroxine in mg upwards of 50 mg

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