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Experiences with
Prostate-specific antigen (PSA)
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Patches (I'm depending on you, son)
While my research has continued, my oncologist has nothing to give me within the SOC to keep the
PSA
in check. Now I've witnessed another unwelcome visitor: facial hair (it only took me 70 yrs to start shaving....) Joking aside however, that means the T is on the rise.
While my research has continued, my oncologist has nothing to give me within the SOC to keep the
PSA
in check. Now I've witnessed another unwelcome visitor: facial hair (it only took me 70 yrs to start shaving....) Joking aside however, that means the T is on the rise.
CrocodileShoes
in
Advanced Prostate Cancer
2 months ago
Prostate cancer but normal PSA?
A month after my diagnosis and prior to any treatment, I modified my diet and started supplements and dropped my
PSA
by 30% from 29 to 20 just with diet and nutrition. Yesterday, they did a follow-up 1-month blood panel and my
PSA
came back as 2.7!!!
A month after my diagnosis and prior to any treatment, I modified my diet and started supplements and dropped my
PSA
by 30% from 29 to 20 just with diet and nutrition. Yesterday, they did a follow-up 1-month blood panel and my
PSA
came back as 2.7!!!
Sagewiz
in
Advanced Prostate Cancer
7 months ago
Limbo period after BCR post RP and SRT and prior to PSA enough for PSMA PET?
Quick background: RP 2/02, Meyers'
PSA
suppression until 2016 when
PSA
jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable
PSA
until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5.
Quick background: RP 2/02, Meyers'
PSA
suppression until 2016 when
PSA
jumped from 17 to 28 in a month, 6 mos. adjuvant ADT3 before, during, after SRT, undetectable
PSA
until 5/30/23 at .1; .14 6/6; .12 7/11; .17 9/5.
bldn10
in
Advanced Prostate Cancer
8 months ago
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RT results look good
After a bout of sepsis from a directed biopsy, 5 weeks of RT and 3 months of Eligard, my tests show undetectable
PSA
.
After a bout of sepsis from a directed biopsy, 5 weeks of RT and 3 months of Eligard, my tests show undetectable
PSA
.
Eadgbe
in
Fight Prostate Cancer
4 months ago
Docetaxel and Carboplatin
My
PSA
is now up to 99.5. I have bone mets in my lower back and sacrum w periodic pain that’s controlled w pain meds. My oncologist is recommending a chemo concoction of Docetaxel and Carboplatin. It’s the last item on the shelf. Have any of you guys had this combo before? How did it go?
My
PSA
is now up to 99.5. I have bone mets in my lower back and sacrum w periodic pain that’s controlled w pain meds. My oncologist is recommending a chemo concoction of Docetaxel and Carboplatin. It’s the last item on the shelf. Have any of you guys had this combo before? How did it go?
JoeyDad
in
Advanced Prostate Cancer
4 months ago
Orgovyx stopped woking.
PSA
went from 35 to 5 in first month. Second month,
PSA
went from 5 to 8. This month
PSA
is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he might switch me to Xandi.
PSA
went from 35 to 5 in first month. Second month,
PSA
went from 5 to 8. This month
PSA
is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he might switch me to Xandi.
woppaginny
in
Advanced Prostate Cancer
8 months ago
My trajectory after a "vacation" and a new metastasis
As a result, my
PSA
was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then
PSA
started to rise: 2/28/22 0.03, 4/5/22 0.06, 6/7/22 0.13, 8/8/22 0.26, 10/25/22 0.50, 11/29/22 0.55, 12/24/23 0.72, 3/27/23 0.78.
As a result, my
PSA
was undetectable for 2.5 years, and in 9/21 I was put on a "vacation" from treatment. Then
PSA
started to rise: 2/28/22 0.03, 4/5/22 0.06, 6/7/22 0.13, 8/8/22 0.26, 10/25/22 0.50, 11/29/22 0.55, 12/24/23 0.72, 3/27/23 0.78.
Istomin
in
Advanced Prostate Cancer
5 months ago
Starting Chemo again, Cabazitaxel Has anybody experienced any side effects that have been unusually bad?
PSA
is now no longer a good indicator for disease progression. I'm not looking forward to doing this but it's what has to be done. I'm wondering if any of you guys have experienced any adverse side effects other than the usual nausea, hair loss etc.?
PSA
is now no longer a good indicator for disease progression. I'm not looking forward to doing this but it's what has to be done. I'm wondering if any of you guys have experienced any adverse side effects other than the usual nausea, hair loss etc.?
redbank
in
Advanced Prostate Cancer
4 months ago
1st Time posting. Need suggestions please.
My husband was diagnosed in Jul 2021
PSA
41 at the time, multiple mets in bones. n1b and m1b Gleason 4+3=7. I've been reading and trying to get as much info as possible from this website. Last Oct
PSA
shot up to 19. Xtandi started and he also gets the 3monthly Prostap injections.
My husband was diagnosed in Jul 2021
PSA
41 at the time, multiple mets in bones. n1b and m1b Gleason 4+3=7. I've been reading and trying to get as much info as possible from this website. Last Oct
PSA
shot up to 19. Xtandi started and he also gets the 3monthly Prostap injections.
Akita123
in
Advanced Prostate Cancer
7 months ago
Did not see that coming.
PSA
was 139 ..MO says triplet therapy ....seems like I'm pretty far down the road... I know I gain by doing the therapy but on average are we talking months?years? Thx for any feedback.
PSA
was 139 ..MO says triplet therapy ....seems like I'm pretty far down the road... I know I gain by doing the therapy but on average are we talking months?years? Thx for any feedback.
APK3
in
Advanced Prostate Cancer
4 months ago
Keytruda - year 4
Finally I was able to get a PSMA Pet scan to ID the source of the
PSA
. I had trouble getting support for more radiation, but finally got it zapped. Palliative of course! Following the high dose proton beam radiation my
PSA
has been reduced to 0.01.
Finally I was able to get a PSMA Pet scan to ID the source of the
PSA
. I had trouble getting support for more radiation, but finally got it zapped. Palliative of course! Following the high dose proton beam radiation my
PSA
has been reduced to 0.01.
Chugach
in
Advanced Prostate Cancer
7 months ago
Should go into the OMAHA2a ODM-208 (MK-5684-004): phase 3 trial?
MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if
PSA
rises above 1.0.
PSA
of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment has failed.
MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if
PSA
rises above 1.0.
PSA
of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment has failed.
LakeT
in
Advanced Prostate Cancer
8 days ago
Question, each month with rising PSA, when do I do a pet scan
I believe this is causing my
PSA
to rise. I prefer to radiate, as I finally have my colitis under control with no more bleeding, it’s been a long road with that issue since last July What number
PSA
do I wait to before getting a pet scan?
I believe this is causing my
PSA
to rise. I prefer to radiate, as I finally have my colitis under control with no more bleeding, it’s been a long road with that issue since last July What number
PSA
do I wait to before getting a pet scan?
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and
psa
doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad.
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and
psa
doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad.
jbsnv
in
Prostate Cancer Network
3 months ago
Return of Armpit Odor - Yikes!!!
Due shortly for blood panel including
PSA
. However, I have never had a testosterone test, that I recall. Could the return of odor suggest the return of testosterone? I'm actually "very concerned" . . .
Due shortly for blood panel including
PSA
. However, I have never had a testosterone test, that I recall. Could the return of odor suggest the return of testosterone? I'm actually "very concerned" . . .
JohnInTheMiddle
in
Advanced Prostate Cancer
4 months ago
Back pain
My
PSA
is creeping up though my oncologist it not concerned at the moment. Any similar experiences out there? Many thanks.
My
PSA
is creeping up though my oncologist it not concerned at the moment. Any similar experiences out there? Many thanks.
FortyWinks
in
Advanced Prostate Cancer
5 months ago
Gleason 10 Stage 4 Metastatic Responding Well to Treatment
testing: BRCA2 gene variant identified 14-Jul - FoundationOne CDx: BRCA2 & RB1 gene variants identified in biopsy sample 21-Jul -
PSA
test: 3.0 ng/mL 4-Aug - Total Testosterone test: <7 ng/dl 4-Aug -
PSA
test: 0.38 ng/mL 14-Sep -
PSA
test: <0.10 ng/mL Treatments: 21-Jun - Eligard 3 month injection
testing: BRCA2 gene variant identified 14-Jul - FoundationOne CDx: BRCA2 & RB1 gene variants identified in biopsy sample 21-Jul -
PSA
test: 3.0 ng/mL 4-Aug - Total Testosterone test: <7 ng/dl 4-Aug -
PSA
test: 0.38 ng/mL 14-Sep -
PSA
test: <0.10 ng/mL Treatments: 21-Jun - Eligard 3 month injection
Brad70
in
Advanced Prostate Cancer
8 months ago
Helpful group
PSA
at diagnosis was 26 and first blood work after Lupron and Xtandi
PSA
was down to 3.6. Testosterone was down to 4. Second blood test due in two weeks. So far no bad side effects except for occasional hot flashes which are brief but it looks like things are trending in the right direction.
PSA
at diagnosis was 26 and first blood work after Lupron and Xtandi
PSA
was down to 3.6. Testosterone was down to 4. Second blood test due in two weeks. So far no bad side effects except for occasional hot flashes which are brief but it looks like things are trending in the right direction.
Jeffdanger
in
Advanced Prostate Cancer
3 months ago
Lymparza not working
Lymparza has done nothing for him and at 2 month check,
psa
doubled. Today at 4 month check
psa
doubled again. Needless to say we are so upset because the dr really believed he would do well. I am struggling to understand why Lymparza has done nothing. We are waiting to hear back on next steps.
Lymparza has done nothing for him and at 2 month check,
psa
doubled. Today at 4 month check
psa
doubled again. Needless to say we are so upset because the dr really believed he would do well. I am struggling to understand why Lymparza has done nothing. We are waiting to hear back on next steps.
Happy1985
in
Advanced Prostate Cancer
4 months ago
Radiation?
just got my
psa
results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04.
just got my
psa
results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04.
Tommyj2
in
Advanced Prostate Cancer
3 months ago
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