Spread in two months: I am rather... - Advanced Prostate...

Advanced Prostate Cancer

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Spread in two months

crony profile image
30 Replies

I am rather devastated to learn after an MRI and then a PSMA that my met in the L2, even after cyberknife six months ago has now spread to my l1 and lower. I even have a met in my femur and rib. Psa went from .6 to 8 then 10 all in a couple months. Starting Pluvicto asap but I think that is the last stop on the train. I am only 65. I have a new grand daughter. I need hope and prayers.

Jim

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crony profile image
crony
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30 Replies
Still_in_shock profile image
Still_in_shock

Are you still on ADT?? (Lupron, and whatever )

crony profile image
crony in reply to Still_in_shock

Orgovyx and Erleada

rickyfish56 profile image
rickyfish56

You are in my thoughts and prayers.

Gl448 profile image
Gl448

I have an aggressive cancer that spread throughout my bones.

I’m starting to Pluvicto next month, but my oncologist said a second round of chemo was a potential treatment,

Mugzie0523 profile image
Mugzie0523

my husband has had prostate cancer for over 12 years. Before his diagnosis, his psa was around 4. the very next year it was in the 30's! The Dr put him on antibiotics thinking he had an infection. after he was done with Rx, his psa shot up to 60 something. a biopsy verified it was metastasized prostate cancer stage IV.It has been over 12 years of having different chemo infusions, pills, injections, radiation infusions, trials and back to chemo one right after another. We were so surprised at how many new options became available to slow down his cancer! Don't give up. Don't think there isn't anymore they can do. It's a long road but his quality of life over most of those years was well worth it. Always think positive; NEVER NEGATIVE!

Chris52981 profile image
Chris52981 in reply to Mugzie0523

This is what I needed to hear- my dads scans are stable but psa is going up to around 10 so I know he is going g to need to change tx - he is 81 and in good health God bless so I need him around- he was on zytiga and xtandi so I need hope after this :) thanks battling since 2015

PCASURVIVOR profile image
PCASURVIVOR

I will pray for you; that the Lord God might increase your faith; guide your steps and extend your life.

MoonRocket profile image
MoonRocket

So, you probably want to get the METS biopsied now to check for mutations, etc. It's possible that other treatments may be available.

crony profile image
crony in reply to MoonRocket

Yes Moon Rocket, they took blood to learn the cancer mutation. I think they call it a "garden blood test.

DesertDaisy profile image
DesertDaisy

🙏🙏🙏

Lasered profile image
Lasered

🙏🙏

OFPF16 profile image
OFPF16

Hang in there! Stay positive! You’re in my prayers!!

SocoCrew profile image
SocoCrew

I pray that God would send healing and peace. 🙏🙏🙏

j-o-h-n profile image
j-o-h-n

Well you have many many cronies here. We all send our wishes and prayers that what you're experiencing now is just a slight bump in the road. Enjoy your Grand Daughter and start saving for her college education. You'll be around to celebrate her graduation and to enjoy the festivities....(but go easy on the alcohol)...

Good Luck, Good Health and Good Humor.

j-o-h-n

crony profile image
crony in reply to j-o-h-n

thank you. I have a small glass of red wine once a week now. No more beer.

witantric profile image
witantric

Hang in there and stay positive. Lots of new treatments coming every day. Have you looked into clinical trials? I would also get somatic genetic test if you haven’t done so

Tinuriel profile image
Tinuriel

Prayers for you, Crony! Have you considered chemo? I don't see it mentioned in your bio. May you find your hope.

crony profile image
crony in reply to Tinuriel

I had Docetoxel over about four years ago. six months ago I had cyberknife. The Psa was low then shot up to 10 last blood test

Tinuriel profile image
Tinuriel in reply to crony

Makes sense. Our doctors talk about doing a re-challenge - repeating a past treatments. Ra223 (Xofigo) is similar to Pluvicto in form, but less toxic, targets bone mets. Just trying to suggest things you might ask your doctor about. Wishing you success and peace.

crony profile image
crony in reply to Tinuriel

I asked about Xofigo but dr good and said Pluvicto is more aggressive given my spread in literally eight weeks

FMOH_N profile image
FMOH_N

🙏🙏🙏🙏 Praying and wishing you the best. You are not alone. we are many in the same boat. May GOD help us

Maxone73 profile image
Maxone73

check for mutations and check for actinium that could give better results on bone metastasis than lutetium (but in don’t know if it’s already available there)….prayers from me are guaranteed!

Steel67 profile image
Steel67 in reply to Maxone73

Definitely Actinium or beta emitting Turbium in Australia. If lutetium doesn’t get the results you want

4tunate1 profile image
4tunate1

Stay positive and stay aggressive with your clinical team to turn over every stone. You are in our thoughts!

MarylandGuy profile image
MarylandGuy

are you brca positive? There are parp inhibitors for that.

crony profile image
crony in reply to MarylandGuy

I do not know what those acronyms mean

crony profile image
crony in reply to MarylandGuy

I am waiting for the results of the gene testing to see how the cancer mutated . It is called a "garden test", they should call it the kitchen sink test. As for the PARP inhibitors, I have a consult with the CCCN people Friday and will ask about that. Thank you much

j-o-h-n profile image
j-o-h-n

see this for Help in nyms.....

It's on the right hand of the screen when you Post a new post...

PCa Abbreviation List UPDATED 1/26/2023

1/2 a glass of wine, once a week?..... (Red wine every day if you like wine)....

Good Luck, Good Health and Good Humor.

j-o-h-n

garyjp9 profile image
garyjp9

Another crony here. Rather than "Garden," the gene test was probably the Guardant 360. Good that they did that. You'll get hope and prayers from here too.

Nfler profile image
Nfler

Yes hang in there crony as you have many of us here. Never give up n try not to stress as there are a lot of options now. Bat therapy is showing a lot of promise and ivermectin as well. Look into both of those if the Pluvicto or actinium are not working out readily available. God bless n prayers sent to you…😊😇😇

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