I am rather devastated to learn after an MRI and then a PSMA that my met in the L2, even after cyberknife six months ago has now spread to my l1 and lower. I even have a met in my femur and rib. Psa went from .6 to 8 then 10 all in a couple months. Starting Pluvicto asap but I think that is the last stop on the train. I am only 65. I have a new grand daughter. I need hope and prayers.
Jim
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crony
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my husband has had prostate cancer for over 12 years. Before his diagnosis, his psa was around 4. the very next year it was in the 30's! The Dr put him on antibiotics thinking he had an infection. after he was done with Rx, his psa shot up to 60 something. a biopsy verified it was metastasized prostate cancer stage IV.It has been over 12 years of having different chemo infusions, pills, injections, radiation infusions, trials and back to chemo one right after another. We were so surprised at how many new options became available to slow down his cancer! Don't give up. Don't think there isn't anymore they can do. It's a long road but his quality of life over most of those years was well worth it. Always think positive; NEVER NEGATIVE!
This is what I needed to hear- my dads scans are stable but psa is going up to around 10 so I know he is going g to need to change tx - he is 81 and in good health God bless so I need him around- he was on zytiga and xtandi so I need hope after this thanks battling since 2015
Well you have many many cronies here. We all send our wishes and prayers that what you're experiencing now is just a slight bump in the road. Enjoy your Grand Daughter and start saving for her college education. You'll be around to celebrate her graduation and to enjoy the festivities....(but go easy on the alcohol)...
Hang in there and stay positive. Lots of new treatments coming every day. Have you looked into clinical trials? I would also get somatic genetic test if you haven’t done so
Makes sense. Our doctors talk about doing a re-challenge - repeating a past treatments. Ra223 (Xofigo) is similar to Pluvicto in form, but less toxic, targets bone mets. Just trying to suggest things you might ask your doctor about. Wishing you success and peace.
check for mutations and check for actinium that could give better results on bone metastasis than lutetium (but in don’t know if it’s already available there)….prayers from me are guaranteed!
I am waiting for the results of the gene testing to see how the cancer mutated . It is called a "garden test", they should call it the kitchen sink test. As for the PARP inhibitors, I have a consult with the CCCN people Friday and will ask about that. Thank you much
Another crony here. Rather than "Garden," the gene test was probably the Guardant 360. Good that they did that. You'll get hope and prayers from here too.
Yes hang in there crony as you have many of us here. Never give up n try not to stress as there are a lot of options now. Bat therapy is showing a lot of promise and ivermectin as well. Look into both of those if the Pluvicto or actinium are not working out readily available. God bless n prayers sent to you…😊😇😇
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