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Sudden weight loss on Orgovyx/Tamsulosin
Despite my starting in 2023 with a diagnosis of stage 5, Gleason 9 scores in half of my prostate, the biopsy and scans showed that I was non-metastatic. My medical oncologist declared that my ADT and SBRT rendered me in remission as of June, 2024. I am 85. My question is that suddenly in late July
Despite my starting in 2023 with a diagnosis of stage 5, Gleason 9 scores in half of my prostate, the biopsy and scans showed that I was non-metastatic. My medical oncologist declared that my ADT and SBRT rendered me in remission as of June, 2024. I am 85. My question is that suddenly in late July
Worked_the_World
in
Advanced Prostate Cancer
2 days ago
Mass on pancreas (cancer) - mets from PC or pancreatic cancer…?
My Dad (77) was diagnosed in the spring with stage 4 prostate cancer, Gleason 10 with mets to spine. He has since started hormone therapy and had radiation to his prostate. Recent scan showed a mass on the pancreas which came as a big surprise as the radiation had shrunk the mets on his spine and his
My Dad (77) was diagnosed in the spring with stage 4 prostate cancer, Gleason 10 with mets to spine. He has since started hormone therapy and had radiation to his prostate. Recent scan showed a mass on the pancreas which came as a big surprise as the radiation had shrunk the mets on his spine and his
LDC2024
in
Advanced Prostate Cancer
2 days ago
Can psa fluctuate while on adt?
My husband has been on Eligard and Xtandi since 2021. He’d been undetectable until this past November when his psa rose to 0.004, detectable. But then he became undetectable once more until yesterday’s psa test when it became detectable again. His oncologist switched his Xtandi to another similar med
My husband has been on Eligard and Xtandi since 2021. He’d been undetectable until this past November when his psa rose to 0.004, detectable. But then he became undetectable once more until yesterday’s psa test when it became detectable again. His oncologist switched his Xtandi to another similar med
artmus
in
Advanced Prostate Cancer
3 days ago
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Precision Drug Olaparib May Be Effective Without Hormone Therapy for Some Men with Biochemically Recurrent Prostate Cancer
Note: there is something better than olaparib that is being tested at the moment, something more precise and less toxic (saruparib) but still this is a very interesting news for people with HRR mutations, especially BRCA 1/2 because they are proving that this approach can work even without a simultaneous
Note: there is something better than olaparib that is being tested at the moment, something more precise and less toxic (saruparib) but still this is a very interesting news for people with HRR mutations, especially BRCA 1/2 because they are proving that this approach can work even without a simultaneous
Maxone73
in
Advanced Prostate Cancer
3 days ago
Hypothyroidism vs Blood Pressure
Hi Community. Would anyone have any thoughts: since I have had my Thyroid removed 1 year ago and am taking Levothyroxine, it seems my blood pressure is creeping up. Would this be an indicator of incorrect dosages, or type of hormone replacement. Getting to see an endocrinologist is difficult since I
Hi Community. Would anyone have any thoughts: since I have had my Thyroid removed 1 year ago and am taking Levothyroxine, it seems my blood pressure is creeping up. Would this be an indicator of incorrect dosages, or type of hormone replacement. Getting to see an endocrinologist is difficult since I
Dirhams
in
Thyroid UK
4 days ago
PSA and Testosterone update
My PSA increased after 6 weeks to 0.04 but my T dropped to 8.87 not sure how to think of this. I had no expectation, so it is what it is. Plan is my MO will give me a PSMA scan if a I get to 2.0 PSA. These numbers are so small that I know that they are meaningless at this point but I would still
My PSA increased after 6 weeks to 0.04 but my T dropped to 8.87 not sure how to think of this. I had no expectation, so it is what it is. Plan is my MO will give me a PSMA scan if a I get to 2.0 PSA. These numbers are so small that I know that they are meaningless at this point but I would still
Scout4answers
in
Advanced Prostate Cancer
4 days ago
How does one distinguish cancer related pain vs musculoskeletal pain due to ADT ?
I am on Orgovyx since 2 months and added Xtandi 3 weeks ago. Been getting musculoskeletal pains , mostly around late evening. Not too much - moderate kinds. My question is are there any pointers which can help distinguish which pains are due to ADT and which may be due to the cancer itself ?
I am on Orgovyx since 2 months and added Xtandi 3 weeks ago. Been getting musculoskeletal pains , mostly around late evening. Not too much - moderate kinds. My question is are there any pointers which can help distinguish which pains are due to ADT and which may be due to the cancer itself ?
Simpson80
in
Advanced Prostate Cancer
5 days ago
Looking for Encouragement
Hello everyone. Im updating my husband’s profile and hoping to find others that are in a similar situation. He is 62 years old and recently diagnosed with stage IV prostate cancer. His PSA was 885 and has too many Mets to count from his skull to groin area. The urologist started him and casadex and
Hello everyone. Im updating my husband’s profile and hoping to find others that are in a similar situation. He is 62 years old and recently diagnosed with stage IV prostate cancer. His PSA was 885 and has too many Mets to count from his skull to groin area. The urologist started him and casadex and
Iber
in
Advanced Prostate Cancer
5 days ago
Update
Diagnosed 2019 Gleason 9 PSA 13.3 Docataxal Radio therapy presently on ADT still training intensely and making gains just had a PSA bump from 0.03 to 0.316 they told me not to worry but you how we are I am having a good run fatigue and minor urinary issues as expected still at work and giving my all
Diagnosed 2019 Gleason 9 PSA 13.3 Docataxal Radio therapy presently on ADT still training intensely and making gains just had a PSA bump from 0.03 to 0.316 they told me not to worry but you how we are I am having a good run fatigue and minor urinary issues as expected still at work and giving my all
Bodysculpture
in
Advanced Prostate Cancer
5 days ago
How does Lynparza work?
I am brca2+ and 3 months into Lynparza. Stopped Zytiga, continuing ADT. I generally tolerate meds ok, but am finding this one v toxic. As I understand it, the brca2 gene mutation is in all cells, not just cancerous ones. In this case, Lynparza could be preventing parp from getting to healthy cells
I am brca2+ and 3 months into Lynparza. Stopped Zytiga, continuing ADT. I generally tolerate meds ok, but am finding this one v toxic. As I understand it, the brca2 gene mutation is in all cells, not just cancerous ones. In this case, Lynparza could be preventing parp from getting to healthy cells
Ian99
in
Advanced Prostate Cancer
5 days ago
please help
I’m new here and I’m really struggling with restless legs and arms and night sweats. I’m not sleeping and as soon as I relax arms n legs play up then I get hot and cold and clammy. It’s driving me crazy. Went to Gp today and he’s started me on HRT patches. Any advice pls? I need sleep
I’m new here and I’m really struggling with restless legs and arms and night sweats. I’m not sleeping and as soon as I relax arms n legs play up then I get hot and cold and clammy. It’s driving me crazy. Went to Gp today and he’s started me on HRT patches. Any advice pls? I need sleep
Ladytaf
in
Restless Legs Syndrome
5 days ago
Possible Hysterectomy at 42 as feel everything else hadn’t worked
My first time posting and really sorry for the long post. I have been struggling for the last 13 years, I’ve lost all of my thirties to pain and discomfort. My first laparoscopy and helium beam treatment back in 2011 they detected peritoneal pocketing found in the left uteri- sacral ligament and left
My first time posting and really sorry for the long post. I have been struggling for the last 13 years, I’ve lost all of my thirties to pain and discomfort. My first laparoscopy and helium beam treatment back in 2011 they detected peritoneal pocketing found in the left uteri- sacral ligament and left
LK20
in
Endometriosis UK
5 days ago
Mushrooms use in PCa
Hello. we are new to this disease and just looking for answers. My husband is 68 and diagnosed with Advanced Prostate Cancer. I am a RN. We are both retired healthcare workers for 2 yrs. He has tumor in prostate and in 2 lymph nodes, he is High Risk genetics. Gleason score was 7, 8, 9 in 7 of 12 biopsy
Hello. we are new to this disease and just looking for answers. My husband is 68 and diagnosed with Advanced Prostate Cancer. I am a RN. We are both retired healthcare workers for 2 yrs. He has tumor in prostate and in 2 lymph nodes, he is High Risk genetics. Gleason score was 7, 8, 9 in 7 of 12 biopsy
SweetHomeAlaNana
in
Advanced Prostate Cancer
5 days ago
Triptorelin injection but having really bad flare ups?
Hiya, I'm 31 and currrently being treated with 3 monthly triptorelin injections. It worked okay for the first 3 months (very mild pain randomly). As I went for the 2nd injection in July, I picked up my HRT as I started getting hot flushes. Within 2 weeks of taking HRT, I've had to to take 5 days off
Hiya, I'm 31 and currrently being treated with 3 monthly triptorelin injections. It worked okay for the first 3 months (very mild pain randomly). As I went for the 2nd injection in July, I picked up my HRT as I started getting hot flushes. Within 2 weeks of taking HRT, I've had to to take 5 days off
Tracer93
in
Endometriosis UK
5 days ago
Decision Time
Hi All, I recently posted with my situation and have a follow-up (final I hope) with Dr. Gorovets at MSK to finalize my non-surgical treatment plan. Just looking for any input, thoughts, advice. Greatly appreciated as always. I'm 60, GS 4+3, PSA 5.5, Decipher .55, clean PSMA Pet (full details in
Hi All, I recently posted with my situation and have a follow-up (final I hope) with Dr. Gorovets at MSK to finalize my non-surgical treatment plan. Just looking for any input, thoughts, advice. Greatly appreciated as always. I'm 60, GS 4+3, PSA 5.5, Decipher .55, clean PSMA Pet (full details in
MrGreenJeans
in
Prostate Cancer Network
5 days ago
looking for encouraging Pluvicto results
Hello fellow warriors, I know there have been posts of Pluvicto both helping and failing. I am now awaiting a PSMA PET scan to discuss possibly doing Pluvicto. I was diagnosed in 2018 at 46 years old with mets to about 5 spots in the bones. I have been on ADT since the beginning. I was on Zytiga then
Hello fellow warriors, I know there have been posts of Pluvicto both helping and failing. I am now awaiting a PSMA PET scan to discuss possibly doing Pluvicto. I was diagnosed in 2018 at 46 years old with mets to about 5 spots in the bones. I have been on ADT since the beginning. I was on Zytiga then
Oct18
in
Advanced Prostate Cancer
6 days ago
menopause & mental health
Has anyone else who suffered from mental health challenges before menopause notice symptoms got worse when they hit menopause? Or perhaps may have improved? Mine got worse, way worse, and I’m not sure that hrt is helping with that really 🤔.
Has anyone else who suffered from mental health challenges before menopause notice symptoms got worse when they hit menopause? Or perhaps may have improved? Mine got worse, way worse, and I’m not sure that hrt is helping with that really 🤔.
Amiwrong
in
Menopause and Perimenopause Support
6 days ago
Vaginal atrophy diagnosis
I have seen my GP today and she is suggesting that I might try vagifem as pessary or Estriol cream due to very sore and dry vagina with symptoms of recurrent UTI's, periodically very small traces of blood in the urine. I am also currently on fluconazole now a once a week dose and nitrofurantoin which
I have seen my GP today and she is suggesting that I might try vagifem as pessary or Estriol cream due to very sore and dry vagina with symptoms of recurrent UTI's, periodically very small traces of blood in the urine. I am also currently on fluconazole now a once a week dose and nitrofurantoin which
gillsky8
in
Bladder Health UK
6 days ago
Hysterectomy at 45?!?!
hi all, I am just about to turn 45 years old and I have had endo since I was 20. 5 laparoscopies over the years, hormone treatment, several pills and I’ve just had my coil removed as I still had periods etc every month. I am at my wits end now, but I’m wondering if a hysterectomy at 45 is a good idea
hi all, I am just about to turn 45 years old and I have had endo since I was 20. 5 laparoscopies over the years, hormone treatment, several pills and I’ve just had my coil removed as I still had periods etc every month. I am at my wits end now, but I’m wondering if a hysterectomy at 45 is a good idea
Rabbit79
in
Endometriosis UK
6 days ago
bone pain with chemo
hi everyone! My dad just completed his second chemo treatment with docetaxel. He is now having bone pain in his right femur. We will have another PSMA scan after the third dose. Going into chemo most of his metastases had shrunk on ADT. While I know new pain could be a sign of worsening metastasis
hi everyone! My dad just completed his second chemo treatment with docetaxel. He is now having bone pain in his right femur. We will have another PSMA scan after the third dose. Going into chemo most of his metastases had shrunk on ADT. While I know new pain could be a sign of worsening metastasis
Concerneddaughter123
in
Advanced Prostate Cancer
7 days ago
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