How does one distinguish cancer relat... - Advanced Prostate...

Advanced Prostate Cancer

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How does one distinguish cancer related pain vs musculoskeletal pain due to ADT ?

Simpson80 profile image
10 Replies

I am on Orgovyx since 2 months and added Xtandi 3 weeks ago.

Been getting musculoskeletal pains , mostly around late evening. Not too much - moderate kinds.

My question is are there any pointers which can help distinguish which pains are due to ADT and which may be due to the cancer itself ?

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Simpson80 profile image
Simpson80
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10 Replies
JohnInTheMiddle profile image
JohnInTheMiddle

Here's a post from quite a while ago about pain - and at lot of replies. There are other big discussions how about pain and how confusing it can be non other threads too.

healthunlocked.com/advanced...

God_Loves_Me profile image
God_Loves_Me

It is NOT medical advice.

Here is my understanding: I was in the same boat a couple of months ago. I spent good money to find the difference.

I think You should still visit a doctor and confirm

If you have pain and if you try to sleep, sit or stand, or any body movement and pain reduces or no pain after certain position that will consider as muscle pain

At the same time if you try to sleep, sit, and stand but pain is there and you feel it, than it consider cancer pain

dhccpa profile image
dhccpa in reply toGod_Loves_Me

ADT pain? Or cancer bone pain?

God_Loves_Me profile image
God_Loves_Me in reply todhccpa

Sorry cancer bone pain

j-o-h-n profile image
j-o-h-n in reply toGod_Loves_Me

Your posts above seem logical and on target. Thanks...

Good Luck, Good Health and Good Humor.

j-o-h-n

Wynnsts profile image
Wynnsts

My experience with Orgovyx and Xtandi has been mostly mild, tired if I let myself be and some brain fog from time to time. In regards to pain, I think it’s important to know where your metastasis is and whether there’s any pain in these areas, regarding joint pain, regular exercise is by far the best medicine. I’ve been on these Mets for almost two years with one 5 month break. My MO thinks I’m a good candidate for intermittent treatment, so far so good. I’m blessed with having the opportunity to battle this disease for 9 years now and I’ve made it to 77. Wishing you God’s speed with your battle!

Simpson80 profile image
Simpson80 in reply toWynnsts

thanks. What was your initial diagnosis and Gleason score ?

Wynnsts profile image
Wynnsts in reply toSimpson80

All cores positive, Gleason 7. I had two rounds of radiation(one 39 sessions, one 5 of the higher dosage). These were 4 and 5 years after prostatectomy.

groundhogy profile image
groundhogy

look up the maps of nerve pathways of thebhuman body

Also 2 spots are almost always the cause od skeletal pain, the neck and lower abdomen spine

Mascouche profile image
Mascouche

From what I've read cancer related pain often comes from metastasis that fracture bones and that can be excruciating. I too am having musculoskeletal pains while on Orgovyx and on Xtandi and it is not what I would call excruciating. It feels more like it would feel the day after, if I had never lifted weights before and then suddenly decided to over do it. Not fun for sure but not quite excruciating.

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