Triptorelin injection but having really bad flare ups?

[Tracer93]

Hiya, I'm 31 and currrently being treated with 3 monthly triptorelin injections. It worked okay for the first 3 months (very mild pain randomly). As I went for the 2nd injection in July, I picked up my HRT as I started getting hot flushes. Within 2 weeks of taking HRT, I've had to to take 5 days off work because of extreme pain and a horrible period. It's like the injections have been a complete waste of time.

The pain is just like it was before my first laparoscopy back in 2019. It was completely unbearable. The pain has only just started to subside, but I'm due back at work tomorrow and I'm absolutely exhausted! I might not even go to work tomorrow just to actually be able to rest and recover.

I'm under an endo clinic in hospital but to get an appointment is a mission. My next follow up isn't until November and it's only over the phone.

I'm debating whether or not to have the next injection in September? I can't see the point if I'm still going to be getting a period and be in pain? I feel like it's a waste of my time? Has anyone had a similar experience or have any suggestions? It would be greatly appreciated!

[thebird1]

Hi, I've only just seen your post. What did you decide to do in the end? I'm on month 5 but the endo pain has come back with a vengeance. It's been ok for the last four months

[Tracer93 in reply to thebird1]

Hi!

I'm so sorry to hear the pain has come back for you! I really hope it subsides!

I researched everything for a good week after. It seems like the HRT flared everything up again, so it was like starting from the beginning when I stopped taking it. Even after stopping the HRT, I've been getting serious endo bloating and pain. To the point I need to keep taking tramadol.

I decided not to go ahead with the triptorelin. In all honesty, it hasn't worked as well as the Zoladex injections ever did. But, with triptorelin and zoladex, it can only be taken for a certain amount of time without HRT, before other issues could arise. I'm quite close to getting osteoporosis after the first chemical menopause, so I just don't see the point if the cons can outweigh the pros.

I'm going to wait for my appt in November and let them know I'm ready to go ahead with surgery for the fourth time.

How long since you've been diagnosed with Endo? I really hope you've not been suffering to much? X

[thebird1 in reply to Tracer93]

Hi, I've always had painful periods from 13yrs. Regularly passed out etc. Many a lunch time in nurses office at school!I was diagnosed at 39 after laparoscopy which I had to push for. I'd seen three different gynecologists in 8 years. They diagnosed DIE as it was about to go into my bowel. The worst pain for me is around cervix and bladder and urethra. I had a coil fitted in 2018 and had it replaced last year. I'm 47 years now. The pain has never gone but has got far worse in the last 2-3 years due to hormonal changes I'm guessing!

Currently awaiting hysterectomy ( 12 months to wait), oophorectomy and excision of endometriosis. The consultant is an endo specialist but hasn't said if a urologist will be in theatre!!

I don't think anyone really understands apart from everyone on here! I've only recently joined x

I've been struggling for the past two weeks. I had a course of antibiotics a week ago as they said it was positive. Further tests have been negative but the pain is worse not better!

[Tracer93 in reply to thebird1]

Omg, you've been through so much! I'm so sorry!

The fact that a lot of us have to fight for surgery to get diagnosed is ridiculous! I can't believe you have to wait at least 12 months to go through major surgery and painful recovery to be given some sort of relief! When you're given a date for pre-op, seriously badger them about the urologist! They can't not tell you, especially if there is a risk it could leave anything behind!

I seriously feel for you. My heart goes out to you! Xx

[thebird1]

Thank you x