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Advice
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Kma123
in
Pernicious Anaemia Society
3 months ago
Awful day
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
MrsPaddingtonBear
in
Endometriosis UK
9 months ago
NY Proton Center and Cyberknife at NYU Langone.
Hi Everyone, You were all so kind when I had a bit of a meltdown learning about my diagnosis and then finding this forum. Thank you all from the bottom of my heart. I took everyone’s advice. Slowing things down and doing my homework. I just wanted to mention a couple of items. I met with a very well
Hi Everyone, You were all so kind when I had a bit of a meltdown learning about my diagnosis and then finding this forum. Thank you all from the bottom of my heart. I took everyone’s advice. Slowing things down and doing my homework. I just wanted to mention a couple of items. I met with a very well
LBRV711
in
Prostate Cancer Network
9 months ago
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2nd frozen embryo transfer at 41yrs, endometriosis, under active thyroid, success stories needed!
Hi all, We’re about to have our 2nd FET at the beginning of September, I’ve had the Prostap injection and my first scan is tomorrow which afterwards I’ll start the estrogen tablets and then the progesterone pessaries. I had Endometriosis quite a few years ago and my pelvis was ‘frozen’ where all of
Hi all, We’re about to have our 2nd FET at the beginning of September, I’ve had the Prostap injection and my first scan is tomorrow which afterwards I’ll start the estrogen tablets and then the progesterone pessaries. I had Endometriosis quite a few years ago and my pelvis was ‘frozen’ where all of
LV2020
in
Fertility Network UK
9 months ago
Hot flushed Post GNRH analogues
Hi I was on Prostap followed by Zoladex for 2 years. I decided to stop having injections 5.5 months ago. I had a lot of weight gain, other autoimmune conditions and underactive thyroid. I was all medicated up and on too much. So my question....did you have hot flushes after you came off them? Im currently
Hi I was on Prostap followed by Zoladex for 2 years. I decided to stop having injections 5.5 months ago. I had a lot of weight gain, other autoimmune conditions and underactive thyroid. I was all medicated up and on too much. So my question....did you have hot flushes after you came off them? Im currently
Awwy
in
Endometriosis UK
9 months ago
private testing
hi all, I hope you’re well. I’d like to ask about the finger prick home tests that Blue Horizon offers. How are they able to check all of the below markers with such a small blood sample? I’m aware that containers are super small and they claim to be testing a lot: Inclusions: TSH, FT4, FT3, TT4
hi all, I hope you’re well. I’d like to ask about the finger prick home tests that Blue Horizon offers. How are they able to check all of the below markers with such a small blood sample? I’m aware that containers are super small and they claim to be testing a lot: Inclusions: TSH, FT4, FT3, TT4
Angie10116
in
Thyroid UK
4 months ago
An Eventful January Update - Pacemaker Delayed
Hello, I could sense trouble brewing last Friday when one of my knees became inflamed to the point I could barely walk over the weekend. All the signs are that it's gout, first time for my knee and it hurt's like hell. Had the replacement Pacemaker Pre-op this morning, INR was at 4.4, when the Consultant
Hello, I could sense trouble brewing last Friday when one of my knees became inflamed to the point I could barely walk over the weekend. All the signs are that it's gout, first time for my knee and it hurt's like hell. Had the replacement Pacemaker Pre-op this morning, INR was at 4.4, when the Consultant
Hidden
in
British Heart Foundation
4 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
4 months ago
Prostap injections and bleeding
hello everyone, I’m having a bit of a tough time at the moment, I started prostap injections last year in may without HRT until December, and up until present day having the injection every three months with my daily tibilone tablet. The thing is when I started everything was fine no pain, no bleeding
hello everyone, I’m having a bit of a tough time at the moment, I started prostap injections last year in may without HRT until December, and up until present day having the injection every three months with my daily tibilone tablet. The thing is when I started everything was fine no pain, no bleeding
Leenie0811
in
Endometriosis UK
10 months ago
weight loss on ProStap
hi everyone I have posted a few times about struggling to lose a horrendous amount of weight I have gained since being on these injections I have managed to get my doctor to prescribe me orlistat which is a fat binder to help me to lose weight because everything else I have child has not worked
hi everyone I have posted a few times about struggling to lose a horrendous amount of weight I have gained since being on these injections I have managed to get my doctor to prescribe me orlistat which is a fat binder to help me to lose weight because everything else I have child has not worked
Prettythings1
in
Endometriosis UK
10 months ago
Daughter thyroid results
HiI am new here with a question for my daughter (19). She is really struggling with fatigue so much so she is home from Uni. Also feels sick, headaches, really cold hands and feet and very pale. She had low ferritin last year and was put on iron tablets for 3 months. She went for a private blood test
HiI am new here with a question for my daughter (19). She is really struggling with fatigue so much so she is home from Uni. Also feels sick, headaches, really cold hands and feet and very pale. She had low ferritin last year and was put on iron tablets for 3 months. She went for a private blood test
PennB
in
Thyroid UK
5 months ago
Proton Therapy timeline question
For those who have had proton therapy, what was your timeline? What period of time elapsed after you began ADT and had the simulation? And then, how long after that did the actual therapy begin? I've been reading and can't seem to determine a timeline, other than one guy wrote that he had the simulation
For those who have had proton therapy, what was your timeline? What period of time elapsed after you began ADT and had the simulation? And then, how long after that did the actual therapy begin? I've been reading and can't seem to determine a timeline, other than one guy wrote that he had the simulation
Hidden
in
Advanced Prostate Cancer
9 months ago
At last!
Sooooooo happy! Had my appointment at the hospital today and my consultant finally agreed after 20 horrible long years to put me on the list for a total hysterectomy. Continuing Prostap and Evorell patches till then, but the papers are all signed. So relieved. I really thought he was going to fob me
Sooooooo happy! Had my appointment at the hospital today and my consultant finally agreed after 20 horrible long years to put me on the list for a total hysterectomy. Continuing Prostap and Evorell patches till then, but the papers are all signed. So relieved. I really thought he was going to fob me
MrsPaddingtonBear
in
Endometriosis UK
10 months ago
Side Effects Damaging Kidneys and Liver
Hi All, I am in Florida, USA. I am a 70 year old female, diagnosed with RA in 2021. I have been on Meloxicam, Methotrexate, Sulfasalazine, and most recently Leflunomide, as well as Prednisone. None of the meds put me into remission. At best I had a 70% reduction in symptoms. I was taken off Methotrexate
Hi All, I am in Florida, USA. I am a 70 year old female, diagnosed with RA in 2021. I have been on Meloxicam, Methotrexate, Sulfasalazine, and most recently Leflunomide, as well as Prednisone. None of the meds put me into remission. At best I had a 70% reduction in symptoms. I was taken off Methotrexate
MaryinFL
in
NRAS
5 months ago
symptoms ?
Hi all, i was diagnosed over 3 years ago with endo & adeno. This year i went back on prostap even though it made mw extremely unwell the first time & after the second month injection around 7 days later i became very unwell, with pain in left upper abdomen, tightness of throat, tingling tongue etc..
Hi all, i was diagnosed over 3 years ago with endo & adeno. This year i went back on prostap even though it made mw extremely unwell the first time & after the second month injection around 7 days later i became very unwell, with pain in left upper abdomen, tightness of throat, tingling tongue etc..
mjo44
in
Endometriosis UK
10 months ago
Bleeding after endo surgery
hello everyone, I recently had my second laparoscopy on the 27th July and they removed endo, adhesions and scar tissue. I’ve been recovering and the first couple of days I had bleeding which was said to be expected. Yesterday I started bleeding again with the worst pain, I’m still on prostap and my
hello everyone, I recently had my second laparoscopy on the 27th July and they removed endo, adhesions and scar tissue. I’ve been recovering and the first couple of days I had bleeding which was said to be expected. Yesterday I started bleeding again with the worst pain, I’m still on prostap and my
Leenie0811
in
Endometriosis UK
10 months ago
Dairy, Whey and RA
Hello, Has anyone accidentally triggered a flare while trying to he healthy? Because I've been feeling so good lately I decided to take things up a notch and go to the gym. Since I am vegan and don't get enough protein, a friend suggested a whey protien shake. Long story short 1 week later, I appear
Hello, Has anyone accidentally triggered a flare while trying to he healthy? Because I've been feeling so good lately I decided to take things up a notch and go to the gym. Since I am vegan and don't get enough protein, a friend suggested a whey protien shake. Long story short 1 week later, I appear
Ryka
in
NRAS
10 months ago
advice 2nd prostap jab
9 days post 2nd Prostap injection. My 1st jab was a few days before my period was due but no period. Feels like I need to have a period as my body built up to have one pre jab 6 wks ago. Woke up this morning with a flat stomach (not had this in along time)! Then by the time I showered and got dressed
9 days post 2nd Prostap injection. My 1st jab was a few days before my period was due but no period. Feels like I need to have a period as my body built up to have one pre jab 6 wks ago. Woke up this morning with a flat stomach (not had this in along time)! Then by the time I showered and got dressed
Jonesy05
in
Endometriosis UK
10 months ago
Diagnosis Journey
I was wondering if anybody else experienced frustration and gaslighting along their diagnosis journey. After being bounced from specialist to specialist (cardiologist, pulmonologist, neurologist, gastroenterologist, dermatologist, endocrinologist, ENT) for each symptom and having each one tell me that
I was wondering if anybody else experienced frustration and gaslighting along their diagnosis journey. After being bounced from specialist to specialist (cardiologist, pulmonologist, neurologist, gastroenterologist, dermatologist, endocrinologist, ENT) for each symptom and having each one tell me that
AnxiousOwl4
in
LUPUS UK
5 months ago
Trying to get my health on track..
Had a abdominal hysterectomy and kept my ovaries in Early March, was put into chemical menopause with Prostap SR which really messed me up. The drug caused me to be extremely depressed/anxious. As well as thyroid/heart/ kidney issues. My thyroid is still being investigated (their suspecting hoshimoto
Had a abdominal hysterectomy and kept my ovaries in Early March, was put into chemical menopause with Prostap SR which really messed me up. The drug caused me to be extremely depressed/anxious. As well as thyroid/heart/ kidney issues. My thyroid is still being investigated (their suspecting hoshimoto
Kinzy1979
in
My EXI Community
10 months ago
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