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Should my advanced micrometastatic treatment be more aggressive
DX Feb 2014, Gleason 9, psa 10, 3tb. All scans have shown no metastatic involvement including pet/ct in April 2020. Treatment 42 fractions proton radiation June 2014 . Lupron 3mos prior and 6mos after proton therapy. Psa 3mos post proton treatment 0.1, 9mos post treatment 6.0. Firmagon started Dec
DX Feb 2014, Gleason 9, psa 10, 3tb. All scans have shown no metastatic involvement including pet/ct in April 2020. Treatment 42 fractions proton radiation June 2014 . Lupron 3mos prior and 6mos after proton therapy. Psa 3mos post proton treatment 0.1, 9mos post treatment 6.0. Firmagon started Dec
Tnjw
in
Advanced Prostate Cancer
4 years ago
Help with blood results
Dear fellow members... Newby.. I have been reading you for a month /trying to educate myself/ and I am getting more and more confused. Would someone be so kind to help me read my blood test results. My GP told me my results are fine, even though I was complening from beeing very tired all the time.
Dear fellow members... Newby.. I have been reading you for a month /trying to educate myself/ and I am getting more and more confused. Would someone be so kind to help me read my blood test results. My GP told me my results are fine, even though I was complening from beeing very tired all the time.
gina76
in
Pernicious Anaemia Society
4 years ago
Bleeding After Prostap?! 2nd FET
Hello Ladies, Hoping someone out there may be able to offer some advice?! I had my Prostap injection to start treatment on the 17th of July... Had subsequent bleed as expected which I thought had “finished” with down regulation scan planned for tomorrow. However, today there has been (sorry for TMI)
Hello Ladies, Hoping someone out there may be able to offer some advice?! I had my Prostap injection to start treatment on the 17th of July... Had subsequent bleed as expected which I thought had “finished” with down regulation scan planned for tomorrow. However, today there has been (sorry for TMI)
Mrs14
in
Fertility Network UK
4 years ago
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Bleeding
Why am I bleeding if I’m on prostap and desogestrel???
Why am I bleeding if I’m on prostap and desogestrel???
zoec18
in
Endometriosis UK
4 years ago
New Here and Glad I’ve found this Group – Anyone done Proton Therapy?
Intro Info – I’m 66 relatively good health, obviously gay. During a routine physical I had a slightly elevated PSA score of 4.3 so my primary care doctor recommended me to a Urologist. After some discussion we decided to do a biopsy. The result from the 12 cores was not what I wanted to hear. I was hoping
Intro Info – I’m 66 relatively good health, obviously gay. During a routine physical I had a slightly elevated PSA score of 4.3 so my primary care doctor recommended me to a Urologist. After some discussion we decided to do a biopsy. The result from the 12 cores was not what I wanted to hear. I was hoping
gcunningham
in
Prostate Cancer And Gay Men
4 years ago
bmi slightly above 30 and due to start FET - advice please
I had a fresh cycle in Feb which sadly ended in a missed miscarriage. I am now due to start a FET and have appt tomorrow to get Prostap injection. Obviously before I started my last cycle my bmi was below 30 but now after the hormones and lockdown its currently sitting about 30.7, does anyone know
I had a fresh cycle in Feb which sadly ended in a missed miscarriage. I am now due to start a FET and have appt tomorrow to get Prostap injection. Obviously before I started my last cycle my bmi was below 30 but now after the hormones and lockdown its currently sitting about 30.7, does anyone know
annien1980
in
Fertility Network UK
4 years ago
Is Aching at night a symptom of ET
I have not yet been diagnosed with ET but platelets increasing over last 3 years now over 600 x 10 to the 9th. I am JAK2 positive. Started myself on low dose aspirin which was later okayed by my family doctor. Waiting for hematology appointment. Father had ET and his brother PV so seems likely that
I have not yet been diagnosed with ET but platelets increasing over last 3 years now over 600 x 10 to the 9th. I am JAK2 positive. Started myself on low dose aspirin which was later okayed by my family doctor. Waiting for hematology appointment. Father had ET and his brother PV so seems likely that
Planti
in
MPN Voice
4 years ago
Is this too many drugs?! Prostap, Tibilone, Norethisterone, Tranexamic Acid, Mirena Coil
I'm so worried. I had a mirena coil fit in March, to help stop heavy periods. I have bled every single day since. The GP wouldn't remove it, as I hadn't given it enough time. Instead I ended up taking 9 Norethisterone a day (usually you take 3). Then I ended up in hospital because I couldn't handle the
I'm so worried. I had a mirena coil fit in March, to help stop heavy periods. I have bled every single day since. The GP wouldn't remove it, as I hadn't given it enough time. Instead I ended up taking 9 Norethisterone a day (usually you take 3). Then I ended up in hospital because I couldn't handle the
Mrsb1987
in
Endometriosis UK
4 years ago
Sweet's syndrome during induction chemotherapy for acute myeloid leukemia – case report and mini review.
In 15-20% of cases, Sweet's syndrome (SS) develops secondary to cancer, the blood cancer, acute myeloid leukaemia (AML), being the commonest. Out of the total number of malignancy-associated cases, 85% have blood cancer. This is a case of a 47-year-old woman who developed skin lesions that appeared
In 15-20% of cases, Sweet's syndrome (SS) develops secondary to cancer, the blood cancer, acute myeloid leukaemia (AML), being the commonest. Out of the total number of malignancy-associated cases, 85% have blood cancer. This is a case of a 47-year-old woman who developed skin lesions that appeared
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
4 years ago
Low Protein Diet
Link to information on pasta and low protein CKD diet. https://www.kidney.org/atoz/content/pasta-and-low-protein-diet
Link to information on pasta and low protein CKD diet. https://www.kidney.org/atoz/content/pasta-and-low-protein-diet
orangecity41
NKF Ambassador
in
Kidney Disease
4 years ago
Does the prostap injection work well with the marina coil
W
W
1234white_
in
Endometriosis UK
4 years ago
Period on Prostap
I had my first Prostap injection 21 days ago and have just got a very painful period. Is it normal to still get a period with the injection? What are your experiences with Prostap injections?
I had my first Prostap injection 21 days ago and have just got a very painful period. Is it normal to still get a period with the injection? What are your experiences with Prostap injections?
Imyogi
in
Endometriosis UK
4 years ago
Serum c reactive protein level query
Had copy May blood test results .Serum c reactive protein level 11 mg/L ( range 0.00-7.00 mg/L) Marked with ! but no contact yet from Dr to discuss . Is this level normally acceptable I wondered if the level was appropriate for someone who has arthritis and stenosis ( I also thought I had all signs
Had copy May blood test results .Serum c reactive protein level 11 mg/L ( range 0.00-7.00 mg/L) Marked with ! but no contact yet from Dr to discuss . Is this level normally acceptable I wondered if the level was appropriate for someone who has arthritis and stenosis ( I also thought I had all signs
Red1973
in
Arthritis Action
4 years ago
An update on my Proton Therapy
So I decided to update my situation and treatment here in the Houston area. At a very young and sexually active 72 yrs old I was diagnosed with intermediate risk Pc in May last year (2019). I had a large tumor with a slight extracapsular extension. PSA 7.5 and rising pretty fast, G 3+4. I spend a lot
So I decided to update my situation and treatment here in the Houston area. At a very young and sexually active 72 yrs old I was diagnosed with intermediate risk Pc in May last year (2019). I had a large tumor with a slight extracapsular extension. PSA 7.5 and rising pretty fast, G 3+4. I spend a lot
Pesky21
in
Prostate Cancer Network
4 years ago
Cannot eat protein
Hi, I wondered if anyone has come across my condition before. I get very bad peripheral neuropathy in my legs and sometimes hands about three hours after eating any protein (meat, dairy, eggs, beans, seeds ....) I have had this for over 5 years and it is mostly controlled by gabapentin and a very low
Hi, I wondered if anyone has come across my condition before. I get very bad peripheral neuropathy in my legs and sometimes hands about three hours after eating any protein (meat, dairy, eggs, beans, seeds ....) I have had this for over 5 years and it is mostly controlled by gabapentin and a very low
Imc20
in
Neuropathy Support
4 years ago
Prostap & HRT
Hi all... I’ve had endo for 16 years.. 3 laps, one baby and multiple trials to control it later and I’m starting on prostap with estrogen only HRT in the next few weeks. Just wondered what to expect? I know you can have menopausal symptoms but my specialist said the HRT should stop or at least lessen
Hi all... I’ve had endo for 16 years.. 3 laps, one baby and multiple trials to control it later and I’m starting on prostap with estrogen only HRT in the next few weeks. Just wondered what to expect? I know you can have menopausal symptoms but my specialist said the HRT should stop or at least lessen
Rjb_88
in
Endometriosis UK
4 years ago
Is the Prostap (3mthly) injection actually working?
I had my first prostap injection 4weeks ago and I don’t know if it’s working silly as it sounds! I’ve had my usual pains, a period that was heavier than it’s been for a year since I had the mirena coil and I haven’t had any side effects, eg hot flushes, mood swings. Can it ever not work or is this
I had my first prostap injection 4weeks ago and I don’t know if it’s working silly as it sounds! I’ve had my usual pains, a period that was heavier than it’s been for a year since I had the mirena coil and I haven’t had any side effects, eg hot flushes, mood swings. Can it ever not work or is this
Hlous
in
Endometriosis UK
4 years ago
Period and Prostap 11.25mg
Hi ladies, I had a Prostap injection 11.25mg on 23 February. I know the injection last for 3 months, I though by June I will have my period but so far now July, still no period. Anyone had Prostap 11.25mg and your period delayed longer than 3 months. Thank you.
Hi ladies, I had a Prostap injection 11.25mg on 23 February. I know the injection last for 3 months, I though by June I will have my period but so far now July, still no period. Anyone had Prostap 11.25mg and your period delayed longer than 3 months. Thank you.
Sezvic
in
Endometriosis UK
4 years ago
Prostap injection
Didnt know prostap injection was chemo drug.been unwell on it .might have to be on 6 months or more .just read u can lose yr hair has this happened to anyone
Didnt know prostap injection was chemo drug.been unwell on it .might have to be on 6 months or more .just read u can lose yr hair has this happened to anyone
Tymawr
in
Endometriosis UK
4 years ago
13 year old with Hashimotos- should we try ndt? Anxiety, constipation, brain fog and trouble sleeping :(
Hi - my daughter is currently on Levothyroxine 50mcg daily- she suffers with anxiety, constipation, brain fog and difficulties falling to sleep. She also tends to have dips in energy during the day and flushed cheeks which we thought was related to adrenals. (We tested cortisol levels and although low
Hi - my daughter is currently on Levothyroxine 50mcg daily- she suffers with anxiety, constipation, brain fog and difficulties falling to sleep. She also tends to have dips in energy during the day and flushed cheeks which we thought was related to adrenals. (We tested cortisol levels and although low
nikkilou77
in
Thyroid UK
4 years ago
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