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Second Prostap Injection
Hi everyone 👋Just wanted to know your thoughts/ experiences with Prostap, I had my first injection a month ago and after the initial two weeks of feeling like I was dying, I started to improve and other than my bowel issues can honestly say that the pain has reduced, but I had my second injection yesterday
Hi everyone 👋Just wanted to know your thoughts/ experiences with Prostap, I had my first injection a month ago and after the initial two weeks of feeling like I was dying, I started to improve and other than my bowel issues can honestly say that the pain has reduced, but I had my second injection yesterday
Shellbell2023
in
Endometriosis UK
9 months ago
Proton Beam Therapy
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
Has anyone had Proton Beam Therapy for their prostate cancer. I have read up on it but would like to know some personal experiences from anyone who has had this treatment. Preferably anyone who had proton beam therapy at Penn Medicine at Lancaster General in Lancaster, Pa. but anyone who has experienced
woppaginny
in
Advanced Prostate Cancer
8 months ago
My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
9 months ago
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SCT journey update No.4
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell Transplant. Last tests @ Addenbrookes yesterday, was a very early start as Lung function testing was @ 8.30am and it’s about 2 hour journey. Wife and I were up about 3-4am ( to be fair, couldn’t sleep anyway ) The drive
LFCLove
in
MPN Voice
3 months ago
Potential Lupus diagnosis
Hello, I have just joined this site and would be very grateful for any advice given. Sorry this might be a bit long winded🤪 So… my ethnicity is of Asian origin and ever since I can remember I don’t think a day has gone by where I don’t suffer from joint aches , muscle pain body stiffness and chronic
Hello, I have just joined this site and would be very grateful for any advice given. Sorry this might be a bit long winded🤪 So… my ethnicity is of Asian origin and ever since I can remember I don’t think a day has gone by where I don’t suffer from joint aches , muscle pain body stiffness and chronic
Perfumeflower57
in
LUPUS UK
3 months ago
Obinutuzumab infusion and
Hi All had my two first infusions on Tuesday and Wednesday no issues at all despite some posts I have seen. Steroids did cause sleeping issues later but I did enjoy the pre meds. Blood results showed from Tuesday infusion showed slightly raised 222k to 232k. With get Bloods redone next Tuesday before
Hi All had my two first infusions on Tuesday and Wednesday no issues at all despite some posts I have seen. Steroids did cause sleeping issues later but I did enjoy the pre meds. Blood results showed from Tuesday infusion showed slightly raised 222k to 232k. With get Bloods redone next Tuesday before
TheFlyer
in
CLL Support
3 months ago
Help for PMR relapse?
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
Karenjaninaz
in
PMRGCAuk
3 months ago
So down today 🥺 Why does everything take so long and nothing helps
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
Mindfullness4791
in
Endometriosis UK
9 months ago
BCF after 9 years post proton therapy
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
My PSA had been increasing slowly since my nadir of .75 in 2017 reaching 1.19 in 2022. Both RO and Uro weren't terribly concerned. I wanted PSMA after 3rd consecutive increase but both recommended a wait and see approach, especially the RO who seems honor bound to wait for 2.0 over nadir. I skipped
hwrjr
in
Prostate Cancer Network
8 months ago
Test results. Can you advise please.
After great advice on this forum regarding my thyroid nodules, I requested from my GP surgery the same tests as are provided in the Blue Horizon Golden Thyroid Test. The clinician seemed to want to help and I thought almost everything would be tested. However, these are my results and, as is clear
After great advice on this forum regarding my thyroid nodules, I requested from my GP surgery the same tests as are provided in the Blue Horizon Golden Thyroid Test. The clinician seemed to want to help and I thought almost everything would be tested. However, these are my results and, as is clear
assambeatty
in
Thyroid UK
3 months ago
C-reactive protein
Greetings from northern Canada! I was diagnosed with RA 6 months ago and my CRP was in the 100s. It has gone up and down since then. It was 1.7 last month and I was told I'm in remission. Now it's up to 27.5 again. Does anyone have any experience with this? The inflammation is obviously still in my body
Greetings from northern Canada! I was diagnosed with RA 6 months ago and my CRP was in the 100s. It has gone up and down since then. It was 1.7 last month and I was told I'm in remission. Now it's up to 27.5 again. Does anyone have any experience with this? The inflammation is obviously still in my body
Fayski
in
NRAS
3 months ago
Test result help please
Hi Forum, I'm looking for some advice please? I have been to the drs many times over the years to have my thyroid tested as I struggle with fatigue, depression, weight gain, brain fog. My bloods have always come back 'normal' and I've never questioned them... I trust the system. However, my family have
Hi Forum, I'm looking for some advice please? I have been to the drs many times over the years to have my thyroid tested as I struggle with fatigue, depression, weight gain, brain fog. My bloods have always come back 'normal' and I've never questioned them... I trust the system. However, my family have
Quinnevans
in
Thyroid UK
3 months ago
Bloating tips
Does anyone have any tips for bloating? Happens with any meal- doesn't matter what I eat or drink? I'm 31, have 2 fibroids, had 2 prostap injections which showed the fibroids slightly shrunk but now have suspected PCOS. I have a constant bloated stomach - I've seen loads online about rheal superfoods
Does anyone have any tips for bloating? Happens with any meal- doesn't matter what I eat or drink? I'm 31, have 2 fibroids, had 2 prostap injections which showed the fibroids slightly shrunk but now have suspected PCOS. I have a constant bloated stomach - I've seen loads online about rheal superfoods
FIBROIDGIRL
in
Endometriosis UK
9 months ago
Blood test to DL and PMRpro
ESR 26.00- range 0.00-30.00 C-reactive protein 0.70- range 0.00-0.99
ESR 26.00- range 0.00-30.00 C-reactive protein 0.70- range 0.00-0.99
Aqua47
in
PMRGCAuk
3 months ago
Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
8 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
8 months ago
Pregnant after Prostap
Hello, please did anyone ever got pregnant after prostap? I'm about to start the monthly injection for treatment of endometriosis and quite worried since the wait list for surgery is quite far. I'll appreciate any information you have. Thank you
Hello, please did anyone ever got pregnant after prostap? I'm about to start the monthly injection for treatment of endometriosis and quite worried since the wait list for surgery is quite far. I'll appreciate any information you have. Thank you
Godliver
in
Endometriosis UK
9 months ago
finally added blood work. What’s a good % + ratio?
As suggested, I finally got round to filling in my blood work. What’s a good percentage and what’s a good ratio? Thanks TSH 5.19 mIU/L (0.35 - 5.00) 104.1% Free T4 (fT4) 12.5 pmol/L (9.00 - 22.00) 26.9% Free T3 (fT3) 4 pmol/L (2.40 - 6.00) 44.4% T4:T3 Ratio 3.125  Thyroglobulin Antbodies (TgAb) 
As suggested, I finally got round to filling in my blood work. What’s a good percentage and what’s a good ratio? Thanks TSH 5.19 mIU/L (0.35 - 5.00) 104.1% Free T4 (fT4) 12.5 pmol/L (9.00 - 22.00) 26.9% Free T3 (fT3) 4 pmol/L (2.40 - 6.00) 44.4% T4:T3 Ratio 3.125  Thyroglobulin Antbodies (TgAb) 
Jgoodwin977
in
Thyroid UK
4 months ago
Blood test results advice since starting T3
Just got my medichecks results through. Tests taken pre 9am, fasted with delayed T4 and split T3 dose as per protcol. To recap, I added 1 x 5mcg T3 for the first time about 8 weeks ago. Endo told me to reduce my thyroxine from 125 x 6/100x1 . I didnt do this, but reduced half way and have been taking
Just got my medichecks results through. Tests taken pre 9am, fasted with delayed T4 and split T3 dose as per protcol. To recap, I added 1 x 5mcg T3 for the first time about 8 weeks ago. Endo told me to reduce my thyroxine from 125 x 6/100x1 . I didnt do this, but reduced half way and have been taking
JUUJOO
in
Thyroid UK
4 months ago
Covid treatment with kidney transplant
Hi all! I have a kidney transplant since years. Currently taking 1mg Prograf twice a day, 0.5mg Cellcept twice a day and 5mg 3/4 tablet Prednisolone once a day. Before yesterday my whole body ached and I had temperature 38C. I took it down with Parcetamol and called ambulance. They've checked everything
Hi all! I have a kidney transplant since years. Currently taking 1mg Prograf twice a day, 0.5mg Cellcept twice a day and 5mg 3/4 tablet Prednisolone once a day. Before yesterday my whole body ached and I had temperature 38C. I took it down with Parcetamol and called ambulance. They've checked everything
TheLittleSquirrel
in
Kidney Transplant
4 months ago
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