Second Prostap Injection: Hi everyone... - Endometriosis UK

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Second Prostap Injection

Shellbell2023 profile image
9 Replies

Hi everyone 👋Just wanted to know your thoughts/ experiences with Prostap, I had my first injection a month ago and after the initial two weeks of feeling like I was dying, I started to improve and other than my bowel issues can honestly say that the pain has reduced, but I had my second injection yesterday and today I feel like I've been hit by a bus again, my whole body aches, I have a horrible migraine just feel generally rubbish.

Has anyone else experienced this? Does it happen after every jab? Just wanted to check if this was "normal" or if I'm reacting badly to the treatment.

TIA 💛

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Shellbell2023 profile image
Shellbell2023
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9 Replies
Sunset-lady profile image
Sunset-lady

Hi, are you on addback HRT? Also were you already in peri menopause?

Shellbell2023 profile image
Shellbell2023 in reply toSunset-lady

Hi 👋 yes I am on addback HRT, but no I wasn't in peri menopause yet ( I'm only 37) 🙈

Sunset-lady profile image
Sunset-lady in reply toSunset-lady

If you are under 40 and were no where near peri then, without addback HRT these injections seem to hit hard. You have been placed into chemical menopause and its brutal. The sudden lack of estrogen will be really tough. A lot of women are put on Tibolone which is very low but helps a bit, but if you are young then I'd push for something stronger. Obviously if you were put on it for cancer then hormones are a no go, but for other issues i think the amount of estrogen in HRT is so low it's worth it, otherwise you'll stop the injections. Are you on it while you await surgery?

Shellbell2023 profile image
Shellbell2023 in reply toSunset-lady

Thanks for your advice! Glad to know it's probably normal, or as normal as endo gets lol! I am on this to confirm diagnosis/ awaiting surgery, so hopefully only a temporary measure until I get to the top of the waiting list 🤞🏻

MrsPaddingtonBear profile image
MrsPaddingtonBear

Hello

This can be normal for the first few injections. Are you on hrt add back therapy aswell? I had the same thing. I was on zoladex for 14 moths them prostap for 5 months. I had a hysterectomy in October last year. Still on the hrt patches. Keep going with it as it takes 4 months to settle. Hopefully this Friday I get signed off from the hospital after 20 years! Best of luck to you.

Shellbell2023 profile image
Shellbell2023 in reply toMrsPaddingtonBear

Thank you! Glad to know it's probably normal, it was just a shock to the system as I had started to feel a bit better recently and then it felt like I had taken two steps backwards the last could of days. Good luck for Friday 🥳

Rainbow2468 profile image
Rainbow2468

Hi I've had six so far, the first month I had bleeding for three weeks, and now and again I feel a little sick, but I have ibs, so it might just be that. But there than a few hot flushes or night sweats, no issues at all. But I am peri menopausal. Hope things settle down for the you. Sending a big hug too x

Shellbell2023 profile image
Shellbell2023 in reply toRainbow2468

Thanks so much for your reply, I have luckily just had an appointment letter through to go and see my consultant at the end of the month so I can tell him all of this and find out if it is normal or not!

Rainbow2468 profile image
Rainbow2468 in reply toShellbell2023

That is good news I hope you get things sorted out, as it's not nice to be suffering the way we are. Have a peaceful day x

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