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Kaiser Fresno has stopped prescribing Xtandi, even for people midstream with it. they are switching over to xytega and prednisone.
just what it says. I went to renew my monthly , extremely effective , Xtandi a couple of days ago and today I’ve been told that my Xtandi prescription has been canceled, and I see on my prescriptions list, Zytiga and prednisone. Never a single word from anybody about this for anything. Basically I’m
just what it says. I went to renew my monthly , extremely effective , Xtandi a couple of days ago and today I’ve been told that my Xtandi prescription has been canceled, and I see on my prescriptions list, Zytiga and prednisone. Never a single word from anybody about this for anything. Basically I’m
Kaliber
in
Advanced Prostate Cancer
4 months ago
Dose change - feeling AWFUL
As per my previous post, my TSH was over 4 on 50mcg, so I did a week on 62.5mcg and now a few days on 75mcg. I feel terrible. So tired, weak, muscles ache, headaches. I’m still on the Wockhardt brand as it suits me best. I read somewhere this can happen if your cortisol is low. I had low 9am readings
As per my previous post, my TSH was over 4 on 50mcg, so I did a week on 62.5mcg and now a few days on 75mcg. I feel terrible. So tired, weak, muscles ache, headaches. I’m still on the Wockhardt brand as it suits me best. I read somewhere this can happen if your cortisol is low. I had low 9am readings
RoseStar
in
Thyroid UK
3 months ago
BAT and Pluvicto?
Did well on Zoladex and Apalutimide for 2 1/2 yrs. with Mets to bones. Cancer has now spread to liver and pelvic lymph nodes. Docetaxel has failed and I am now waiting to hear if insurance will cover Pluvicto. Any thoughts on starting BAT now in case Pluvicto doesn’t happen? Can you do both at the
Did well on Zoladex and Apalutimide for 2 1/2 yrs. with Mets to bones. Cancer has now spread to liver and pelvic lymph nodes. Docetaxel has failed and I am now waiting to hear if insurance will cover Pluvicto. Any thoughts on starting BAT now in case Pluvicto doesn’t happen? Can you do both at the
Vinny59
in
Advanced Prostate Cancer
4 months ago
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Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
3 months ago
Prednisone and kidneys
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
Charlotteab
in
PMRGCAuk
3 months ago
Exciting!
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
CymaBay Submits New Drug Application to FDA for Seladelpar for the Treatment of Primary Biliary Cholangitis December 15, 2023 8:00am EST Download as PDF - NDA is supported by data evaluating seladelpar efficacy and safety in over 500 patients - - Seladelpar is the first New Drug Application from
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
reasons for bad balance/dizzziness
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
I have identified 5 possible reasons for dizziness/lack of balance. 1. decreasing rasagiline too quickly 2. too much carbidopa 3. nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+rytary) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort
pmmargo
in
Cure Parkinson's
3 months ago
CRISPR: promising in vitro but I can barely understand it!
In Vitro Prostate Cancer Treatment via CRISPR-Cas9 Gene Editing Facilitated by Polyethyleneimine-Derived Graphene Quantum Dots. https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/148829-in-vitro-prostate-cancer-treatment-via-crispr-cas9-gene-editing-facilitated-by-polyethyleneimine-derived-graphene-quantum-dots.html
In Vitro Prostate Cancer Treatment via CRISPR-Cas9 Gene Editing Facilitated by Polyethyleneimine-Derived Graphene Quantum Dots. https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/148829-in-vitro-prostate-cancer-treatment-via-crispr-cas9-gene-editing-facilitated-by-polyethyleneimine-derived-graphene-quantum-dots.html
Maxone73
in
Advanced Prostate Cancer
4 months ago
adrenal crisis?
i have been on pred for almost 3 years trying to wean myself off. i never seem to get below 8mgs until the symptoms return. i found that having half my dosage early in the morning really helped so thanks for that advice. i now have managed to reduce to 6mgs. and was beginning to congratulate myself.
i have been on pred for almost 3 years trying to wean myself off. i never seem to get below 8mgs until the symptoms return. i found that having half my dosage early in the morning really helped so thanks for that advice. i now have managed to reduce to 6mgs. and was beginning to congratulate myself.
Reclus
in
PMRGCAuk
3 months ago
Luteolin, ellagic acid and punicic acid and prostate cancer metastasis
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
85745
in
Advanced Prostate Cancer
3 months ago
Does ADT work for Gleason 9?
About to start ADT for Gleason 9 (5+4) for locally advanced prostate cancer, followed by IMRT in 1-2 months. (Plan to ask about HDR boost). PSMA Pet negative for spread but MO had another radiologist look at initial prostate MRI suggests extracapsular extension along neurovascular bundle with possible
About to start ADT for Gleason 9 (5+4) for locally advanced prostate cancer, followed by IMRT in 1-2 months. (Plan to ask about HDR boost). PSMA Pet negative for spread but MO had another radiologist look at initial prostate MRI suggests extracapsular extension along neurovascular bundle with possible
Hope49823
in
Advanced Prostate Cancer
4 months ago
Specialist appointment
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Hi I was diagnosed with compensated cirrhosis in August last year and ended up in ICU for due to contracting sepsis while being admitted to hospital and as such had intensive care for sepsis and lmy liver. I have had 2 visits to the specialist luver nurse and was reassessed to compensated irrhodis
Oasisman
in
British Liver Trust
3 months ago
Graves disease and Pregnancy
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Hi guys, so I was diagnosed with graves disease causing hyperthyroidism and celiac disease in June last year. I have been on 40mg carbimazole per day and 80mg propanalol per day since. I had a consultation with my endocrinologist yesterday, she has now reduced my dose to 30mg carbimazole per day. I expressed
Candice197
in
Thyroid UK
3 months ago
declining psa #6
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Nfler
in
Advanced Prostate Cancer
7 months ago
Post Transplant Fatigue
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Dawnejoy
in
British Liver Trust
3 months ago
KIDNEY EQUITY FOR ALL
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
JackieJ_NKF
Partner
in
Kidney Dialysis
3 months ago
Options when Docetaxel stops working
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
Hi everyone- My brother was diagnosed with stage 4 prostate cancer in April of 2021. His PSA was 52 at the time of his diagnosis. He went on Lupron and Abiraterone which took his PSA to .03 and kept it low until Oct 2022. It went to 8.9 and his doctor put him on Docetaxel chemo. His PSA has continued
TerryR123
in
Advanced Prostate Cancer
7 months ago
letter received from gastro
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Sophia1968
in
British Liver Trust
3 months ago
LIVER TEST panel results GGT ALT ALP BILIRUBIN
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Pulsar25
in
British Liver Trust
3 months ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
3 months ago
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