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GCA diagnostic dilemma
Thank you everyone who has helped so far. Last night I had a message from Rheumy saying I should go to the hospital for an emergency biopsy, with the headache and unusual severe temporal pain being the driver. He said that U/S was so ‘operator sensitive’ as to be unreliable in this ‘locality’. The
Thank you everyone who has helped so far. Last night I had a message from Rheumy saying I should go to the hospital for an emergency biopsy, with the headache and unusual severe temporal pain being the driver. He said that U/S was so ‘operator sensitive’ as to be unreliable in this ‘locality’. The
Predderman2020
in
PMRGCAuk
6 months ago
RT results look good
After a bout of sepsis from a directed biopsy, 5 weeks of RT and 3 months of Eligard, my tests show undetectable PSA. I'm still dealing with side effects (interrupted sleep, urinary and bowel differences) but happy to report it looks like, for the time being, that my stage 2/3 PC may have been beaten
After a bout of sepsis from a directed biopsy, 5 weeks of RT and 3 months of Eligard, my tests show undetectable PSA. I'm still dealing with side effects (interrupted sleep, urinary and bowel differences) but happy to report it looks like, for the time being, that my stage 2/3 PC may have been beaten
Eadgbe
in
Fight Prostate Cancer
4 months ago
The Shelagh Cheesman Lupus Information Day - 16th March
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
The Cambridgeshire Lupus Group will be hosting an Information Day on Saturday 16th March, in memory of Shelagh Cheesman, who died as a result of cancer in March 2018. To register for your free ticket, please visit - https://lupusuk.org.uk/shelagh-cheesman-lupus-day/ If you have any questions, please
michaellasmith
Administrator
in
LUPUS UK
3 months ago
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PSA 6 months after RT
Here is a review of a presentationby Dr. Ravi at ASCO 2023, regarding measuring the PSA at 6 months post radiation treatment, for all risk groups. He found that the 6-month post-RT PSA was highly prognostic of 5- and 10-year rates of metastasis free survival (MFS), Overall Survival (OS), and prostate
Here is a review of a presentationby Dr. Ravi at ASCO 2023, regarding measuring the PSA at 6 months post radiation treatment, for all risk groups. He found that the 6-month post-RT PSA was highly prognostic of 5- and 10-year rates of metastasis free survival (MFS), Overall Survival (OS), and prostate
janebob99
in
Prostate Cancer Network
4 months ago
lupus and surgery
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
hi my name is Diana I have lupus and I am looking to do a hip dip and bum filler. I and on medication my lupus is topical it only affects my skin making it really dry and also my scalp really dry. I am on medication once a day It only affects my skins in the sun here in the uk but not when I’m home
Shawna3g
in
LUPUS UK
3 months ago
Spontaneous Subdural Hematoma
I am 58 years old. A few months I started to develop headaches and neck pain that gradually increased in severity. I eventually went to the ER and was diagnosed with a minor subdural hematoma (SDH) based upon a CT Scan and was sent home for follow-up with a neurosurgeon. I have had no recent head
I am 58 years old. A few months I started to develop headaches and neck pain that gradually increased in severity. I eventually went to the ER and was diagnosed with a minor subdural hematoma (SDH) based upon a CT Scan and was sent home for follow-up with a neurosurgeon. I have had no recent head
TWF64
in
Headway
6 months ago
LIQUID BIOPSY: Hello friends, what do you know about Liquid biopsy of circulating tumor ctDNA? Is it usefull with 6.2 PSA ?
Hello friends, what do you know about Liquid biopsy of circulating tumor ctDNA? Is it usefull with 6.2 PSA ? Depending on the results do we get access to some novel drugs like olapariv or nivolumab, etc, that might help us ? 🫠thanks, Manilo.
Hello friends, what do you know about Liquid biopsy of circulating tumor ctDNA? Is it usefull with 6.2 PSA ? Depending on the results do we get access to some novel drugs like olapariv or nivolumab, etc, that might help us ? 🫠thanks, Manilo.
Manilo
in
Advanced Prostate Cancer
4 months ago
Need inputs
Patient 68yrs, male, bedridden for 2 years because of metastatic cord compression from advacnced(stage 4) prostate cancer. Taking Zolodex 10.8 every 3 months for last 2 years with some regular tablets like hypertension, multivitamins etc. First time in 2 years PSA is starting to go up, so wanted feedback
Patient 68yrs, male, bedridden for 2 years because of metastatic cord compression from advacnced(stage 4) prostate cancer. Taking Zolodex 10.8 every 3 months for last 2 years with some regular tablets like hypertension, multivitamins etc. First time in 2 years PSA is starting to go up, so wanted feedback
MadrasMarina
in
Advanced Prostate Cancer
9 months ago
Slight PSA increase
What would you suggest? You see my history in my bio. This June I added a second disease and was diagnosed with testicle lymphoma. Testicle has been removed, all tests (bone biopsy, lumbar puncture, Pet/CT) are clear. So well do four cycles of R-CHOP chemo and doctors are confident, that this will cure
What would you suggest? You see my history in my bio. This June I added a second disease and was diagnosed with testicle lymphoma. Testicle has been removed, all tests (bone biopsy, lumbar puncture, Pet/CT) are clear. So well do four cycles of R-CHOP chemo and doctors are confident, that this will cure
Nusch
in
Advanced Prostate Cancer
9 months ago
Testosterone was nearly back to normal, then dropped
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
Teddy28
in
Advanced Prostate Cancer
4 months ago
Thyroid scan
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Clinical Indication: croaky voice, underactive thyroid Findings: Patient highlights known Hashimoto's. The thyroid is atrophic and hypoechoic in keeping with end stage diffuse thyroid disease. It has an overall volume of 2.1 cc; the right lobe has a volume of 1.3 cc, while the left a volume of
Flick9
in
Thyroid UK
3 months ago
Alive at Five
Dx Stage IV metastatic PCa with distant metastices to bones and para-aortic lymph node string on July 2, 2018. Still HS and on a year + medication holiday, PSA undetectable. Initially told I had 18 months to live! 🙏
Dx Stage IV metastatic PCa with distant metastices to bones and para-aortic lymph node string on July 2, 2018. Still HS and on a year + medication holiday, PSA undetectable. Initially told I had 18 months to live! 🙏
6357axbz
in
Advanced Prostate Cancer
10 months ago
levothyroxine induced lupus erythematosus?
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Hiya, I am fairly new to all this, I have been on Levothryroxine for Hypothyroid (Hashimoto’s disease.) since June. My initial symptoms started after my first covid infection. All was going well until November time when I started to develop a Malar rash in the classic butterfly shape on my face. I don
Baker16
in
Thyroid UK
3 months ago
⏰Do you have 15 minutes to spare?⏰
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
21 hours ago
Another experience proving we are all different
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
I had mentioned in a couple of my answers to posts in the group that I had been episode free for over a year, and suddenly I had two back to back episodes of AF. i didn’t remember doing anything different and in fact did not have any alcohol that day or for several days so not drinking anything can
Peacefulneedshelp
in
Atrial Fibrillation Support
21 hours ago
I Too Have Persistent Afib
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
I too am in persistent afib (Bradycardia) with no symptoms. I was taking Amiodarone medication which caused internal bleeding. The result was blood in my urine. My cardiologist switched me to Eliquis medication, 5mg at 10AM and 10PM and I no longer have blood in my urine and my Bradycardia is under
theluckyone
in
Atrial Fibrillation Support
24 hours ago
Benefit of coherent breathing
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with moderate Aortic Stenosis. A symptom of Aortic Stenosis can be arrythmia. I was told that my condition would deteriorate and so regularly monitored
PhilFreeToAsk
in
PMRGCAuk
1 day ago
HF ongoing issues
Hi, Had a 2 lead pacemaker fitted cpl of years ago after pace n ablate, have total heart block so paced 100% since then I have been diagnosed with heart failure with echo showing left ventricular dysfunction and a EF of <40% I'm also in AF. HF nurse has prescribed meds and currently on Bisoprolol 1.25mg
Hi, Had a 2 lead pacemaker fitted cpl of years ago after pace n ablate, have total heart block so paced 100% since then I have been diagnosed with heart failure with echo showing left ventricular dysfunction and a EF of <40% I'm also in AF. HF nurse has prescribed meds and currently on Bisoprolol 1.25mg
Nomis21
in
Atrial Fibrillation Support
1 day ago
Low BP
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been suggested as doesn't lower BP.
Fishie1
in
Scleroderma & Raynaud's UK (SRUK)
4 days ago
⏰Do you have 15 minutes to spare?⏰
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
🌟 PARTICIPATE IN A RESEARCH STUDY EXPLORING THE CONNECTIONS BETWEEN PVCS 🫀, MENTAL WELL-BEING 🧠, HEALTH BEHAVIOURS🚶♂️, AND QUALITY OF LIFE! 🌟 🔍 What's Involved? 🔍 Complete two online surveys on Qualtrics. The first is a 15-minute exploration of your PVC journey; the second is a quick 5-minute
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
7 days ago
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