Experiences with

Prostate disease

I have been just been diagnosed with ‘PMR onset Rheumatoid arthritis.’ I was put on 15mg steroids initially, which was increased to 20mg after 3 weeks as still in so much pain, and also added in 15mg s/c Methotrexate. I’m still confused by the diagnosis as I had no previous history of PMR! I had all

My Dads new oncologist switched his steroid from prednisolone to dexamethasone - she was distressed at first appointment to see he was on zytiga and prednisolone. She said research pretty clear that dexamethasone is better. On today's PSA results she is clearly correct. We thought that he had become

I am wondering if anyone with PMR and/or GCA (both of which I've got/had) has also been diagnosed with anaemia. I notice that Pernicious Anaemia is another autoimmune condition. My GP called me in as my monthly blood tests had suggested I might have anaemia. He's running more tests but of course I'm

Hi All, I recently posted with my situation and have a follow-up (final I hope) with Dr. Gorovets at MSK to finalize my non-surgical treatment plan. Just looking for any input, thoughts, advice. Greatly appreciated as always. I'm 60, GS 4+3, PSA 5.5, Decipher .55, clean PSMA Pet (full details in

Question: Will adding Erleada , already taking these 2 drugs (not counting dexa) Abiraterone plus dexa and Quartely lupron injections increase overall survival? triplet, Right now treatment is Abi & Lupron. I'm high volume metastatic. Slowly rising PSA as of July 1.2. When PSA over 2 or fast doubling

Hello, I hope all are well. Reposting as I've finally managed to secure my bloodtest results as a system issue between hospital pathology and patient access.. I'm still under the local Endocrine consultant, finding the right dose of liothyronine. My last amendment saw my dose decreased from 60 mcg

My bio illustrates my long 19 year journey with this disease. I turned out to be a great candidate for Pluvicto. All was going well. After cycle 3, a PSMA-PET showed all but one metastases were receding or dead. My PSA before cycle 4 was 17.7. My PSA before cycle 5 was 33.15. Due to the fast increase

Hi everyone,I am a bit lost about what is happening and doctors do not seem to give clear answers. My mum has been on Dialysis for a few years and suddenly recently she started having a high temperature after dialysis which disappears the day after but comes back after another dialysis again. She has

Do people suffer with burning pain, a bit like IBS pain, but more constant and burning anywhere across the abdomen. I am still awaiting tests to confirm PA, but I know I have a very high pH, so almost no stomach acid, which is obviously causing the pain. I eat a varied diet, not much in the way of processed

Hallo everyone. I want to start form little story. According to my nephrologist I have CKD because of genetical legacy. And it seems to be true. My sister had a similar diagnosis. In her's 23 she went to PD. It was in middle 2000's, local dialysis treatment was not so developed as now. She needed

I’m on 200 Levothyroxine and just had a blood test. It’s out of range again. I’ve developed bad joint pains in pretty much all joints and it’s got progressively worse. In addition I’m getting cold hands and feet with pins and needles that also is causing pain. Felt very dizzy last week and ended up

I wrote this in response to a post that seems to have disappeared This is one of the most important post topics on this board. [i] In another large, phase 3 clinical trial funded by Movember, Chan and epidemiologists Stacey Kenfield and Lorelei Mucci, with principal investigators Rob Newton and

Hello Everyone, This is about my Father, he was on Nubeqa and Eligard shot for last two years. His PSA started going up again and his pains also started. His medical oncologist changed his Oral drug to Zytiga with prednisone. He is told not to eat anything two hours before and one hour after Zytiga

I've had an underactive thyroid for 20 years, lm on 100mg thyroxine but last years and this years test show lm abnormal readings of TSH level 0.35 - 5.5, should my dose be increased as my health this year feels dreadful hair falling out, extreme fatigue and other bloods this test have affected my liver

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Hello ,Has anyone noticed that there now appears to be no reference to UCTD on the Lupus uk website. Spoke to someone there today who had heard of UCTD but didn't know what it was? And only talked about MCTD? Is UCTD still a recognised lupus connected diagnosis?

does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.

At the same time as being diagnosed with rheumatoid arthritis, I started getting sharp pain and swelling in the joints closest to finger tips. I was told this is osteoarthritis (while it is also acknowledged that RA can affect any joint). The pain is getting worse and I expect that if I do contact my

I started having small fiber neuropathy several years ago after being exposed to Lyme and Mold. Spent a lot of time treating with herbs to put both into remission, but I still deal with the small fiber neuropathy in my feet, my lips have a blue tinge to them as to the moons on my thumb nails. I just

My Dad (77) was diagnosed in the spring with stage 4 prostate cancer, Gleason 10 with mets to spine. He has since started hormone therapy and had radiation to his prostate. Recent scan showed a mass on the pancreas which came as a big surprise as the radiation had shrunk the mets on his spine and his