Experiences with

Prostate disease

I haven't posted on here for a while but I feel the need to today. My dearest friend has liver cirrhosis diagnosed almost 3 years ago. He went for a fibro scan yesterday and he now has fluid build up around his liver. His spleen is also enlarged. Once this starts to accumulate is it downhill from here

Morning everyone, I haven't posted in a few weeks, but want to say how comforting I find it to read posts and the very knowledgeable replies (I'm thinking of you Katy! ) I spoke to one of the liver nurses a couple weeks ago and she was a total saint and gave me so many practical tips. It's my husband

I am trying to help my son. Many years ago he was diagnosed with Crohns disease and over the years has had extensive abdominal surgery. He now has a stoma bag. At present he is taking 1000mcg of b12 but I have recently read that he needs at least 2000 mcg! He is constantly feeling unwell! I would

Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because

If I’m lucky I’ll soon be facing a decision as to which salvage treatment to have for radiorecurreent PCa. By lucky I mean that if upcoming tests show no spread outside of the prostate and I’m a candidate for salvage treatment. The salvage treatments I’m considering are SBRT, Brachytherapy and Cryotherapy

Hello I am being treated for renal-limited vasculitis from p-ANCA, MPO. eGFR has improved from 23 to 56 over last three months. So many lifestyle and dietary changes implemented. Now I start to miss my weekend beer or two. I get mixed messages from the doctors and internet searches on whether ok

Hi I have my first appointment with a consultant in Edinburgh to confirm my diagnosis of 'Probable Cirrhosis' on the 4th October. I was diagnosed via blood tests and scans, that I have alcohol related liver disease. I stopped drinking 5 months ago and have seen a great improvement in my general well

I have been taking hormone therapy for the diagnosis of non-metastatic castrate-resistant prostate cancer for 10 years.

I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it down. Last November I was diagnosed, via kidney biopsy, with something called MGRS (monoclonal gammopathy of renal significance). The illness

I am a 29 year old female with Graves Disease and have recently been diagnosed with a thyroid nodule with a-typical cells. I have previously had thyroid eye disease when first diagnosed 4 years ago although this appears okay now. I have experienced 2 relapses, however I am currently on 5mg carbimozole

Hi All. This is my first post. I had a fibroscan back in July and the nurse who performed it told me I had high-level F3, possibly creeping into F4. I’ve been referred to the Cirrosis Surveillance Team at my local hospital, but my first appointment isn’t until the middle of October. I’ve done a lot of

Has anyone had cirrhosis from Hep C, portal hypertension, enlarged spleen, diabetes. All these diagnoses have my anxiety at a high level.

I have been on Zanubrutinib for four years and my blood results are normal. In the last month, I have been urinating blood and CT scans show kidney stones. Does anyone know if Zanubrutinib contributes to stones?

Does anyone use this blood test, instead of or in conjunction with a Protime, to monitor their level of anti-coagulation? Successful? Many thanks for your responses.

Hello everyone I am here to share my story of my mother who lost her battle to sepsis and chronic kidney disease. It was painful to watch her lying on the ICU bed and with ventilator. I lost her on the 18th of April 2024. My heart cannot accept the fact that I have lost her and she is no more with me

Diagnosed with cirrhosis in2022 from hepatitis C. Got treatment for the hepatitis and cured. Now it’s every 6 months of scans and bloodwork with is always said to be stable. This month the scan showed severe enlarged spleen most likely due to increased portal hypertension. Went from 1 to1.3cm. Still

Dad , 83 , has started on 80 mg of xtandi recently. Seems to be tolerating it ok , except some tiredness. i had showed two doctors - one said to do 80 mg for a month or two and then we will take a call if to increase it . The other doctor said to scale up to 160 mg soon. Has anyone here being

after worrying about my husband’s fibroscan today, all went well. He was told he has no scarring on his liver and just a little bit of fat (she said to be expected with almost 79 year old). Re his high blood reading (ELF 9.8) the grapher also said that levels can fluctuate and his one high reading

hi everybody, my EP reassured me that my chad’s score was 0 so an AC was not needed . I’ve now read something that has concerned me , if an episode lasts for more than 24 hrs a clot can form and a stroke may follow. my longest episode was 18 hrs and now I’m worried if I get a 24 hr episode I could

Hi everyone. Hope you are all well. I have Cirrhosis of the liver and after a review with my consultant 2 weeks ago we stopped my spironolactone. Everything seemed fine, kept and eye on weight as was told and between Saturday and Sunday I suddenly gained 4 pounds. On Friday I had root canal treatment