Search
Search
About
Log in
Join
Experiences with
Prostate disease
Read more...
Posts
Communities
55,342 public posts
Filter results
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
1 month ago
2nd Dose at Sarah Cannon Research
Morning folks, Finishing second dose of XmAb808 and all is well so far. Blood work looks good and have to wait four hours post dose. On Cipro for UTI and that is better too Let’s kill those cancer cells
Morning folks, Finishing second dose of XmAb808 and all is well so far. Blood work looks good and have to wait four hours post dose. On Cipro for UTI and that is better too Let’s kill those cancer cells
Pmann
in
Advanced Prostate Cancer
1 month ago
Acute kidney failure - creatinine is climbing
My hubby's treatment is venetoclax and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day. We just saw a Renal Specialist Dr and she said that they really don't know the full extent
My hubby's treatment is venetoclax and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day. We just saw a Renal Specialist Dr and she said that they really don't know the full extent
spi3
in
CLL Support
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
High serum creatinine
Hi im in a panic dr has worried me my serum creatinine is 97.....states on my result kidney trauma. Another test next week but now so stressed. Anyone else had this plz.
Hi im in a panic dr has worried me my serum creatinine is 97.....states on my result kidney trauma. Another test next week but now so stressed. Anyone else had this plz.
Ninnin67
in
NRAS
1 month ago
Progress?
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Starlight79
in
British Liver Trust
1 month ago
Feeling sick after HD (advice for my dad)
Hello! My dad (72) has been on HD for two years* now. Lately, he often finds that his blood pressure drops and he feels sick after he's returned home from dialysis, even if he feels okay during treatment. He says the clinic staff watches his BP closely as well as the amount of fluid they're removing
Hello! My dad (72) has been on HD for two years* now. Lately, he often finds that his blood pressure drops and he feels sick after he's returned home from dialysis, even if he feels okay during treatment. He says the clinic staff watches his BP closely as well as the amount of fluid they're removing
Agnes_Fleming
in
Kidney Dialysis
1 month ago
ADT Holiday?
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
I'm posting for my husband. Gleason 9, cdk12, reoccurrence 18 months after RP. Scans cancer in lymph node and possibly sternum. Had radiation and 2 successful years of Orgovyx and Zytiga. Dr says he can take a holiday from meds but my husband is concerned that the cancer will return without meds
RunnerBiker
in
Advanced Prostate Cancer
3 months ago
Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
1 month ago
Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
1 month ago
Wednesday Word
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
How to control thirst to avoid Fluid overload
Hi Friends My mother is on Maintenance Haemodialysis thrice a week since 4 months. She is now adjusted to this process. As she lives in the tropical country, in the summer season it will be difficult for her to limit the fluid intake. Can any one advice how to control the thirst to limit fluid intake
Hi Friends My mother is on Maintenance Haemodialysis thrice a week since 4 months. She is now adjusted to this process. As she lives in the tropical country, in the summer season it will be difficult for her to limit the fluid intake. Can any one advice how to control the thirst to limit fluid intake
Mentoslfc
in
Dialysis Support
1 month ago
always question
Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it. Some of you reached out to The PBC Foundation (as did I) to just make sure it was 'for real'. I am just as hopeful that when any of you don't feel the care you receive
Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it. Some of you reached out to The PBC Foundation (as did I) to just make sure it was 'for real'. I am just as hopeful that when any of you don't feel the care you receive
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Cortisol test
Result of morning cortisal test was 131 which is rubbish (range 102-535) and explains why I feel exhausted some days. Have been on 3mg for several weeks. Looks like it’s a Synacthen test next. Thanks PMRpro for the info on that. Is the experience ok anyone out there who’s had one?
Result of morning cortisal test was 131 which is rubbish (range 102-535) and explains why I feel exhausted some days. Have been on 3mg for several weeks. Looks like it’s a Synacthen test next. Thanks PMRpro for the info on that. Is the experience ok anyone out there who’s had one?
Bluey-1
in
PMRGCAuk
1 month ago
degarelix v/s eligard "lupron"
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
my baseline psa was1316 with a elevated alkaline phosphatase of 270 12/2021 , on 01/13/2021 my psa had risen to 1665 to avoid a further psa spike I was given a loading dose of 240 mg of degarelix followed by 80 mg every 28 days for 18months then for 3 mouths this last summer a three month dose of
yardsailor
in
Advanced Prostate Cancer
7 months ago
Nicotine patches vs gum.
if you’re not aware, I’ve been experimenting with the nicotine patch. I found that it’s too much. I wonder if that why the trial failed. I found a couple pieces of gum, 3-4 a day as needed better. I will soon be off meds. They never really worked that good anyway. Nicotine works just as good if not
if you’re not aware, I’ve been experimenting with the nicotine patch. I found that it’s too much. I wonder if that why the trial failed. I found a couple pieces of gum, 3-4 a day as needed better. I will soon be off meds. They never really worked that good anyway. Nicotine works just as good if not
38yroldmale
in
Cure Parkinson's
1 month ago
help with thyroid pain
hello I have realy sensitive and painful thyroid , my y throat hurts to touch and even when I walk and breath in vibrations hurt it , I get realy week legs and feel like my blood pressure is dropping feel awful have this feeling all the time , but throat lasts for ages comes and goes ? Effects my stomach
hello I have realy sensitive and painful thyroid , my y throat hurts to touch and even when I walk and breath in vibrations hurt it , I get realy week legs and feel like my blood pressure is dropping feel awful have this feeling all the time , but throat lasts for ages comes and goes ? Effects my stomach
Prosecco1997
in
Thyroid UK
1 month ago
Is it just me?
Wondering if anyone else isn't sold on the concept of taking a sledgehammer to the immune system to treat RRMS. I am looking forward to these meds finishing clinical trials: * Vidofludimus calcium [It's both anti-EBV and neuroprotective effect] (Link: https://multiplesclerosisnewstoday.com
Wondering if anyone else isn't sold on the concept of taking a sledgehammer to the immune system to treat RRMS. I am looking forward to these meds finishing clinical trials: * Vidofludimus calcium [It's both anti-EBV and neuroprotective effect] (Link: https://multiplesclerosisnewstoday.com
By-Design-1000
in
My MSAA Community
1 month ago
b12 liver stores
Hi everyone, Just a quick question for those of us with PA. When we have b12 loading doses I have read this replenishes liver stores. Can anyone tell me does this b12 always successfully make it into the liver stores? I ask because my body does not reflect this. Loading doses did nothing to alleaviate
Hi everyone, Just a quick question for those of us with PA. When we have b12 loading doses I have read this replenishes liver stores. Can anyone tell me does this b12 always successfully make it into the liver stores? I ask because my body does not reflect this. Loading doses did nothing to alleaviate
brenanddave
in
Pernicious Anaemia Society
1 month ago
Ultrasound/Biopsy show cirrhosis, but fibroscan score is 7.4
I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, because of my biopsy and ultrasound results. A recent fibroscan score was 7.4, which is fibrosis. Although some parts of the fibroscan were as high as 8. Can someone explain this? My dr. was very vague in his explanation. Thank
I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, because of my biopsy and ultrasound results. A recent fibroscan score was 7.4, which is fibrosis. Although some parts of the fibroscan were as high as 8. Can someone explain this? My dr. was very vague in his explanation. Thank
Danteskid
in
PBC Foundation
1 month ago
OsteoDex: for mCRPC bone metastasis!
clinical trials are going well, and results are better than with zometa or Denosumab! https://mb.cision.com/Main/11652/3853506/2358495.pdf
clinical trials are going well, and results are better than with zometa or Denosumab! https://mb.cision.com/Main/11652/3853506/2358495.pdf
Maxone73
in
Advanced Prostate Cancer
3 months ago
1
...
29
30
31
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
12726 results
Thyroid UK
5628 results
British Liver Trust
4425 results
View top 10 communities
Sort by
Most Relevant
Newest