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Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
6 months ago
MRI scanning could lead to major cut in prostate cancer deaths, finds UK study
Snippits: “The UK prostate cancer mortality rate is twice as high as in countries like the US or Spain because our levels of testing are much lower than other countries". “The well-known limitations of the old PSA-based screening studies of overdiagnosis and linked overtreatment are increasingly
Snippits: “The UK prostate cancer mortality rate is twice as high as in countries like the US or Spain because our levels of testing are much lower than other countries". “The well-known limitations of the old PSA-based screening studies of overdiagnosis and linked overtreatment are increasingly
PSAed
in
Advanced Prostate Cancer
9 months ago
Triplet Therapy
Hi all...had another meeting with Urologist after he presented my case to the Tumor Board. (50yrs old male, gleason 9, 2 mets) The outcome from that is they think I am great candidate for triplet therapy. I recall in my initial post about being diagnosed that triplet therapy was mentioned alot.
Hi all...had another meeting with Urologist after he presented my case to the Tumor Board. (50yrs old male, gleason 9, 2 mets) The outcome from that is they think I am great candidate for triplet therapy. I recall in my initial post about being diagnosed that triplet therapy was mentioned alot.
Yzinger
in
Advanced Prostate Cancer
9 months ago
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QoL got Sunshine on a cloudy day, PSA update, and added two to the Memorial List :-(
Hey y'all, Sad news - a pt, the G'Pa of a lady who's a pt/ex worker, passed from PCa and so did a gent from HU 🙏. Both passed in Dec and I'm attending my pt's Service this Sat. Sat am did 7 miles up here (Doing the 28 mile Make a Wish event in May) and there were cool maybe Lenticular clouds? Then
Hey y'all, Sad news - a pt, the G'Pa of a lady who's a pt/ex worker, passed from PCa and so did a gent from HU 🙏. Both passed in Dec and I'm attending my pt's Service this Sat. Sat am did 7 miles up here (Doing the 28 mile Make a Wish event in May) and there were cool maybe Lenticular clouds? Then
dockam
in
Advanced Prostate Cancer
4 months ago
PSA testing comparison question
I know that PSA results can vary, particularly if processed by different labs. Knowing this, I do have a question. Quick recap, I completed 20 rounds of radiation at UCLA with Kishan back in April of this year. At the same time, I began 6 months of ADT. Over the past few months, while getting my
I know that PSA results can vary, particularly if processed by different labs. Knowing this, I do have a question. Quick recap, I completed 20 rounds of radiation at UCLA with Kishan back in April of this year. At the same time, I began 6 months of ADT. Over the past few months, while getting my
LongevityAT
in
Advanced Prostate Cancer
8 months ago
Confused by Decipher Test
Hi all, new here. I signed up to finish reading an article and then saw these posts in an email to me. What a great resource for men with prostate cancer. My PSA went up to 4.4 and then had an MRI which showed a two suspicious lesions (PI-RADS 4 and a PI-RAD 3). Had a biopsy 3 weeks ago and it showed
Hi all, new here. I signed up to finish reading an article and then saw these posts in an email to me. What a great resource for men with prostate cancer. My PSA went up to 4.4 and then had an MRI which showed a two suspicious lesions (PI-RADS 4 and a PI-RAD 3). Had a biopsy 3 weeks ago and it showed
drzaius
in
Prostate Cancer Network
8 months ago
Biopsy results in 2 weeks - questions?
I've finally got an appointment to get the results of my prostate biopsy on Monday in 2 weeks time. It's taken quite a while. My PSA was 12 and an MRI scan showed a dodgy area on the front of the prostate. My PI-RADS score was 5. I was then booked for a biopsy which got deferred 3 times. I was told I
I've finally got an appointment to get the results of my prostate biopsy on Monday in 2 weeks time. It's taken quite a while. My PSA was 12 and an MRI scan showed a dodgy area on the front of the prostate. My PI-RADS score was 5. I was then booked for a biopsy which got deferred 3 times. I was told I
MarkS
in
Prostate Cancer Network
8 months ago
ATM gene mutation
I just received results from genetic testing that I have a ATM gene mutation. I am currently not on any meds and my last PSMA pet scan was negation. I am scheduled for a follow up PSA test mid march based on rising PSA after 5 years undetectable. Based on the ATM finding will this change any future therapy
I just received results from genetic testing that I have a ATM gene mutation. I am currently not on any meds and my last PSMA pet scan was negation. I am scheduled for a follow up PSA test mid march based on rising PSA after 5 years undetectable. Based on the ATM finding will this change any future therapy
Rfs1975
in
Advanced Prostate Cancer
4 months ago
Enzalutamide (Xtandi): Start at half standard dose to extend efficacy time span?
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
KGU1
in
Advanced Prostate Cancer
8 months ago
Radium223 has not been a success, is Enzalutamide a good next option?
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since
Stage 4 PCA for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months (PSA dropped to 0.2 then more recently rose to 58 in June '23 ). Abiraterone eventually stopped working and I was able to join Radium 223 trial. Completed 5 of 6 cycles of Radium 223, then elected to stop since
Ronnie7C
in
Advanced Prostate Cancer
9 months ago
Endo on lungs?
Hi If anyone has thoracic endo, can I ask how it was diagnosed please? I was diagnosed with stage 4 endo following laparoscopy 2 years ago. It was found on my diaphragm which would explain the near constant right sided shoulder pain I have been experiencing for years, and the breathlessness on climbing
Hi If anyone has thoracic endo, can I ask how it was diagnosed please? I was diagnosed with stage 4 endo following laparoscopy 2 years ago. It was found on my diaphragm which would explain the near constant right sided shoulder pain I have been experiencing for years, and the breathlessness on climbing
Sloany
in
Endometriosis UK
1 year ago
High-Dose Vitamin B1 / Thiamine and Fat Soluble Benfotiamine Form
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
jazj
in
Advanced Prostate Cancer
4 months ago
Which Treatment for These Biopsy Results?
I now have my biopsy results Gleason 3 + 4 ie 90% of 3 and 10% of 4 Grade 2 The consultant said it was Intermediate but at one point used the term Low intermediate. Is this latter term valid given the stats? T2a NO MO - but I am puzzled about this because although it was mostly all on the left side
I now have my biopsy results Gleason 3 + 4 ie 90% of 3 and 10% of 4 Grade 2 The consultant said it was Intermediate but at one point used the term Low intermediate. Is this latter term valid given the stats? T2a NO MO - but I am puzzled about this because although it was mostly all on the left side
Nordman
in
Advanced Prostate Cancer
4 months ago
PSA testing - time taken to separate serum
Dear AllJust wondering if there are members who can advise on if there are defined standards on how long can PSA blood samples remain within whole blood samples before they reach the end of their shelf life? I will explain that the NHS in UK have set a standard of a max time of 16 hours between the sample
Dear AllJust wondering if there are members who can advise on if there are defined standards on how long can PSA blood samples remain within whole blood samples before they reach the end of their shelf life? I will explain that the NHS in UK have set a standard of a max time of 16 hours between the sample
Wishyouwerehere
in
Prostate Cancer Network
5 months ago
What is the next step
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
old64horn
in
Advanced Prostate Cancer
5 months ago
CDK 12 mutation and Immunotherapy
Hi All, My PSA as is starting to rise on Arbi/Dexa. I have the CDK12 mutation which is apparently known to be a drug target or to predict sensitivity to Atezolizumab (Tecentriq PD-1 Checkpoint Inhibitor), hence there is open Immunotherapy trial called BoB (NCT03767075). I meet the trial doctor next
Hi All, My PSA as is starting to rise on Arbi/Dexa. I have the CDK12 mutation which is apparently known to be a drug target or to predict sensitivity to Atezolizumab (Tecentriq PD-1 Checkpoint Inhibitor), hence there is open Immunotherapy trial called BoB (NCT03767075). I meet the trial doctor next
MikeMartin
in
Advanced Prostate Cancer
5 months ago
Erectile dysfunction
Hi My first post, I think it is pretty obvious that many of us, me included, associate our self worth, status with our 'masculinity'. This may or may not be a good thing, but many, most men in fact consider themselves to be profoundly binary. They represent the '1' to a feminine '0'. When a man fails
Hi My first post, I think it is pretty obvious that many of us, me included, associate our self worth, status with our 'masculinity'. This may or may not be a good thing, but many, most men in fact consider themselves to be profoundly binary. They represent the '1' to a feminine '0'. When a man fails
Iro1
in
Sensitive Issues for Men
5 months ago
paxlovid and abiraterone
there may already be posts like this, and If there are I’m sorry, I couldn’t find them! my dad is covid positive (first time!). I read on here in the past some of you said that you can’t take paxlovid with abiraterone? He is on that, flomax and lupron. I know it’s better to take paxlovid before it
there may already be posts like this, and If there are I’m sorry, I couldn’t find them! my dad is covid positive (first time!). I read on here in the past some of you said that you can’t take paxlovid with abiraterone? He is on that, flomax and lupron. I know it’s better to take paxlovid before it
Ptripp2
in
Advanced Prostate Cancer
9 months ago
Post SBRT Day 9 - 15
Continuing my reporting on my experience after 5 SBRT treatments with focal boost, Barrigel spacer, urethral steering to try and avoid GU side effects. I am 68, in good shape, one 4+3, one 3+3, Decipher .84, PSA 7.8, PSMA PET confined to prostate, 6 months Orgovyx. Flomax started with treatment and
Continuing my reporting on my experience after 5 SBRT treatments with focal boost, Barrigel spacer, urethral steering to try and avoid GU side effects. I am 68, in good shape, one 4+3, one 3+3, Decipher .84, PSA 7.8, PSMA PET confined to prostate, 6 months Orgovyx. Flomax started with treatment and
ToolBeltZia
in
Prostate Cancer Network
5 months ago
Letting Go
If it is one thing that I have after almost 18 years of playing this game, it is a story or perhaps many stories. So Many chapters. What I am about to say may seem easy from the perspective of undetectable PSA and clear scans these past 10 years. I assure you that at the time there was nothing easy about
If it is one thing that I have after almost 18 years of playing this game, it is a story or perhaps many stories. So Many chapters. What I am about to say may seem easy from the perspective of undetectable PSA and clear scans these past 10 years. I assure you that at the time there was nothing easy about
Todd1963
in
Advanced Prostate Cancer
5 months ago
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