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need some guidance, feeling desperate..
My husband has advanced, Stage IV castration resistant prostate cancer. When he was diagnosed in May 2022 his PSA was 4700, he has widespread bone metastases. He stopped responding to Docetaxel, Pluvicto and is now not responding to Cabazitaxel, his PSA is now over 700. He is feeling good, no pain
My husband has advanced, Stage IV castration resistant prostate cancer. When he was diagnosed in May 2022 his PSA was 4700, he has widespread bone metastases. He stopped responding to Docetaxel, Pluvicto and is now not responding to Cabazitaxel, his PSA is now over 700. He is feeling good, no pain
Kiki27
in
Advanced Prostate Cancer
6 months ago
Help interpreting PMSA Pet scan
I'm more concerned with impression #1. Any thoughts on what this means? IMPRESSIONIMPRESSION: Compared to prior F18-Pylarify PET/CT dated 8/30/2022: 1. The patient is status post cholecystectomy. There is a subtle focus of increased uptake inseparable from the anterior wall of the rectum to
I'm more concerned with impression #1. Any thoughts on what this means? IMPRESSIONIMPRESSION: Compared to prior F18-Pylarify PET/CT dated 8/30/2022: 1. The patient is status post cholecystectomy. There is a subtle focus of increased uptake inseparable from the anterior wall of the rectum to
hatecancer
in
Advanced Prostate Cancer
5 months ago
PSA rising on Triplet Therapy after <18m
Hi all. Hope you are keeping your spirits high. This is a follow up to a post I made in 2022 about my father. I haven't posted since, which reflects the period of relative normalcy that followed the commencement of ADT (triplet therapy) at MSK. I want to pause to appreciate that since I know most of
Hi all. Hope you are keeping your spirits high. This is a follow up to a post I made in 2022 about my father. I haven't posted since, which reflects the period of relative normalcy that followed the commencement of ADT (triplet therapy) at MSK. I want to pause to appreciate that since I know most of
nyc_son
in
Advanced Prostate Cancer
5 months ago
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Awful day
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
MrsPaddingtonBear
in
Endometriosis UK
11 months ago
strange drop in PSA
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
kapakahi
in
Prostate Cancer Network
5 months ago
Testosterone
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
BadNews4me
in
Prostate Cancer Network
5 months ago
At what psa is PCa suspected?
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
CousinGrandpa
in
Advanced Prostate Cancer
5 months ago
6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
5 months ago
Flare
Thursday, my husband had his follow-up appointment with Oncologist. I was very alarmed at some of his blood test results. His PSA went up to 1600. Doctor said other blood work was to be expected. I researched surged in PSA and found this, The PSA flare is a well-known phenomenon. The post chemotherapy
Thursday, my husband had his follow-up appointment with Oncologist. I was very alarmed at some of his blood test results. His PSA went up to 1600. Doctor said other blood work was to be expected. I researched surged in PSA and found this, The PSA flare is a well-known phenomenon. The post chemotherapy
MsHope
in
Advanced Prostate Cancer
6 months ago
Currently in phase 1 but promising: Bispecific Antibody Programs and IL-12 Cytokine, XmAb662
early results are positive on solid tumors, including prostate https://www.pharmaceutical-technology.com/data-insights/xmab-662-xencor-metastatic-castration-resistant-prostate-cancer-mcrpc-likelihood-of-approval-2/ Thanks mhamle01 !!
early results are positive on solid tumors, including prostate https://www.pharmaceutical-technology.com/data-insights/xmab-662-xencor-metastatic-castration-resistant-prostate-cancer-mcrpc-likelihood-of-approval-2/ Thanks mhamle01 !!
Maxone73
in
Advanced Prostate Cancer
8 months ago
Good news. Hope it can help others.
Hello fellow warriors. I’m 52 , was diagnosed in July 23 with stage 4 PC , mets to bones and lymph nodes. Psa 258 , Gleason 9. Just met with my MO for latest scan results. PSA has steadily gone down, currently 0.17 . Lymph nodes are clear. Still have mets to several areas to bones but holding steady
Hello fellow warriors. I’m 52 , was diagnosed in July 23 with stage 4 PC , mets to bones and lymph nodes. Psa 258 , Gleason 9. Just met with my MO for latest scan results. PSA has steadily gone down, currently 0.17 . Lymph nodes are clear. Still have mets to several areas to bones but holding steady
BillyVolt
in
Advanced Prostate Cancer
5 months ago
Rapidly Rising PSA
without going into too much detail I was treated with SBRT for mets on my spine that showed up on a ga68 PSMA Pet scan in july 2021 I have been on Zoladex for 4 years and Xtandi for 20 months My PSA in Nov 2022 was 0.27 by Nov 2023 it was up to 2.40 and now Feb 2024 it is 5.70 Time for a PSMA
without going into too much detail I was treated with SBRT for mets on my spine that showed up on a ga68 PSMA Pet scan in july 2021 I have been on Zoladex for 4 years and Xtandi for 20 months My PSA in Nov 2022 was 0.27 by Nov 2023 it was up to 2.40 and now Feb 2024 it is 5.70 Time for a PSMA
Ian996
in
Advanced Prostate Cancer
5 months ago
One month on alternative meds only
Three pluses and one negative. Breast met is gone, prostate shrunk to near normal size, nagalase dropped from 1.55 to 1.37 . The negative is PSA jumped from 14 to 22. Which is more accurate the nagalase test or the PSA?
Three pluses and one negative. Breast met is gone, prostate shrunk to near normal size, nagalase dropped from 1.55 to 1.37 . The negative is PSA jumped from 14 to 22. Which is more accurate the nagalase test or the PSA?
agnut
in
Fight Prostate Cancer
5 months ago
High volume, advanced metastatic prostate cancer
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
lgutman
in
Advanced Prostate Cancer
5 months ago
Starting Abiraterone with CRPC
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Had prostatectomy 6 years ago. Radiation treatment twice. Been on lupron 3 + years. PSA #s low but rising rapidly. Were 0.01, 9 months ago, 0.77 a month ago, 2.1 couple days ago. Starting Abirateron with prednisone when I wake tonight so I can have coffie with toast in the morning. Been dealing with
Water327
in
Advanced Prostate Cancer
5 months ago
new and looking for resources Stage 4 metastatic. Gleason 9
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
Sunnysailor
in
Advanced Prostate Cancer
5 months ago
How Genomic Biomarkers are Shaping Treatment Decisions
Big Data and AI are powerful... https://www.urotoday.com/video-lectures/prostate-cancer-genomic-classifier/video/mediaitem/3634-deciphering-prostate-cancer-how-genomic-biomarkers-are-shaping-treatment-decisions-paul-nguyen.html
Big Data and AI are powerful... https://www.urotoday.com/video-lectures/prostate-cancer-genomic-classifier/video/mediaitem/3634-deciphering-prostate-cancer-how-genomic-biomarkers-are-shaping-treatment-decisions-paul-nguyen.html
Maxone73
in
Advanced Prostate Cancer
8 months ago
Dual Action Hormone Therapy Targeting Two Parts of Androgen Receptor for mCRPC
Phase I/II trial of masofaniten combined with enzalutamide, a novel hormonal therapy for mCRPC. Masofaniten, a first-in-class N-terminal ligand antagonist for the androgen receptor, shows promise in overcoming resistance to current hormonal therapies. Hopefully a new weapon for us!
Phase I/II trial of masofaniten combined with enzalutamide, a novel hormonal therapy for mCRPC. Masofaniten, a first-in-class N-terminal ligand antagonist for the androgen receptor, shows promise in overcoming resistance to current hormonal therapies. Hopefully a new weapon for us!
Maxone73
in
Advanced Prostate Cancer
8 months ago
My MO suspects that I am non-metastatic, castration resistant but will not approve any treatment until metastases develop.
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Balsam01
in
Advanced Prostate Cancer
6 months ago
Pinostilbene inhibits the Enz-resistant CRPC cell line by inhibiting AR variant 7
i take pterostilbene daily which pinostilbene is a metabolite of pterostilbene. in any event if you are failing on enzalutamide or any PCa warrior you probably should take pterostilbene. Below is a 2023 in-depth article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10550987/ Pinostilbene inhibits
i take pterostilbene daily which pinostilbene is a metabolite of pterostilbene. in any event if you are failing on enzalutamide or any PCa warrior you probably should take pterostilbene. Below is a 2023 in-depth article https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10550987/ Pinostilbene inhibits
KocoPr
in
Fight Prostate Cancer
8 months ago
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