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Experiences with
Primary biliary cholangitis (PBC)
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Bad mornings
As soon as I stood up out of bed this morning my heart rate shot up to 162... this is not unusual for me! Most mornings for the past year my heart rate has been doing this. I’m at my wits end with it! Everyone tells me I’m fine. I’m on 2.5 bisoprolol twice a day. All day long my heart rate is normal,
As soon as I stood up out of bed this morning my heart rate shot up to 162... this is not unusual for me! Most mornings for the past year my heart rate has been doing this. I’m at my wits end with it! Everyone tells me I’m fine. I’m on 2.5 bisoprolol twice a day. All day long my heart rate is normal,
DisneyMom3
in
Anxiety Support
6 years ago
Crazy high heart rate
As soon as I stood up out of bed this morning my heart rate shot up to 162... this is not unusual for me! Most mornings for the pay year my heart rate has been doing this. I’m at my wits end with it! Everyone tells me I’m fine. I’m on 2.5 bisoprolol twice a day. All day long my heart rate is normal,
As soon as I stood up out of bed this morning my heart rate shot up to 162... this is not unusual for me! Most mornings for the pay year my heart rate has been doing this. I’m at my wits end with it! Everyone tells me I’m fine. I’m on 2.5 bisoprolol twice a day. All day long my heart rate is normal,
DisneyMom3
in
Arrhythmia Alliance
6 years ago
Why does it take so long
As a bit of my history, I was admitted September, 2017 with decompenated cirrhosis and a meld of 42. I was considered a goner with my labs all out of whack, HE and ascites. I have been fortunate to improve greatly and now have a meld of 10 and child Pugh A. My diuretics have been stopped for 6 months
As a bit of my history, I was admitted September, 2017 with decompenated cirrhosis and a meld of 42. I was considered a goner with my labs all out of whack, HE and ascites. I have been fortunate to improve greatly and now have a meld of 10 and child Pugh A. My diuretics have been stopped for 6 months
Johnhstn
in
British Liver Trust
6 years ago
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PVCS HAS TAKEN OVER MY LIFE
I think about them everyday, talk about them everyday, and of course feel them everyday. Its been coming up to 3 months now, so hasn't been long but it has been the hardest 3 months of my life. My doctor decided to give me Xanax and I dno if that makes me more nervous, I know how serious of a drug it
I think about them everyday, talk about them everyday, and of course feel them everyday. Its been coming up to 3 months now, so hasn't been long but it has been the hardest 3 months of my life. My doctor decided to give me Xanax and I dno if that makes me more nervous, I know how serious of a drug it
Latoya13
in
Arrhythmia Alliance
6 years ago
HE
Is it normal for HE to cause this much memory loss? I literally forget everything and cannot remember what happened yesterday, blank slate, Or even what ive done today!Once I've been given rifaxamin will this improve? Currently taking 40ml lactulose twice a day but not doing anything apart from giving
Is it normal for HE to cause this much memory loss? I literally forget everything and cannot remember what happened yesterday, blank slate, Or even what ive done today!Once I've been given rifaxamin will this improve? Currently taking 40ml lactulose twice a day but not doing anything apart from giving
ktan49
in
British Liver Trust
6 years ago
muscle wastage
Hi I have cirrosis of the liver and had a grip test done 3 over the past 4 months and my average grip strength is 3.5kg in each arm which im being told is bad they havnt offered any advice on how to combat this ive upped my protein and tried swimming but i find this very difficult with the strenth in
Hi I have cirrosis of the liver and had a grip test done 3 over the past 4 months and my average grip strength is 3.5kg in each arm which im being told is bad they havnt offered any advice on how to combat this ive upped my protein and tried swimming but i find this very difficult with the strenth in
kaya12
in
British Liver Trust
6 years ago
CRT
Has anyone had a CRT device implanted to correct PVC? Ablation has not worked and I get shortness of breath just sanding up and walking 5 feet. It's also terribly uncomfortable when it starts.
Has anyone had a CRT device implanted to correct PVC? Ablation has not worked and I get shortness of breath just sanding up and walking 5 feet. It's also terribly uncomfortable when it starts.
Larry0304
in
AF Association
6 years ago
Premature Ventricular Contractions
I take Nature- Throid (dessicated pig thyroid) for Hashis. I have started to have borderline High BP and PVCs. I have a nuclear stress test scheduled. Anyone had a connection? Dropping the dose didn't help
I take Nature- Throid (dessicated pig thyroid) for Hashis. I have started to have borderline High BP and PVCs. I have a nuclear stress test scheduled. Anyone had a connection? Dropping the dose didn't help
Tink68
in
Thyroid UK
6 years ago
AFib with No Meds
Is anyone else not on meds? I was pregnant when diagnosed and refused the meds due to possible effects on the baby. It's been three years and I'm still not on meds. I am usually fine but I'm in a stressful marriage and homeschool four little ones. I don't experience any arrhythmia or flutters, but
Is anyone else not on meds? I was pregnant when diagnosed and refused the meds due to possible effects on the baby. It's been three years and I'm still not on meds. I am usually fine but I'm in a stressful marriage and homeschool four little ones. I don't experience any arrhythmia or flutters, but
Need2sleep0819
in
AF Association
6 years ago
Alcohol & pvc
I can’t seem to drink alcohol starts off runs of ectopics or could it be the bisoprolo that is not mixing well with alcohol 🍷
I can’t seem to drink alcohol starts off runs of ectopics or could it be the bisoprolo that is not mixing well with alcohol 🍷
2468abcmuk
in
Arrhythmia Alliance
6 years ago
Latest
Just got off the phone to arrythmia nurse at the Brompton, my holter monitor was mostly sinus rhythm, with rare pac's and rare pvc's, burden of 0.1%....however one run 5 beats on 29th October of broad complex tachycardia....so I'm still none the wiser, 😂😂😂😂, not sure if that's serious or not.
Just got off the phone to arrythmia nurse at the Brompton, my holter monitor was mostly sinus rhythm, with rare pac's and rare pvc's, burden of 0.1%....however one run 5 beats on 29th October of broad complex tachycardia....so I'm still none the wiser, 😂😂😂😂, not sure if that's serious or not.
Hidden
in
AF Association
6 years ago
Signed off from haematologist today.
I went to see the haematologist I was originally referred to for anaemia back in February. It was she who recognised the spider naevie and felt my enlarged liver. She referred me for a liver scan and a gastroscopy and colonoscopy which confirmed the diagnosis of cirrhosis. She said that I should still
I went to see the haematologist I was originally referred to for anaemia back in February. It was she who recognised the spider naevie and felt my enlarged liver. She referred me for a liver scan and a gastroscopy and colonoscopy which confirmed the diagnosis of cirrhosis. She said that I should still
GrandmaDylan
in
British Liver Trust
6 years ago
PVCs and aneurysm
I’ve had PVCs for some years but now a recent Echocardiogram has shown a dilation in a valve in the ascending aorta. I’m very scared this is another way of saying aneurysm. The cardiologist is arranging a CT scan, but I’m hoping someone here can shed some light on this. Has anyone got an aneurysm and
I’ve had PVCs for some years but now a recent Echocardiogram has shown a dilation in a valve in the ascending aorta. I’m very scared this is another way of saying aneurysm. The cardiologist is arranging a CT scan, but I’m hoping someone here can shed some light on this. Has anyone got an aneurysm and
Bedlington14
in
Arrhythmia Alliance
6 years ago
Lightheaded
Hi I've been getting PVCs and ectopic beats sometimes I feel lightheaded after a missed beat is that something to really worry about ? I am taking Flexanide and Verapamil regards Marty.
Hi I've been getting PVCs and ectopic beats sometimes I feel lightheaded after a missed beat is that something to really worry about ? I am taking Flexanide and Verapamil regards Marty.
Marty0001
in
Arrhythmia Alliance
6 years ago
Elevated Creatinine and BUN
I have been worried for one year that I have Cirrhosis. My Creatinine is 1.4 and my BUN is 25. I do have an autoimmune disease of Sjgorens. I've been tested for PBC ( via blood) and it is negative as well as Ultrasound and Hida Scan. All came back clear. I also have AST/ALT inversion within normal
I have been worried for one year that I have Cirrhosis. My Creatinine is 1.4 and my BUN is 25. I do have an autoimmune disease of Sjgorens. I've been tested for PBC ( via blood) and it is negative as well as Ultrasound and Hida Scan. All came back clear. I also have AST/ALT inversion within normal
Hidden
in
British Liver Trust
6 years ago
New beginnings
Hi all I'm new to this so here goes ..... July 5th 2017 I was admitted to hospital seriously ill with cirrosis of the liver and given 6 months to live.😢 That was nearly 15 months ago and I've been sober ever since not even a chocolate liquor has passed my lips 👄 I've done enough beating meself up about
Hi all I'm new to this so here goes ..... July 5th 2017 I was admitted to hospital seriously ill with cirrosis of the liver and given 6 months to live.😢 That was nearly 15 months ago and I've been sober ever since not even a chocolate liquor has passed my lips 👄 I've done enough beating meself up about
Miss_fab
in
British Liver Trust
6 years ago
Bisoprolol to verapamil.
Hi everyone. I used to be on propranaol for 13 years for SVT and pvc's however they stopped controlling the ectopics so cardiology swoped me to bisoprolol. I went up 6.25mg but didn't like them as they made me constantly tired, breathless and did not touch the ectopics. 2 days ago cardiologist swiped
Hi everyone. I used to be on propranaol for 13 years for SVT and pvc's however they stopped controlling the ectopics so cardiology swoped me to bisoprolol. I went up 6.25mg but didn't like them as they made me constantly tired, breathless and did not touch the ectopics. 2 days ago cardiologist swiped
Bmwpaul1971
in
Arrhythmia Alliance
6 years ago
Hysterectomy, Endometriosis and Estrogen
Has anyone ever had a total hysterectomy due to endometriosis and then had the enod return about a year after their hysterectomy?? Also, has anyone had low estrogen levels due to the hysterectomy but still had the endo grow back?? My issue began with a UTI that I got 10 mths following my TOTAL supracervical
Has anyone ever had a total hysterectomy due to endometriosis and then had the enod return about a year after their hysterectomy?? Also, has anyone had low estrogen levels due to the hysterectomy but still had the endo grow back?? My issue began with a UTI that I got 10 mths following my TOTAL supracervical
Pinkruby701
in
Endometriosis UK
6 years ago
liver cirrhosis
2 years ago found out that had liver cirrhosis and Hep C plus many other problems took meds and changed diet to 10 carbs or less a day and get regular bleedings for Iron over load was told Hep C was cured after 1 year after treatment still follow diet today had a test to get a liver score a little nerves
2 years ago found out that had liver cirrhosis and Hep C plus many other problems took meds and changed diet to 10 carbs or less a day and get regular bleedings for Iron over load was told Hep C was cured after 1 year after treatment still follow diet today had a test to get a liver score a little nerves
1000liver
in
British Liver Trust
6 years ago
Waking up with extremely high HR
For the last year, as soon as I open my eyes and my feet hit the floor my heart rate soars from 130- and today 186. I PANICKED. Which I know makes it worse.. I’ve been seen by a cardiologist and a EP specialist and my monitors have come back fine just some tachycardia and a few PVCs. I DONT FEEL FINE
For the last year, as soon as I open my eyes and my feet hit the floor my heart rate soars from 130- and today 186. I PANICKED. Which I know makes it worse.. I’ve been seen by a cardiologist and a EP specialist and my monitors have come back fine just some tachycardia and a few PVCs. I DONT FEEL FINE
DisneyMom3
in
Anxiety Support
6 years ago
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