New beginnings : Hi all I'm new to this... - British Liver Trust

British Liver Trust

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New beginnings

Miss_fab
Miss_fab
β€’13 Replies

Hi all I'm new to this so here goes .....

July 5th 2017 I was admitted to hospital seriously ill with cirrosis of the liver and given 6 months to live.😒

That was nearly 15 months ago and I've been sober ever since not even a chocolate liquor has passed my lips πŸ‘„

I've done enough beating meself up about the past,I'm on meds for life and left crippled with PN through my own stupidity but life goes on and I'm alive πŸ˜ƒ

My thing now is I'm piling on the pounds,I was told to but not to this extent 😲

Any tips on how to eat to make me better but not put on weight or could it be my meds? Cheers πŸ˜€

13 Replies
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Hidden
Hidden

Hi fab

What is PN please? (Its not in our glossary!)

Oh yes and welcome to this wonderful forum πŸ˜€

Miss_fab
Miss_fab in reply to Hidden

Hi Twosmiles hope you're ok x its periferal neuropathy ( posh words for nerve damage ) brought on by the liver damage x

It's mainly in my toes,feet & legs but can travel up to my fingers,arms & head.

The pain is horrendous sometimes I can't even stand to wear clothes or the weight of the bed clothes on me x

Hidden
Hidden in reply to Miss_fab

Oh dear - what a nightmare ☹️. I cant comment on weight because im on so many tablets now post tranansplant i dont know whether im coming or going - actually neither usually - I love my armchair πŸ˜€

Glad to hear about alcohol. A lot on here have had a too close relationship with A. Or B Or C (Alcohol , Booze, Cherryaid?)

All the best fab..

Miss_fab
Miss_fab in reply to Hidden

Hiya Twosmiles x its ok hun it's controlled through meds (I'd rather not take them but hey ho lol)

Aaaaw you're too kind x I'm so glad I came across this forum πŸ™‚

Your situation sounds pretty similar to mine, I’ve stacked on over 2 stone and I hate it with a vengeance

When you do discover the advice for this I am very interested to hear πŸ’• hope you are well x

Miss_fab
Miss_fab in reply to mschantelle

Hi mschanelle x I go to the hospital on Wed so any advice I get ill pass it on πŸ™‚

mschantelle
mschantelle in reply to Miss_fab

Thanks hun, I’ll watch for your posts x

Trust1
Trust1Administrator

Hi,

If you have a liver condition, there are some special considerations you may need to make in your diet to stay nutritionally well and to help to manage your condition. Some of these are specific to certain liver diseases, others relate to how advanced your liver disease is. We therefore always suggest that people should discuss their specific dietary needs with their own doctors in the first instance. The consultant may then choose to refer you on to a hospital registered dietitian for more specific guidance.

You may find our publications on 'Cirrhosis and liver disease' and 'Diet and liver disease' useful to read, but please do see your own doctors for specific diet advice.

britishlivertrust.org.uk/li...

britishlivertrust.org.uk/li...

Best wishes

Trust1

Miss_fab
Miss_fab in reply to Trust1

Hi Trust1 thank you very much for your advice x my own Dr is a bit of a idiot but I do go to the hospital on Wed πŸ™‚

What meds are you on?. hello and welcome by the way😊. As for the wretched neuropathy, check out ALA or alpha lipotic acid on line or youtube. It has stopped mine, but check with your doc first as you,re on ,meds. x

Miss_fab
Miss_fab in reply to moonbeam4

Hiya moonbeam4 xx I'm on gabapentin 1600+mg a day the doc just keeps on upping the dose πŸ™„ aswell as codiene. Oh thanks for the advice i'll check that out now if it's a vitamin i'll be fine I'll just add it to my others lol πŸ˜€

Cheers xx

Hidden
Hidden in reply to Miss_fab

Fabby - 1600 a day!! Im on 300 a day, and thats because my spine is touching spinal cord. Got to have an op when sreroids finish. So you are getting 5 times more pain killer than me - poor you, you must be really struggling. But keep on smiling, eh?

Miss_fab
Miss_fab in reply to Hidden

Yes you've got to πŸ˜€ ha if I didn't laugh I'd cry I try and control the meds myself but it's pain v brain fog them gabapentin are dangerous but do work πŸ€ͺ ha Twosmiles....or cry 😁 xx

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