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Primary biliary cholangitis (PBC)
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some of the diy solutions for riding with foot drop
so when I first started having trouble with foot drop it made keeping my feet on the recumbent pedals tough so I made little wooden pads that clipped to my pedals, they were carved to fit my feet exactly thereby cradling my foot to the pedals and was able to ride like that for several more years
so when I first started having trouble with foot drop it made keeping my feet on the recumbent pedals tough so I made little wooden pads that clipped to my pedals, they were carved to fit my feet exactly thereby cradling my foot to the pedals and was able to ride like that for several more years
Hidden
in
My MSAA Community
2 years ago
US Scan
Just had ultrasound scan and radiographer said no enlarged liver and spleen is normal. But the liver surface was not smooth. I know I have fibrosis. Will this be the cause? And how bad can it be to show up on scan?
Just had ultrasound scan and radiographer said no enlarged liver and spleen is normal. But the liver surface was not smooth. I know I have fibrosis. Will this be the cause? And how bad can it be to show up on scan?
Robert1220
in
British Liver Trust
2 years ago
Newly Diagnosed
After a battery of tests, I've recently been diagnosed with end stage cirrhosis according to my doctor, but haven't yet seen a specialist or had a biopsy. Hopefully someone can help answer a few questions until I get seen. Is final stage cirrhosis life limiting and what is life expectancy? How will I
After a battery of tests, I've recently been diagnosed with end stage cirrhosis according to my doctor, but haven't yet seen a specialist or had a biopsy. Hopefully someone can help answer a few questions until I get seen. Is final stage cirrhosis life limiting and what is life expectancy? How will I
davidsa57
in
British Liver Trust
2 years ago
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Traveling on a plane with liver cirrhosis and portal hypertension
Hi I’m new to all this. My partner was diagnosed with liver cirrhosis back in may 2022 and spent 7 weeks in hospital. In February this year he was taken into intensive care with a GI bleed and needed blood transfusions and was told he had portal hypertension. He had a follow up endoscopy 4 weeks later
Hi I’m new to all this. My partner was diagnosed with liver cirrhosis back in may 2022 and spent 7 weeks in hospital. In February this year he was taken into intensive care with a GI bleed and needed blood transfusions and was told he had portal hypertension. He had a follow up endoscopy 4 weeks later
Lrn13
in
British Liver Trust
2 years ago
Coming off Flecainide (for PVC's) and possible Ablation for Teenager
Hi! I would really appreciate if you would please read my bio for the back story to this question as it has a history, but I will give a brief overview below. My daughter (14) is going to be weaned off Flecainide soon to see if her heart has 'fixed' itself after suddenly starting to misbehave in April
Hi! I would really appreciate if you would please read my bio for the back story to this question as it has a history, but I will give a brief overview below. My daughter (14) is going to be weaned off Flecainide soon to see if her heart has 'fixed' itself after suddenly starting to misbehave in April
hannah2002
in
British Heart Foundation
2 years ago
Ectopics and Digestive Difficulties
I have been dealing with diarrhea recently which I think is being causing by a Turmeric/Curcumin supplement I started taking. My ectopic heartbeats, probably mostly Premature Atrial Contractions (PACs), have started to flare up again. So I stopped taking the Turmeric/Curcumin supplement. Two years ago
I have been dealing with diarrhea recently which I think is being causing by a Turmeric/Curcumin supplement I started taking. My ectopic heartbeats, probably mostly Premature Atrial Contractions (PACs), have started to flare up again. So I stopped taking the Turmeric/Curcumin supplement. Two years ago
mcpacs
in
Atrial Fibrillation Support
2 years ago
Hi Everyone, help with test results?
good afternoon from America some of you might remember me...I joined the group looking for comfort and the outpouring of kindness still amazes me! To be honest, i wasn't sure I would get so many helpful responses so . Thank you all again for that ... lwanted to post these notes from test results
good afternoon from America some of you might remember me...I joined the group looking for comfort and the outpouring of kindness still amazes me! To be honest, i wasn't sure I would get so many helpful responses so . Thank you all again for that ... lwanted to post these notes from test results
MishaKitty
in
AF Association
2 years ago
Alpha fetoprotein test for cirrhosis patients??
Hi, is it standard for this test to be done every 6 months with the liver scan? I've just had my bloods done (post liver scan and pre consultant appointment) and spotted that I have been tested for this for the first time and the results are hidden from my Patient Knows Best account ... should I be worried
Hi, is it standard for this test to be done every 6 months with the liver scan? I've just had my bloods done (post liver scan and pre consultant appointment) and spotted that I have been tested for this for the first time and the results are hidden from my Patient Knows Best account ... should I be worried
teale100
in
British Liver Trust
2 years ago
ALBUMIN and EDEMA and COMPRESSION SOCKS - oh my!
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
Rshc
in
British Liver Trust
2 years ago
Previous platelets...
Just looking back through my medical records and I noticed a blood test I had done for unrelated reasons to my liver(all LFTs etc normal) in 2015,my platelets were at 138k. That’s what they are now? Could I just have low platelets then? Interesting.......
Just looking back through my medical records and I noticed a blood test I had done for unrelated reasons to my liver(all LFTs etc normal) in 2015,my platelets were at 138k. That’s what they are now? Could I just have low platelets then? Interesting.......
deanw41
in
British Liver Trust
2 years ago
Cheerful news
I have posted a few times before with questions. Today is a cheerful post. I have decompensated cirrhosis with varices and ascites. I had a stint in rehab in January which I actually enjoyed quite a lot of (it cost a lot though) I was on 6-8 weekly gastroscopies, usually with banding because of two life
I have posted a few times before with questions. Today is a cheerful post. I have decompensated cirrhosis with varices and ascites. I had a stint in rehab in January which I actually enjoyed quite a lot of (it cost a lot though) I was on 6-8 weekly gastroscopies, usually with banding because of two life
theoldboiler
in
British Liver Trust
2 years ago
Cirrhosis
I've had diarrhea four about 4 days and feel like I got the flue I done a COVID test .. negative I have only had about 2 wees a day too ,I spoke to my GP and he asked if I was yellow,I said no more than usual he said he will give me some immodium ,but I don't want to get bunged up ,I've been taking all
I've had diarrhea four about 4 days and feel like I got the flue I done a COVID test .. negative I have only had about 2 wees a day too ,I spoke to my GP and he asked if I was yellow,I said no more than usual he said he will give me some immodium ,but I don't want to get bunged up ,I've been taking all
Ozzie1961
in
British Liver Trust
2 years ago
Diagnosis Cirrhosis
Finally after 5 years of back and forth for labs I've been diagnosed with stage 1 cirrhosis no ascites,but I'm confused why doctors put energy into finding out but none into any type of treatment while it's still early!
Finally after 5 years of back and forth for labs I've been diagnosed with stage 1 cirrhosis no ascites,but I'm confused why doctors put energy into finding out but none into any type of treatment while it's still early!
TyiseChar1
in
British Liver Trust
2 years ago
any advice on choice of blood thinners please ?
unfortunately the Kardia mobile I bought ( thanks so much all of you for the advice on this) has confirmed that I am having regular episodes of AF ( bit not this time fast AF) followed by SR with ( sequentially wide QRS and PVCs and Supraventricular ectopy. This latter now appears to be the default
unfortunately the Kardia mobile I bought ( thanks so much all of you for the advice on this) has confirmed that I am having regular episodes of AF ( bit not this time fast AF) followed by SR with ( sequentially wide QRS and PVCs and Supraventricular ectopy. This latter now appears to be the default
smwdorset
in
Atrial Fibrillation Support
2 years ago
Heat hurting heart?
hey heart friends, Is anyone finding this heat is hurting them (for those in UK)? My heart was funky last night and tonight my stomach is crunching and painful (maybe dodgy rice!). Just finding this weather quite hard on my PVCs, which are already at tens of thousands a day. Also, for anyone who
hey heart friends, Is anyone finding this heat is hurting them (for those in UK)? My heart was funky last night and tonight my stomach is crunching and painful (maybe dodgy rice!). Just finding this weather quite hard on my PVCs, which are already at tens of thousands a day. Also, for anyone who
LJM15
in
British Heart Foundation
2 years ago
update on the ecg I posted 2 weeks ago!
so was at cardiologist today for my 3 month post ablation follow up for AF. He’s thinking there is a good chance the AF has gone. I showed him the ecg traces from my Apple Watch which some of you had suggested bigeminy PVCs and that’s exactly what they are. He has me on a 24 hour monitor just now to
so was at cardiologist today for my 3 month post ablation follow up for AF. He’s thinking there is a good chance the AF has gone. I showed him the ecg traces from my Apple Watch which some of you had suggested bigeminy PVCs and that’s exactly what they are. He has me on a 24 hour monitor just now to
Bailey2004
in
Atrial Fibrillation Support
2 years ago
please let me hear your positive stories re going from decompensated to compensated
My partner was diagnosed with cirrhosis in Dec and underwent a medical detox from alcohol. He was very poorly and remained in hospital for 3 weeks. Since then he has been eating well and not drinking. His bilirubin has come down from 256 to 60 and his blood platelets look good at 160. The doctors
My partner was diagnosed with cirrhosis in Dec and underwent a medical detox from alcohol. He was very poorly and remained in hospital for 3 weeks. Since then he has been eating well and not drinking. His bilirubin has come down from 256 to 60 and his blood platelets look good at 160. The doctors
Rshc
in
British Liver Trust
2 years ago
Paroxysmal AF with new Widening QRS and RBBB.
Hello All: This is my first post. I have become used to my paroxysmal AFIB (don't like it but am used to it), however, I have become increasingly concerned about my very recent increase in my QRS. My EKGs have always be normal except for the AFIB and PVC's etc. But in the last three months (I'm 58
Hello All: This is my first post. I have become used to my paroxysmal AFIB (don't like it but am used to it), however, I have become increasingly concerned about my very recent increase in my QRS. My EKGs have always be normal except for the AFIB and PVC's etc. But in the last three months (I'm 58
Phil100
in
AF Association
2 years ago
What magnesium to use?
Good evening you beautiful bumpy hearted lot, what magnesium do you use, how much do you take, where do you get it from and what are your bank details 🤪🤣 I’m off for a cardiac mri on Thursday and I’m taking 2.5 milligrams of bisoprolol twice a day to help with my pvcs, I’ve had no Af whatsoever since
Good evening you beautiful bumpy hearted lot, what magnesium do you use, how much do you take, where do you get it from and what are your bank details 🤪🤣 I’m off for a cardiac mri on Thursday and I’m taking 2.5 milligrams of bisoprolol twice a day to help with my pvcs, I’ve had no Af whatsoever since
Achant1
in
AF Association
2 years ago
PVCs post cardioversion
Been in hospital since I left home after a cardioversion that put me in nsr but with multiple PVCs and going in and out of Afib which resulted in me being taken by ambulance with fluid overload on lungs and heart. Still in on a monitor and waiting on next move as don’t feel good like this. On dronederone
Been in hospital since I left home after a cardioversion that put me in nsr but with multiple PVCs and going in and out of Afib which resulted in me being taken by ambulance with fluid overload on lungs and heart. Still in on a monitor and waiting on next move as don’t feel good like this. On dronederone
Mollykin
in
AF Association
2 years ago
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