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Experiences with
Prednisone
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GCA Neck pain
I was diagnosed with GCA in October 2022. Started on 60mg of Prednisolone & titrated down now 3mg. Have a great GP with whom I have a telephone appointment every 2weeks. Many, many side effects from the steroids, too many to list but now my main ones are severe pain in neck & exhaustion. I feel quite
I was diagnosed with GCA in October 2022. Started on 60mg of Prednisolone & titrated down now 3mg. Have a great GP with whom I have a telephone appointment every 2weeks. Many, many side effects from the steroids, too many to list but now my main ones are severe pain in neck & exhaustion. I feel quite
DHEH
in
PMRGCAuk
4 months ago
Day 14 on Prednisone!
Week two on pred tablets four a day last week three a day this week. Certainly seeing great improvement in my hand thank goodness. The pain was starting to get me down and not being able to use my hand properly made life difficult! Next week two tablets a day will let you know how I get on. Happy Weekend
Week two on pred tablets four a day last week three a day this week. Certainly seeing great improvement in my hand thank goodness. The pain was starting to get me down and not being able to use my hand properly made life difficult! Next week two tablets a day will let you know how I get on. Happy Weekend
Green230461
in
NRAS
1 year ago
Breathing
Six weeks ago really started losing my breath. went to the Doc and got
prednisone
and antibiotics. was fair for a couple weeks. Could catch my breath , my o2 was 72 walking ten feet. So im weaaring o2 all the time now at 3L. when i just my 02 is 94. Soon as i go ten feet 02 70s.
Six weeks ago really started losing my breath. went to the Doc and got
prednisone
and antibiotics. was fair for a couple weeks. Could catch my breath , my o2 was 72 walking ten feet. So im weaaring o2 all the time now at 3L. when i just my 02 is 94. Soon as i go ten feet 02 70s.
Romolo55
in
Lung Conditions Community Forum
1 year ago
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Prednisolone
Hi all. I haven't posted for a while, but I am on here everyday reading all your updates.I had an ablation in November 21. I have had a couple of AF episodes since, but they didn't last too long. I am getting what I think are palpatations, which seem to be getting worse. I have been feeling quite poorly
Hi all. I haven't posted for a while, but I am on here everyday reading all your updates.I had an ablation in November 21. I have had a couple of AF episodes since, but they didn't last too long. I am getting what I think are palpatations, which seem to be getting worse. I have been feeling quite poorly
19591959
in
British Heart Foundation
4 months ago
Sleepyhead!
3 years on Eligard Abiraterone, Xgeva and
Prednisone
and lately the fatigue is unbearable, particularly after I eat a late breakfast or early lunch. And it really doesn't matter what I eat Anyone else have this?
3 years on Eligard Abiraterone, Xgeva and
Prednisone
and lately the fatigue is unbearable, particularly after I eat a late breakfast or early lunch. And it really doesn't matter what I eat Anyone else have this?
Hidden
in
Advanced Prostate Cancer
1 year ago
Multiple chemical sensitivity (MCS)
Hi everyone, I hope this post finds everyone as well as they can be right now. I need your help. I have Multiple Chemical Sensitivity (MCS) I have lung disease, as a result of Lupus. I also have diabetes, hyperparathyroidism and high blood pressure. Having MCS makes me hypersensitive to almost everything
Hi everyone, I hope this post finds everyone as well as they can be right now. I need your help. I have Multiple Chemical Sensitivity (MCS) I have lung disease, as a result of Lupus. I also have diabetes, hyperparathyroidism and high blood pressure. Having MCS makes me hypersensitive to almost everything
field
in
LUPUS UK
4 months ago
Newly diagnosed with limited systemic sclerosis
I was diagnosed in September 2023. I’m currently on prednisolone and hydroxycholoquine. I’ve struggled with fatigue for close to 2 years now and it has been the most debilitating symptom so far. In the past few weeks my hands have become very achey, they were slightly achey before but now it’s a lot
I was diagnosed in September 2023. I’m currently on prednisolone and hydroxycholoquine. I’ve struggled with fatigue for close to 2 years now and it has been the most debilitating symptom so far. In the past few weeks my hands have become very achey, they were slightly achey before but now it’s a lot
Morepasta
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
PMR flare
Hi all I have PMR and GCA which up until now have been under control, I’m on Methotrexate and Tocilizumab and currently 1mg Prednisolone, but I’m having joint pain at the moment in mainly one shoulder and my knees ( not had any issues with Knees before). Would this be the start of a PMR flare? I’m having
Hi all I have PMR and GCA which up until now have been under control, I’m on Methotrexate and Tocilizumab and currently 1mg Prednisolone, but I’m having joint pain at the moment in mainly one shoulder and my knees ( not had any issues with Knees before). Would this be the start of a PMR flare? I’m having
Graciejack4
in
PMRGCAuk
4 months ago
tender breasts?
good evening! This is a strange one I think. Just wondered if anyone could explain or maybe have had experience of this. I will go to the Doctor obviously. I started Prednisolone in early October 15 mg and am currently on 9.5. Golfing, gardening, decorating - have had very few side effects - and felt
good evening! This is a strange one I think. Just wondered if anyone could explain or maybe have had experience of this. I will go to the Doctor obviously. I started Prednisolone in early October 15 mg and am currently on 9.5. Golfing, gardening, decorating - have had very few side effects - and felt
Sungolfer
in
PMRGCAuk
4 months ago
pmr flare
Was at 4.5 mg of
prednisone
started to stiffen up. Had reduced from 10 mg by doing .5 mg per month. As per flare guidelines I went to 9 mg for nine days then 7 mg for 5 days so I could go back to 5 mg where I was last fine but at 7, I am still stiff and sore in my lower back and left groin area.
Was at 4.5 mg of
prednisone
started to stiffen up. Had reduced from 10 mg by doing .5 mg per month. As per flare guidelines I went to 9 mg for nine days then 7 mg for 5 days so I could go back to 5 mg where I was last fine but at 7, I am still stiff and sore in my lower back and left groin area.
Skier321
in
PMRGCAuk
1 year ago
Should I apply sick day rules following a foot operation?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
Mfaepink1973
in
PMRGCAuk
4 months ago
Licorice
I know we are supposed to avoid licorice while on prednisolone as it supposedly increases the steroid in our body. I've even heard it described as a steroid saver. Why then, do we not use it as such when tapering off pred? I'd happily eat some!
I know we are supposed to avoid licorice while on prednisolone as it supposedly increases the steroid in our body. I've even heard it described as a steroid saver. Why then, do we not use it as such when tapering off pred? I'd happily eat some!
Wheelygood99
in
PMRGCAuk
4 months ago
Various questions, sorry 🥹
I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively appreciated. I have also, attached a photo of my kitten to put a smile on all your faces, as she does mine on a daily basis 🥹 (scroll to the bottom for
I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively appreciated. I have also, attached a photo of my kitten to put a smile on all your faces, as she does mine on a daily basis 🥹 (scroll to the bottom for
JLAR01
in
LUPUS UK
4 months ago
best way to reduce Prednisolone
I have tried to come off Prednisolone for PMR for the last 8 years by slow reduction. However, my diagnosis has recently been changed to MS and advised to definitely come of Steroids. Fatigue is a massive problem for me. I am currently on 5mg of Pred daily but have just had opposite views from 2 Doctors
I have tried to come off Prednisolone for PMR for the last 8 years by slow reduction. However, my diagnosis has recently been changed to MS and advised to definitely come of Steroids. Fatigue is a massive problem for me. I am currently on 5mg of Pred daily but have just had opposite views from 2 Doctors
Linnetbird
in
PMRGCAuk
4 months ago
Dexamethasone
My cousin has a brain tumour and is receiving radiotherapy. In addition, she has been prescribed 2mg daily dexamethasone steroids. I'm wondering what is the difference between this drug and prednisolone?
My cousin has a brain tumour and is receiving radiotherapy. In addition, she has been prescribed 2mg daily dexamethasone steroids. I'm wondering what is the difference between this drug and prednisolone?
Broseley
in
PMRGCAuk
4 months ago
17.5 mg prednisolone
Tapered down to 17.5 mg but getting shoulder pain and head twinges. I've noticed at 20 mg I feel better. Wondering if I should taper back up to 20 mg.
Tapered down to 17.5 mg but getting shoulder pain and head twinges. I've noticed at 20 mg I feel better. Wondering if I should taper back up to 20 mg.
Helliwelli12
in
PMRGCAuk
4 months ago
Myasthenia Gravis
I have been on prednisolone for almost 2 years for Polymyalgia Rheumatica (GP Diagnosis) but over the last year I have been losing strength and other neuromuscular issues. I have seen Neurologists but EMG and blood test always came back inconclusive. Until Last week! A blood test for AChR (Serum) came
I have been on prednisolone for almost 2 years for Polymyalgia Rheumatica (GP Diagnosis) but over the last year I have been losing strength and other neuromuscular issues. I have seen Neurologists but EMG and blood test always came back inconclusive. Until Last week! A blood test for AChR (Serum) came
opentuned
in
PMRGCAuk
4 months ago
Measles outbreak
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Vqueen
in
Vasculitis UK
4 months ago
Pain and when to increase prednisolone?
I've reduced carefully since 2018 on 15mg to 1mg pred since Jan 2023. Since September 23, I've had increasing pain and stiffness in my intercostals but crucially in muscles in my hip area. At first it was annoying stiffness with a wee bit of pain for maybe 20 mins on waking and I could walk it off.
I've reduced carefully since 2018 on 15mg to 1mg pred since Jan 2023. Since September 23, I've had increasing pain and stiffness in my intercostals but crucially in muscles in my hip area. At first it was annoying stiffness with a wee bit of pain for maybe 20 mins on waking and I could walk it off.
Q-owl
in
PMRGCAuk
4 months ago
split dose of prednisolone
please can you tell me any experience you have of splitting a pred dose between evening and morning. I know some people have found it beneficial, using enteric coated at night and non enteric coated in the morning, but is there a downside? Any research?I did a search and found an article about PMR taking
please can you tell me any experience you have of splitting a pred dose between evening and morning. I know some people have found it beneficial, using enteric coated at night and non enteric coated in the morning, but is there a downside? Any research?I did a search and found an article about PMR taking
Freshairfiend
in
PMRGCAuk
4 months ago
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