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IVIG - how soon does it benefit?
My husband - CLL, on Calquence since April 2021 - has begun a schedule of monthly IVIG, mainly because he had 2 life threatening infections late spring/early summer (staph that went rogue, followed by c. Diff thanks to months of antibiotics). His ID doc has said that the IG may likely have Covid antibodies
My husband - CLL, on Calquence since April 2021 - has begun a schedule of monthly IVIG, mainly because he had 2 life threatening infections late spring/early summer (staph that went rogue, followed by c. Diff thanks to months of antibiotics). His ID doc has said that the IG may likely have Covid antibodies
OaktownA
in
CLL Support
9 months ago
Advice please with cold and PMR
For the first time in nearly a year, I have a cold and where I before just go on with it, I am feeling terrible! My body aches so much from my shoulders to the groin and neck and wondering if is this normal when having an autoimmune disease. Should I increase my prednisone until this passes as not sure
For the first time in nearly a year, I have a cold and where I before just go on with it, I am feeling terrible! My body aches so much from my shoulders to the groin and neck and wondering if is this normal when having an autoimmune disease. Should I increase my prednisone until this passes as not sure
Markandevie
in
PMRGCAuk
5 months ago
PFT Results
Hi everyone. My first post here. A little background. I have been having persistent coughing that comes and goes since i got covid in March last year. Had 2nd covid in April this year. I was alarmed when in March the coughing caused me chest pain on the left side. The pain was bad with every cough, sneeze
Hi everyone. My first post here. A little background. I have been having persistent coughing that comes and goes since i got covid in March last year. Had 2nd covid in April this year. I was alarmed when in March the coughing caused me chest pain on the left side. The pain was bad with every cough, sneeze
3budakgemuk
in
Asthma Community Forum
7 months ago
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Shingles - to vacc or not to vacc
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Wolfie_at_the_door
in
LUPUS UK
7 months ago
Does anyone here continue to have blood in their phlegm after recovering from pneumonia?
I finished taking my medication a week ago, and I haven't been getting much phlegm these days. But now I see blood spots in the phlegm, I have an x-ray tomorrow.I am very worried, my mind sometimes drifts to dark thoughts.
I finished taking my medication a week ago, and I haven't been getting much phlegm these days. But now I see blood spots in the phlegm, I have an x-ray tomorrow.I am very worried, my mind sometimes drifts to dark thoughts.
Vinaa
in
Lung Conditions Community Forum
5 months ago
Covid Antivirals
Hi, if we get Covid is it still advisable for us to ask for the antivirals or is it so mild now that patients with blood cancers don’t need them? Suzy
Hi, if we get Covid is it still advisable for us to ask for the antivirals or is it so mild now that patients with blood cancers don’t need them? Suzy
SDJD
in
MPN Voice
9 months ago
Candesartan for high BP
Has anyone taken Candesartan for high BP? I've recently taken Doxazosin, and Peridropil, both of which made RL much worse. My GP has prescribed this to start today. I'm hoping for better luck with this.
Has anyone taken Candesartan for high BP? I've recently taken Doxazosin, and Peridropil, both of which made RL much worse. My GP has prescribed this to start today. I'm hoping for better luck with this.
pennygates
in
Restless Legs Syndrome
10 months ago
Covid infection initiating PMR flareup
I have tested positive for Covid.. it has initiated a PMR flare-up. Gp suggested increasing prednisolone for 3 or 4 days to 13mg, I had reduced to 9mg. Then reduce 1mg / day to 9. Anyone else had a flare up related to covid (I have ha d 6 vaccination re covid) 0
I have tested positive for Covid.. it has initiated a PMR flare-up. Gp suggested increasing prednisolone for 3 or 4 days to 13mg, I had reduced to 9mg. Then reduce 1mg / day to 9. Anyone else had a flare up related to covid (I have ha d 6 vaccination re covid) 0
attempttocycycle
in
PMRGCAuk
9 months ago
COVID vaccine
Writing on behalf of a friend, to see if anyone has had similar. Her husband (in his 80sdoesnt) is due to get his vaccines . He has RA. Every time he gets the COVID vaccine he is terrible for 25-36 hours afterwards. Totally disorientated, confused, doesn't know where he is etc etc. She doesn't know what
Writing on behalf of a friend, to see if anyone has had similar. Her husband (in his 80sdoesnt) is due to get his vaccines . He has RA. Every time he gets the COVID vaccine he is terrible for 25-36 hours afterwards. Totally disorientated, confused, doesn't know where he is etc etc. She doesn't know what
Hodc
in
NRAS
9 months ago
The forgotten half million?
We went from Shielding to being High Risk to being Vulnerable. Are we now the Forgotten? I ask, because we were told that the Autumn vaccination programme was starting on 18th September, and I started to hear of people getting appointments and inoculations but from my knowledge of their condition and
We went from Shielding to being High Risk to being Vulnerable. Are we now the Forgotten? I ask, because we were told that the Autumn vaccination programme was starting on 18th September, and I started to hear of people getting appointments and inoculations but from my knowledge of their condition and
quanglewangle
in
MPN Voice
9 months ago
Latest Study Re Long Covid
Given the recent posts about the the next Covid vaccination boosters, I thought people might find thi interesting. BBC News - Long Covid: MRI scans reveal new clues to symptoms https://www.bbc.co.uk/news/health-66890505
Given the recent posts about the the next Covid vaccination boosters, I thought people might find thi interesting. BBC News - Long Covid: MRI scans reveal new clues to symptoms https://www.bbc.co.uk/news/health-66890505
Bcol
in
PMRGCAuk
9 months ago
Shingles jab
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shot👍
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shot👍
Ovingite
in
MPN Voice
8 months ago
Chest infection without steroids
Hi, I am recently diagnosed with asthma - back in September with an awful 12 days in hospital after a cold became bronchitis. Was on oxygen etc. I am a man in early 40s. I had another cold in early November which afterwards led to coughing up thick green stuff and bad wheezing. Took steroids and antibiotics
Hi, I am recently diagnosed with asthma - back in September with an awful 12 days in hospital after a cold became bronchitis. Was on oxygen etc. I am a man in early 40s. I had another cold in early November which afterwards led to coughing up thick green stuff and bad wheezing. Took steroids and antibiotics
Particle32
in
Asthma Community Forum
5 months ago
Covid & Flu Vaccinations
Can anyone please tell me if you have had both the flu and Covid vaccinations at the same time please. If you have did you suffer any worse side effects from having them at the same time? I have both booked at my GP's but am not happy to have both together as I think this is a first time it has happened
Can anyone please tell me if you have had both the flu and Covid vaccinations at the same time please. If you have did you suffer any worse side effects from having them at the same time? I have both booked at my GP's but am not happy to have both together as I think this is a first time it has happened
Bailybiscuit
in
NRAS
9 months ago
evening update
I don’t have head lice or covid! My nurse checked my head and I took a covid test this morning. I am congested but I think it’s just allergies. I’m a little nervous though bc my temp has been around 99 all day today. Usually I run a little cooler. Today felt much better than the past few days, so I hope
I don’t have head lice or covid! My nurse checked my head and I took a covid test this morning. I am congested but I think it’s just allergies. I’m a little nervous though bc my temp has been around 99 all day today. Usually I run a little cooler. Today felt much better than the past few days, so I hope
Daisy425
in
Anxiety and Depression Support
9 months ago
covid
has anyone had covid recently and what were your symptoms, did it affect your AFIB at all, I am interested to know what other people’s experience have been.
has anyone had covid recently and what were your symptoms, did it affect your AFIB at all, I am interested to know what other people’s experience have been.
Electricblue1
in
AF Association
9 months ago
anxious
I woke up feeling somewhat less anxious this morning, which is great. However, my head started really itching so now I have to go to the school nurse to check to see if it’s head lice. My boyfriend also texted me saying he’s stuffy and his throat hurts a little. I really don’t want him to have covid.
I woke up feeling somewhat less anxious this morning, which is great. However, my head started really itching so now I have to go to the school nurse to check to see if it’s head lice. My boyfriend also texted me saying he’s stuffy and his throat hurts a little. I really don’t want him to have covid.
Daisy425
in
Anxiety and Depression Support
9 months ago
Pegasys --> Besremi and HCT
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Swede99
in
MPN Voice
10 months ago
Headcold and Cough
Good evening Everyone. Hope you all had a good Christmas. I know its difficult to give individual suggestions. But I came out to Spain for Christmas and New year and now have a cough and headcold. Which is producing a lot of mucus from my blocked nose. I am using Sterimar nasal spray. But not helping
Good evening Everyone. Hope you all had a good Christmas. I know its difficult to give individual suggestions. But I came out to Spain for Christmas and New year and now have a cough and headcold. Which is producing a lot of mucus from my blocked nose. I am using Sterimar nasal spray. But not helping
Bingo88
in
Lung Conditions Community Forum
5 months ago
I seem to be more ill since starting Levo
Before Levo I was hardly ever ill, rarely had a cold or flu but since starting Levo I’ve had the flu quite badly and I’ve had a constant cough since going on about 2 months. Now I’ve got a stinking cold over the holidays. Has anybody else had this or is this just a co-incidence?
Before Levo I was hardly ever ill, rarely had a cold or flu but since starting Levo I’ve had the flu quite badly and I’ve had a constant cough since going on about 2 months. Now I’ve got a stinking cold over the holidays. Has anybody else had this or is this just a co-incidence?
ockerdoc
in
Thyroid UK
5 months ago
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