I hope you are all well and keeping warm.
I had exchange transfusion today and half way through I started having sickle pain in both legs. I was given opioid injection for the pain and came home. I am still having the pain.
I know that exchange transfusion does not prevent crisis and my pre sickle levels were high. I also had hysrectomy 2 weeks ago, before that I had decapeptyl for 2 months to induce menopause. That 'hormonal chemotherapy' side effects nearly killed me. But I must say recovery post surgery is going well.
I am wondering if everything I have been through lately precipitated crisis and body unable to take demands of exchange transfusion caused crisis midway during the procedure.
I hate admissions especially at this time of the year, my last hospital admission - the memory of it still hunts me. I have tailored off the pain meds for the hysrectomy and wonder the impact a full blown crisis will have on the surgery recovery.
I have enough oral medication to manage at home currently and if it does not subside, I may go for DAY pain management emphasis on day.
Thanks everyone for reading this, expressing this to people who understand is therapeutic. I will really flare up if a health professional tells me I should not be sickling during or just after a exchange transfusion. A Dr once said that to me and I had to explain in technical terms how 4 weekly exchange transfusions does not eradicate all the sickle cells in my blood, it just reduces it and I can still have a crisis 🙄. She still went to her colleague for confirmation. You would think she came back to apologise.
Please keep me in your prayers. Lots of fluids, take my pain meds, rest, keep warm, pray, stay positive, lots of smiles (if possible) and guard against stress. Did I miss anything 😳
Thank you all.