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Back pain
Hi, I am currently waiting on blood test results to see if I have ET. I'm 42 and have had consistently raised platelets since 2017 raining from 450 to 600. I also have recently been diagnosed with a form of lupus which effects the skin. Since before Xmas I have been suffering from back pain which goes
Hi, I am currently waiting on blood test results to see if I have ET. I'm 42 and have had consistently raised platelets since 2017 raining from 450 to 600. I also have recently been diagnosed with a form of lupus which effects the skin. Since before Xmas I have been suffering from back pain which goes
106776
in
MPN Voice
3 years ago
New here
Hi all, My grandfather was diagnosed with MSA almost 3 years ago. At the age of 65. He has since became progressively worse, he is currently in hospital after having covid. In the hospital, doctors are treating him with physio as covid did make him lose more power in his legs. We think they are thinking
Hi all, My grandfather was diagnosed with MSA almost 3 years ago. At the age of 65. He has since became progressively worse, he is currently in hospital after having covid. In the hospital, doctors are treating him with physio as covid did make him lose more power in his legs. We think they are thinking
Lm12345
in
Multiple System Atrophy Trust
3 years ago
Jaw Popping
Well, I finally went to physio and he is working on my jaw. I told him I basically hurt all over but Rhemy says it is OA. He thinks it could be myophasia and I keep thinking what next? I have been off pred for three months now and the only comment he made regarding medications was he is glad I am off
Well, I finally went to physio and he is working on my jaw. I told him I basically hurt all over but Rhemy says it is OA. He thinks it could be myophasia and I keep thinking what next? I have been off pred for three months now and the only comment he made regarding medications was he is glad I am off
Robinsnest72
in
PMRGCAuk
3 years ago
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ENT and infections.
Hi I wrote a post recently about Temperomandibular issues. This is a follow up and may be interesting for people with ENT issues. I had jaw and ear pains, balance and spatial awareness issues immediately following a TBI. There were other issues that got resolved with treatment for various physio and
Hi I wrote a post recently about Temperomandibular issues. This is a follow up and may be interesting for people with ENT issues. I had jaw and ear pains, balance and spatial awareness issues immediately following a TBI. There were other issues that got resolved with treatment for various physio and
pinkvision
in
Headway
3 years ago
PMR gone or has it?
So after just over 2 years since diagnosis and the usual bumps I eventually tapered to zero pred last November. The PMR symptoms I started with have gone but I’m now dealing with an acute issue in the left shoulder. I saw a specialist and had MRI scans which showed inflammation in the tendon that runs
So after just over 2 years since diagnosis and the usual bumps I eventually tapered to zero pred last November. The PMR symptoms I started with have gone but I’m now dealing with an acute issue in the left shoulder. I saw a specialist and had MRI scans which showed inflammation in the tendon that runs
Mikeysaab
in
PMRGCAuk
3 years ago
Secondary pneumonia- post covid/ventilator
Hi everyone, My dad is off the vent and off sedation. He is breathing on his own but still in the hospital. However, today they said his breathing was a bit laboured. They also said his white blood count was low. They are suspecting secondary bacterial pneumonia. They have already started treating it
Hi everyone, My dad is off the vent and off sedation. He is breathing on his own but still in the hospital. However, today they said his breathing was a bit laboured. They also said his white blood count was low. They are suspecting secondary bacterial pneumonia. They have already started treating it
Ren2985
in
ICUsteps
3 years ago
Can I have help please with tapering?
Had face to face with rheumy today. Diagnosed six weeks ago and prescribed 7.5mgs Prednisolone daily. My main concern was GCA, the headaches, shoulder and arm pain, but he seems to have ruled this out because the ultrasound did not show any signs of inflammation!! I have felt better these last few
Had face to face with rheumy today. Diagnosed six weeks ago and prescribed 7.5mgs Prednisolone daily. My main concern was GCA, the headaches, shoulder and arm pain, but he seems to have ruled this out because the ultrasound did not show any signs of inflammation!! I have felt better these last few
merril
in
PMRGCAuk
3 years ago
Update on mum who is ventilated for 63days
Am pleased to say that my mum has been making progress. She still has the tracheostomy on, however she had done 12 hours ventilator free breathing yesterday, she handled it well and reached her target. Her target today is to reach 24 hour ventilator free breathing. She sat on a chair as part of her physio
Am pleased to say that my mum has been making progress. She still has the tracheostomy on, however she had done 12 hours ventilator free breathing yesterday, she handled it well and reached her target. Her target today is to reach 24 hour ventilator free breathing. She sat on a chair as part of her physio
Anuur44
in
ICUsteps
3 years ago
Pain aches interferon
Hi I recently started on interferon switching from Hydrea. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps. But it’s been
Hi I recently started on interferon switching from Hydrea. I have ET. Since starting interferon l have been having on -going leg pain ( hip and shins) not all the time. First in my left leg then in the right. Wandered if anyone else has had the same. I take paracetamol which helps. But it’s been
Dovme
in
Fight MPN
3 years ago
Steroid withdrawal or PMR (undiagnosed) ?
I have been reducing Pred over last 12 months - diagnosed with GCA January 20. Not been very successful until dr added in MMF which seems to have helped me get to my current dose which is 12.5 alternate days with 10mg. The good news is I haven’t had my usual GCA flare with head pain etc but I have been
I have been reducing Pred over last 12 months - diagnosed with GCA January 20. Not been very successful until dr added in MMF which seems to have helped me get to my current dose which is 12.5 alternate days with 10mg. The good news is I haven’t had my usual GCA flare with head pain etc but I have been
Phoenix51
in
PMRGCAuk
3 years ago
Feeling upset with rheumy
Hi everyone. I'm feeling like my rheumy is just ignoring my pleas when I'm telling him about my pain and fatigue. Had some bloods done last week. I had to chase him up today with the results. And this is the response I got (see attached photos)I feel like I need a little boost of something to help me
Hi everyone. I'm feeling like my rheumy is just ignoring my pleas when I'm telling him about my pain and fatigue. Had some bloods done last week. I had to chase him up today with the results. And this is the response I got (see attached photos)I feel like I need a little boost of something to help me
heda123
in
LUPUS UK
3 years ago
Pelvic Physio for Pelvic Floor Dysfunction
Hello everyone, I started seeing a physiotherapist specialist in pelvic pain, three weeks ago, and the pain has definitely got worse rather than improving. She has been teaching me some exercises, a combination of respiration + contraction and release of the pelvic floor muscles, that I also have to
Hello everyone, I started seeing a physiotherapist specialist in pelvic pain, three weeks ago, and the pain has definitely got worse rather than improving. She has been teaching me some exercises, a combination of respiration + contraction and release of the pelvic floor muscles, that I also have to
claud89
in
Pelvic Pain Support Network
3 years ago
Anyone similar ?
Hi , my daughter is 12 has had a wet cough (the amount of stuff she coughs up is unreal)and repeated chest infections since she was 18 months old , always snotty have been on various antibiotics almost constantly for the last 3 years ! Her doctor had referred her for testing for pcd and is starting
Hi , my daughter is 12 has had a wet cough (the amount of stuff she coughs up is unreal)and repeated chest infections since she was 18 months old , always snotty have been on various antibiotics almost constantly for the last 3 years ! Her doctor had referred her for testing for pcd and is starting
Susan1983
in
PCD Family Support Group (UK)
3 years ago
High hamstring tendonopathy.
I took to this running lark later in life. Completed C25k and have been slowly building on that. Time has improved slightly and distance has been building slowly towards 10k. Now I've been struggling with this dull tight ache in my left buttock and tightness in my hamstring. I've had visits to a well
I took to this running lark later in life. Completed C25k and have been slowly building on that. Time has improved slightly and distance has been building slowly towards 10k. Now I've been struggling with this dull tight ache in my left buttock and tightness in my hamstring. I've had visits to a well
Rungranny
60minGraduate
in
Bridge to 10K
3 years ago
Kidney Beam: A free wellbeing resource for kidney peeps
Hi All, Kidney Beam is based in the UK, set up by the renal
physiotherapy
team at King's College Hospital in London and funded by Kidney Research UK. It is an online wellbeing platform for anyone impacted by kidney illness.
Hi All, Kidney Beam is based in the UK, set up by the renal
physiotherapy
team at King's College Hospital in London and funded by Kidney Research UK. It is an online wellbeing platform for anyone impacted by kidney illness.
WhollyAligned
in
Kidney Transplant Patient Support
4 years ago
vulvodynia
I just wanted to share some good news in the hope it will inspire or give someone who might be struggling a bit of hope. I have both vulvodynia and pelvic floor dysfunction. In the past smear tests have been a major trigger for pain to the point where in one of them I fainted. But yesterday I had
I just wanted to share some good news in the hope it will inspire or give someone who might be struggling a bit of hope. I have both vulvodynia and pelvic floor dysfunction. In the past smear tests have been a major trigger for pain to the point where in one of them I fainted. But yesterday I had
ClareLou
in
Pelvic Pain Support Network
3 years ago
On the edge with too many decisions
Long story, some venting, need input. Some of you have followed my story of my major car accident last March. It was the other driver’s fault, but I was really hurt. So, on top of COVID-19, I was hospitalized alone, had no job, and spent 9 moths in physical therapy only to have them tell me they have
Long story, some venting, need input. Some of you have followed my story of my major car accident last March. It was the other driver’s fault, but I was really hurt. So, on top of COVID-19, I was hospitalized alone, had no job, and spent 9 moths in physical therapy only to have them tell me they have
Lazy_dog_lover
in
Mental Health Support
3 years ago
Feeling disheartened. . .
Hey, I haven't posted for a while but thought I'd check in. I started couch to 5k back in November last year and completed it beginning of Jan (YAY GO ME). I was running fine apart from a bit of knee pain halfway through the program. That is up until about 3/4 weeks ago. I then started to get ankle pain
Hey, I haven't posted for a while but thought I'd check in. I started couch to 5k back in November last year and completed it beginning of Jan (YAY GO ME). I was running fine apart from a bit of knee pain halfway through the program. That is up until about 3/4 weeks ago. I then started to get ankle pain
MumOnTheEdge
Graduate
in
Couch to 5K
3 years ago
First experience of a professional once they hear fybro
I got sent to lymington minor injuries yesterday. 12 days ago i had half a stones worth of solid metal platters fall 7ft onto my foot. Bruising was coloutful. Thats now gone but the swelling pain and pins and needles is getting worse. But always been able to wiggle my toes. My gp practice said to go
I got sent to lymington minor injuries yesterday. 12 days ago i had half a stones worth of solid metal platters fall 7ft onto my foot. Bruising was coloutful. Thats now gone but the swelling pain and pins and needles is getting worse. But always been able to wiggle my toes. My gp practice said to go
Bruton
in
Fibromyalgia Action UK
3 years ago
air phsyio
has any one on here tried the new air physio you blow in to it slowly after 5 to 10 minets it brings lots phlem up out your lungs that you cant cough up this is wot restricts your lung airways I bought one as last 3 months lungs been bit restricted now it has rely cleared it of mucus it strengthens
has any one on here tried the new air physio you blow in to it slowly after 5 to 10 minets it brings lots phlem up out your lungs that you cant cough up this is wot restricts your lung airways I bought one as last 3 months lungs been bit restricted now it has rely cleared it of mucus it strengthens
guytane
in
COPD Friends
3 years ago
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