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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Reassurance
Saw my gp this morning and she understood my worries about roprinole. She feels I should stay on 0.25 and is happy to see me before I have to increase. She will monitor me and not let augmentation happen. I have been so tired today and can’t function. Must be drug as did sleep with no RLS She suggests
Saw my gp this morning and she understood my worries about roprinole. She feels I should stay on 0.25 and is happy to see me before I have to increase. She will monitor me and not let augmentation happen. I have been so tired today and can’t function. Must be drug as did sleep with no RLS She suggests
Smiffyliz
in
Restless Legs Syndrome
7 years ago
Blood results
Hi all, my first post from the UK. Recently I've been more fatigued/shaky/weak to the point of not making work and needing >12 hrs sleep to function. The doc said to take it easy for a while which isn't helping. After pushing the doc for further investigations, a stool sample was taken and bloods. The
Hi all, my first post from the UK. Recently I've been more fatigued/shaky/weak to the point of not making work and needing >12 hrs sleep to function. The doc said to take it easy for a while which isn't helping. After pushing the doc for further investigations, a stool sample was taken and bloods. The
Hidden
in
Pernicious Anaemia Society
7 years ago
preparing for pregnancy with hashimotos
Hi everyone- just looking for some advice of things I can do to prepare for pregnancy. Ive had Hashimotos for 5+ years, up and down with health, but overall pretty good. Last year I think my thyroid finally 'blew' so to speak. (My thyroid went into hyper for 4 months last year then dropped further hypo
Hi everyone- just looking for some advice of things I can do to prepare for pregnancy. Ive had Hashimotos for 5+ years, up and down with health, but overall pretty good. Last year I think my thyroid finally 'blew' so to speak. (My thyroid went into hyper for 4 months last year then dropped further hypo
roosta22
in
Thyroid UK
7 years ago
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Terrified before third eyelear injection
My third eyelear injection is scheduled for Thursday and I am already a bag of nerves. Its not the actual injection itself (although this is painful its very short lived) its the following days of excruciating writhing pain for the following 48hrs I'm finding difficult to cope with. The response from
My third eyelear injection is scheduled for Thursday and I am already a bag of nerves. Its not the actual injection itself (although this is painful its very short lived) its the following days of excruciating writhing pain for the following 48hrs I'm finding difficult to cope with. The response from
exDancer
in
Macular Society
7 years ago
3 am Cuppa and Co-codamol Anyone...
This is the time of day that really gets to me....after finally managing to get to sleep I'm awake after 4 hours and wondering how am I going to get through another day? Today at least I can go back to sleep once the coco kicks in and not worry about being up at 6 am to get my granddaughter off to school
This is the time of day that really gets to me....after finally managing to get to sleep I'm awake after 4 hours and wondering how am I going to get through another day? Today at least I can go back to sleep once the coco kicks in and not worry about being up at 6 am to get my granddaughter off to school
cuddlyka
in
Fibromyalgia Action UK
7 years ago
Advised to come to this thread by thyroid uk diagnosed with megaloblastic anaemia
I was put on ferrous sulphate and folic acid. Will dig out my exact results all I remember is it's non iron deficiency anaemia (I think that's what they said) I have so much going on in my health. Seaside susie sent me this way. On lots of other drugs too including rivaroxaban as I had a pulmonary embolism
I was put on ferrous sulphate and folic acid. Will dig out my exact results all I remember is it's non iron deficiency anaemia (I think that's what they said) I have so much going on in my health. Seaside susie sent me this way. On lots of other drugs too including rivaroxaban as I had a pulmonary embolism
Leomad
in
Pernicious Anaemia Society
7 years ago
Frustrated!
So today I had my appointment with the Rhuemy and I'm not even sure what he's doing for me. He wants me to tell my dermatologist to take me off of my methotrexate and start me on mycophenolate, even though he admits they are very similar and do pretty much the same job. He suggested that I take co-codamol
So today I had my appointment with the Rhuemy and I'm not even sure what he's doing for me. He wants me to tell my dermatologist to take me off of my methotrexate and start me on mycophenolate, even though he admits they are very similar and do pretty much the same job. He suggested that I take co-codamol
Athens94
in
LUPUS UK
7 years ago
Iron deficiency anaemia affecting B12?
I've heard about low iron levels directly affecting B12, can anyone shed any light on this? I was diagnosed Coeliac five years ago and PA two years ago. Since April this year I have also had iron deficieny anaemia due to heavy menstrual periods. I have hydroxocobalamin 1mg/1ml injections every three
I've heard about low iron levels directly affecting B12, can anyone shed any light on this? I was diagnosed Coeliac five years ago and PA two years ago. Since April this year I have also had iron deficieny anaemia due to heavy menstrual periods. I have hydroxocobalamin 1mg/1ml injections every three
Monty71
in
Pernicious Anaemia Society
7 years ago
B12 folate and ferritin
Hi just wondering if these results indicate cause of my symptoms as stress? GP says they do not and I also have Hashimotos. I also have iron deficiency anaemia thanks B12 176 (180 - 900) Ferritin 12 (30 - 400) 1 iron tablet per day Folate 1.9 (4.6 - 18.7)
Hi just wondering if these results indicate cause of my symptoms as stress? GP says they do not and I also have Hashimotos. I also have iron deficiency anaemia thanks B12 176 (180 - 900) Ferritin 12 (30 - 400) 1 iron tablet per day Folate 1.9 (4.6 - 18.7)
Katyaj
in
Pernicious Anaemia Society
7 years ago
Iron blood test advice
Hi all, I've ordered an iron status check as I have low ferritin levels but want to be sure that the rest of my iron levels are also low. It will look at transferrin, ferritin, serum iron and the ratios. I'd like some advice on whether I should stop supplementing iron before I do it and also whether
Hi all, I've ordered an iron status check as I have low ferritin levels but want to be sure that the rest of my iron levels are also low. It will look at transferrin, ferritin, serum iron and the ratios. I'd like some advice on whether I should stop supplementing iron before I do it and also whether
foxrabbit
in
Thyroid UK
7 years ago
Legal High Advice Needed
Does anyone use any vitamin supplements? Anything that could help knees or joints in general stay strong and healthy? Well, at least healthy enough to help prevent injuries, to an extent. Every morning I pop one of cod liver oil pills, and I also googled my question but would rather prefer to know
Does anyone use any vitamin supplements? Anything that could help knees or joints in general stay strong and healthy? Well, at least healthy enough to help prevent injuries, to an extent. Every morning I pop one of cod liver oil pills, and I also googled my question but would rather prefer to know
mrrun
Graduate
in
Couch to 5K
7 years ago
Thyroid issues on LEVOTHYROXIN
Hi I'm ding a bit of research for my grandson so to speak he only 5 months old Does anyone have experience in taking thyroxine LEVOTHYROXIN DO YOU KNOW DOES THIS ALTER THE LEVELS OF CARNITINE IN THE BODY ?
Hi I'm ding a bit of research for my grandson so to speak he only 5 months old Does anyone have experience in taking thyroxine LEVOTHYROXIN DO YOU KNOW DOES THIS ALTER THE LEVELS OF CARNITINE IN THE BODY ?
Suerivers2016
in
Thyroid UK
7 years ago
Pain after eyelear injections
Every time I have an eyelear injection I experience severe pain. Then after the numbing drops have worn off the pain becomes very severe to the point where I'm rolling around and on the point of vomiting - the pain in my eye is almost unbearable. This goes on for three days and nights. I made a fuss
Every time I have an eyelear injection I experience severe pain. Then after the numbing drops have worn off the pain becomes very severe to the point where I'm rolling around and on the point of vomiting - the pain in my eye is almost unbearable. This goes on for three days and nights. I made a fuss
exDancer
in
Macular Society
7 years ago
Improving sperm count & motility is possible!
Hello lovely ladies and gents, Mr Llama and I want to share our experience in the hope that it might help or at least reassure some of you out there that improving sperm is possible! It seems there's been almost no medical research done in this area so here's a personal case study for you... We started
Hello lovely ladies and gents, Mr Llama and I want to share our experience in the hope that it might help or at least reassure some of you out there that improving sperm is possible! It seems there's been almost no medical research done in this area so here's a personal case study for you... We started
Llama1
in
Fertility Network UK
7 years ago
Erfa
I just started Erfa, from LevoThyroxine. I had a really bad reaction. I'm v sensitive to sugar & Erfa filler contains sucrose. Does anybody have any advice to share?
I just started Erfa, from LevoThyroxine. I had a really bad reaction. I'm v sensitive to sugar & Erfa filler contains sucrose. Does anybody have any advice to share?
KateCora
in
Thyroid UK
7 years ago
Blood Results. Please help! There are so many I don't know where to start!
Hi all, I posted on here a few months ago as I felt horrendous and like I was getting nowhere. On your advice I went to my doctors and asked for a full blood screen.... It took two attempts but they gave in. I had my results given today and the nurse practioner told me (summed up) it's all in my head
Hi all, I posted on here a few months ago as I felt horrendous and like I was getting nowhere. On your advice I went to my doctors and asked for a full blood screen.... It took two attempts but they gave in. I had my results given today and the nurse practioner told me (summed up) it's all in my head
Siara
in
Thyroid UK
7 years ago
RA pain increases as day progresses
Hi I was diagnosed with RA earlier this year. I was on MTX and am still on low dose of steroids. I stopped taking the MTX about 5 weeks ago. In the last 2.5 weeks I have been in agony daily. I think I have not had more than maybe 3 days where the pain is just bearable. I saw Rheumy and Dr both told me
Hi I was diagnosed with RA earlier this year. I was on MTX and am still on low dose of steroids. I stopped taking the MTX about 5 weeks ago. In the last 2.5 weeks I have been in agony daily. I think I have not had more than maybe 3 days where the pain is just bearable. I saw Rheumy and Dr both told me
MandiS
in
NRAS
7 years ago
Worried about my Hubby
Hi everyone, 1st of all forgive my ignorance on this illness if at any point I sound silly! My Husband has been suffering with severe joint pain & fatigue for such along time, he just thinks its the norm, as he is a Landscape gardener & it involves strenuous physical labour. He recently (about 3/4 weeks
Hi everyone, 1st of all forgive my ignorance on this illness if at any point I sound silly! My Husband has been suffering with severe joint pain & fatigue for such along time, he just thinks its the norm, as he is a Landscape gardener & it involves strenuous physical labour. He recently (about 3/4 weeks
Traceydc
in
LUPUS UK
7 years ago
Test resullts
Afternoon All Hoping you helpful people will have a quick look at my results. GP said my levels are good. Think I am staying on 50mcg levothyroxine. I fasted didn't take levo before test. Serum B12 253 (187.0-883.0) Serum ferratin NA following result is from 14/7/7 valid for 60 days FER 28 Serum triidothyronine
Afternoon All Hoping you helpful people will have a quick look at my results. GP said my levels are good. Think I am staying on 50mcg levothyroxine. I fasted didn't take levo before test. Serum B12 253 (187.0-883.0) Serum ferratin NA following result is from 14/7/7 valid for 60 days FER 28 Serum triidothyronine
Hidden
in
Thyroid UK
7 years ago
have i got endometriosis
hi there im new to this so bare with me..... for the past year my periods have got heavier and ive been exhausted wanting to sleep a lot back pain also been to the doc about back pain which they have refered me for physio.... doc told me to just keep an eye on it.... ( i had breast cancer in 2015 and
hi there im new to this so bare with me..... for the past year my periods have got heavier and ive been exhausted wanting to sleep a lot back pain also been to the doc about back pain which they have refered me for physio.... doc told me to just keep an eye on it.... ( i had breast cancer in 2015 and
Ke11yey
in
Endometriosis UK
7 years ago
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