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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Can NHS test for the DIO2 gene?
I’ve a telephone consultation tomorrow with my Endo - probably will be my last one as he can no longer look after me if I self medicate. However I thought I’d ask him to test me for the DIO2 gene so if this is abnormal he could then prescribe T3 on the NHS and override the CCG? Is that correct? Surely
I’ve a telephone consultation tomorrow with my Endo - probably will be my last one as he can no longer look after me if I self medicate. However I thought I’d ask him to test me for the DIO2 gene so if this is abnormal he could then prescribe T3 on the NHS and override the CCG? Is that correct? Surely
MissFG
in
Thyroid UK
7 years ago
Pain killer advice
I am currently taking co codamol 30/500 and naproxen, these are my everyday meds, the problem is I think I need something when the pain gets unbearable, the doctor keeps suggesting tramadol but I’m worried this will be too strong, is anyone on tramadol or something similar that helps? That’s obviously
I am currently taking co codamol 30/500 and naproxen, these are my everyday meds, the problem is I think I need something when the pain gets unbearable, the doctor keeps suggesting tramadol but I’m worried this will be too strong, is anyone on tramadol or something similar that helps? That’s obviously
Gemma1986
in
Endometriosis UK
6 years ago
3 year old daughter - B12/folate deficiency
Hi I am posting on behalf of my 3 year old daughter, she has iron deficiency but not on iron. Also has underactive thyroid and Hashimotos. Plan to see GP tomorrow to ask why no action has been taken on below results. Advice before then appreciated thankyou Folate *2.2 (2.5 - 19.5 ug/L) Vitamin B12 *
Hi I am posting on behalf of my 3 year old daughter, she has iron deficiency but not on iron. Also has underactive thyroid and Hashimotos. Plan to see GP tomorrow to ask why no action has been taken on below results. Advice before then appreciated thankyou Folate *2.2 (2.5 - 19.5 ug/L) Vitamin B12 *
Kellie2203
in
Pernicious Anaemia Society
7 years ago
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Doctor says he wont prescribe any drugs pain clinic advise.
So after 5 years of suffering in pain and countless doctor and a&e appointments while being on codeine, paracetamol, tramadol, gabapentin, naproxen, buscopan every day at maximum doses he has finally agreed to refer me to a pain clinc since I have been diagnosed with endometriosis, before I got the diagnosis
So after 5 years of suffering in pain and countless doctor and a&e appointments while being on codeine, paracetamol, tramadol, gabapentin, naproxen, buscopan every day at maximum doses he has finally agreed to refer me to a pain clinc since I have been diagnosed with endometriosis, before I got the diagnosis
Hazel173
in
Endometriosis UK
6 years ago
IC update - anyone any advice on back supports?
So further to yesterday's post I have now managed to see a GP for my lower back pain. I have been prescribed Naproxen and Co Codamol for the immediate pain and referred to a physio. The doctor also suggested a back support whilst running, does anyone use one or have any reccomendations?
So further to yesterday's post I have now managed to see a GP for my lower back pain. I have been prescribed Naproxen and Co Codamol for the immediate pain and referred to a physio. The doctor also suggested a back support whilst running, does anyone use one or have any reccomendations?
ChrisAllen1
Graduate
in
Couch to 5K
7 years ago
Bad indegestion with under active thyroid
Has anyone tried BETAINE hydrochloride with pepsin for bad indegestion and digestive issues , what are you experiencies , been suffering 3 months now and Omeprazole doesn’t do anything for me . Had endoscopy and results were mild gastritis, duodenal ulcer and duodentis, thanks
Has anyone tried BETAINE hydrochloride with pepsin for bad indegestion and digestive issues , what are you experiencies , been suffering 3 months now and Omeprazole doesn’t do anything for me . Had endoscopy and results were mild gastritis, duodenal ulcer and duodentis, thanks
Ajwag
in
Thyroid UK
7 years ago
Natural sourced supplements?
A very happy Christmas to everyone here! Given most shops sell supplements if 2 months supply, it does not take long to run out and have the chance to try other options. I have changed approach a lot this time with the desire to consolidate as far as possible and make life simple. I found a supplier
A very happy Christmas to everyone here! Given most shops sell supplements if 2 months supply, it does not take long to run out and have the chance to try other options. I have changed approach a lot this time with the desire to consolidate as far as possible and make life simple. I found a supplier
Danielj1
in
Thyroid UK
7 years ago
B12/folate/vitamin D
Feedback welcome. Thanks! VITAMIN B12 201 (190 - 900) FOLATE 2.3 (2.5 - 19.5) GP comments - a bit low VITAMIN D TOTAL 30.6 (25 - 50 VITAMIN D DEFICIENCY. SUPPLEMENTATION IS INDICATED)
Feedback welcome. Thanks! VITAMIN B12 201 (190 - 900) FOLATE 2.3 (2.5 - 19.5) GP comments - a bit low VITAMIN D TOTAL 30.6 (25 - 50 VITAMIN D DEFICIENCY. SUPPLEMENTATION IS INDICATED)
Sam1995
in
Thyroid UK
7 years ago
Supplementation advice please
In June 2017 Ferritin 56 (30 - 400) probably lower now due to heavy periods, complete blood count and iron profile still showing iron deficiency Folate 2.38 (2.50 - 19.50) Vitamin B12 335 (190 - 900) on B12 injections due to low B12 symptoms Vitamin D total 28.6 (25 - 50 deficiency) taking 800iu D3
In June 2017 Ferritin 56 (30 - 400) probably lower now due to heavy periods, complete blood count and iron profile still showing iron deficiency Folate 2.38 (2.50 - 19.50) Vitamin B12 335 (190 - 900) on B12 injections due to low B12 symptoms Vitamin D total 28.6 (25 - 50 deficiency) taking 800iu D3
Katyaz
in
Thyroid UK
7 years ago
Let's try loving ourselves and everything for 1 day!
I am gony try my very best Tomoro to get up early n get out of my house as i havnt been out for days. Im gony try n look everyone i meet in the eye and smile. There is always someone worse off. I would love to have volunteered this Christmas by feeding the homeless but my energy levels are zilch at moment
I am gony try my very best Tomoro to get up early n get out of my house as i havnt been out for days. Im gony try n look everyone i meet in the eye and smile. There is always someone worse off. I would love to have volunteered this Christmas by feeding the homeless but my energy levels are zilch at moment
Cara78
in
Mental Health Support
7 years ago
FIRST TIME TTC and pregnant after 5 weeks off the pill! Shocked but happy. Would love advice. I suffer with chronic health problems.
Hi everyone 🤗 I’m new here. I’ve been having a look at some of your posts for about a month now - and I just found out yesterday that I’m prgenant! 5 weeks to the day and I just can’t believe it. Everybody tells you it will take 6 months to get contraceptives out of your system... well I stopped my
Hi everyone 🤗 I’m new here. I’ve been having a look at some of your posts for about a month now - and I just found out yesterday that I’m prgenant! 5 weeks to the day and I just can’t believe it. Everybody tells you it will take 6 months to get contraceptives out of your system... well I stopped my
Katemorr
in
Pregnancy and Parenting Support
7 years ago
So far not so good
It’s been a little while since I last wrote on here. Everyone was so supportive then and I’m in some need of support again. In October my GP referred me to the Rheumatologist because of severe pain and swelling in all of my joints. Blood tests suggested RA. Since then It has been an uphill slog. Initially
It’s been a little while since I last wrote on here. Everyone was so supportive then and I’m in some need of support again. In October my GP referred me to the Rheumatologist because of severe pain and swelling in all of my joints. Blood tests suggested RA. Since then It has been an uphill slog. Initially
Lauranorder
in
NRAS
7 years ago
Still fighting
Hi I'm new to the site ..I've was diagnosed with behcets in November if last year after loosing my eyesight in my left eye . I have been I'll for about 15 years after suffering numerous miscarriages and then eclampsia which led to my son bring delivered at 38 weeks but unfortunately died . I was diagnosed
Hi I'm new to the site ..I've was diagnosed with behcets in November if last year after loosing my eyesight in my left eye . I have been I'll for about 15 years after suffering numerous miscarriages and then eclampsia which led to my son bring delivered at 38 weeks but unfortunately died . I was diagnosed
Hidden
in
Behçet's UK
7 years ago
Iron supplements?
Recently had some blood taken, and it showed that my ferritin and B12 was 'normal' but it's in the low end of normal. Ferritin 45 ug/L (15-300) Folate is 20. 7 ug/ L (2-20 ug/L) B12 259 ng/l (130- 900) I've been suffering with frequent and heavy periods for years which I think it causing the lower ferritin
Recently had some blood taken, and it showed that my ferritin and B12 was 'normal' but it's in the low end of normal. Ferritin 45 ug/L (15-300) Folate is 20. 7 ug/ L (2-20 ug/L) B12 259 ng/l (130- 900) I've been suffering with frequent and heavy periods for years which I think it causing the lower ferritin
lily82
in
Thyroid UK
7 years ago
Pleurisy and bronchial pneumonia
On Tuesday morning I was taken by ambulance to hospital (they suspected I had another pulmonary embolism) and I was diagnosed with pleurisy and bronchial pneumonia and sent home that evening with 7 day course of amoxicillin and Co-codamol. My wife called an ambulance after I collapsed through pain putting
On Tuesday morning I was taken by ambulance to hospital (they suspected I had another pulmonary embolism) and I was diagnosed with pleurisy and bronchial pneumonia and sent home that evening with 7 day course of amoxicillin and Co-codamol. My wife called an ambulance after I collapsed through pain putting
MarkHavant
in
Lung Conditions Community Forum
7 years ago
Advice/low iron/ferrous sulphate
Hi all, I went to discuss my latest blood results with my Doctor a few days ago. My latest ferritin was 28. This was taken about 6 weeks ago.However as it is not below 17,she said she could not prescribe me iron meds. Been awful last few weeks,tired,achy,tingly hands and feet,palpitations and hair is
Hi all, I went to discuss my latest blood results with my Doctor a few days ago. My latest ferritin was 28. This was taken about 6 weeks ago.However as it is not below 17,she said she could not prescribe me iron meds. Been awful last few weeks,tired,achy,tingly hands and feet,palpitations and hair is
Pemby1984
in
Pernicious Anaemia Society
7 years ago
Trying to conceive
Hi I'm 21 and trying to conceive. Just wondering with these levels if I can? Thanks Ferritin 22 (30 - 400) MCV 80.8 (83 - 98) MCHC 388 (310 - 360) Haemoglobin 116 (120 - 150) MCV 28.1 (28 - 32) Iron 6.2 (6 - 26) Transferrin 12 (12 - 45) Folate 2.3 (2.5 - 19.5) Vitamin B12 226 (180 - 900) Vitamin D 30.6
Hi I'm 21 and trying to conceive. Just wondering with these levels if I can? Thanks Ferritin 22 (30 - 400) MCV 80.8 (83 - 98) MCHC 388 (310 - 360) Haemoglobin 116 (120 - 150) MCV 28.1 (28 - 32) Iron 6.2 (6 - 26) Transferrin 12 (12 - 45) Folate 2.3 (2.5 - 19.5) Vitamin B12 226 (180 - 900) Vitamin D 30.6
Viki456
in
Thyroid UK
7 years ago
Anaemia and iron deficiencies
Hello everyone. Well, after a couple of years of feeling awful and depressed I have been diagnosed with anaemia. The terrible thing about it is just how it has affected everything about my life. I mean everything. I often want to just not wake up in the morning rather than face the whole day. Anyone
Hello everyone. Well, after a couple of years of feeling awful and depressed I have been diagnosed with anaemia. The terrible thing about it is just how it has affected everything about my life. I mean everything. I often want to just not wake up in the morning rather than face the whole day. Anyone
Honeychild54
in
Thyroid UK
7 years ago
Recently diagnosed with ANCA Vasculitis.
Hi there! I'm new to this forum and on the 20th November I was diagnosed with pr3 small vessel vasculitis (extra renal syndrome). Prior to this diagnosis, I was experiencing a tender scalp, lightheadness, ringing ears, nosebleeds, heart palpitations, nightsweats, gi problems (diarrhoea sometimes with
Hi there! I'm new to this forum and on the 20th November I was diagnosed with pr3 small vessel vasculitis (extra renal syndrome). Prior to this diagnosis, I was experiencing a tender scalp, lightheadness, ringing ears, nosebleeds, heart palpitations, nightsweats, gi problems (diarrhoea sometimes with
Vo321
in
Vasculitis UK
7 years ago
RLS/Pain with BP and sugar
Hi every one, I am new in the group. My mother suffering from RLS in legs and in arms and pain in lega as well along with rest less legs since 10 years. She is currently using Ropinirol 1mg at night and 1mg after breakfast + Pregabalin 75mg, but she is not getting normal , i mean she feel relax sometimes
Hi every one, I am new in the group. My mother suffering from RLS in legs and in arms and pain in lega as well along with rest less legs since 10 years. She is currently using Ropinirol 1mg at night and 1mg after breakfast + Pregabalin 75mg, but she is not getting normal , i mean she feel relax sometimes
Wajidali25
in
Restless Legs Syndrome
7 years ago
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