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Peroxisomal acyl-CoA oxidase deficiency
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advice needed please re iron and thyroxine
hi there, I’d really appreciate some advice. I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have Anaemia and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid
hi there, I’d really appreciate some advice. I’ve been on Thyroxine for a number of years and have been fine, I’ve just been told that I have Anaemia and have started on Ferrous Fumarate tabs 210 mg. I’ve started to feel tearful and anxious this last week and wonder if the iron is affecting my thyroid
Poppyqueen
in
Thyroid UK
7 months ago
Advice needed please about liquid Levothyroxine side effects
Hello, I wrote a post about a month ago saying my adult son was unable to get liquid levothyroxine as it was out of stock. He was taking the brill Pharma brand and tolerated it really well. The chemist managed to source Teva liquid levothyroxine three weeks after we asked for a repeat prescription
Hello, I wrote a post about a month ago saying my adult son was unable to get liquid levothyroxine as it was out of stock. He was taking the brill Pharma brand and tolerated it really well. The chemist managed to source Teva liquid levothyroxine three weeks after we asked for a repeat prescription
Annie567
in
Thyroid UK
7 months ago
Can't increase my iron levels
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Suzanneharb
in
Thyroid UK
7 months ago
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Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
7 months ago
Iron Infusions
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
KatieG75147
in
Pernicious Anaemia Society
7 months ago
I have RLS and recently updated iron labs revealed the following: Ferritin=59.2ng/mL & Transferrin Saturation = 53%.
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
DTache
in
Restless Legs Syndrome
7 months ago
dose increase?
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
BethBeezle
in
Thyroid UK
7 months ago
Iron deficiency
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
50568789
in
Restless Legs Syndrome
7 months ago
Can low iron cause intolerance to thyroxine?
hello, Please see my prev post for my iron results. Since starting levo last year I have felt increasingly unwell on it. Mainly crippling joint and muscle pain which isn’t present when I’m not taking it, unfortunately the introduction of t3 at end of last year has only worsened this too. I can hardly
hello, Please see my prev post for my iron results. Since starting levo last year I have felt increasingly unwell on it. Mainly crippling joint and muscle pain which isn’t present when I’m not taking it, unfortunately the introduction of t3 at end of last year has only worsened this too. I can hardly
Hidden
in
Thyroid UK
7 months ago
Iron panel values - average and RLS indicated.
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
fritz34
in
Restless Legs Syndrome
8 months ago
Blood test result - iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Lindsayf
in
Thyroid UK
8 months ago
Help with blood results
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Lindsayf
in
Pernicious Anaemia Society
8 months ago
Latest vitamin and iron test results following last post.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Pawsedagain
in
Thyroid UK
8 months ago
any way to increase ferritin without increasing iron saturation?
after two months of taking iron supplements (75mg every other night on empty stomach), my ferritin rose from 51 to 158. Unfortunately, my iron saturation rose from 46% to 59%. This is caused by fairly high iron (172) and fairly low transferrin (291), though both are within normal range. My doctor
after two months of taking iron supplements (75mg every other night on empty stomach), my ferritin rose from 51 to 158. Unfortunately, my iron saturation rose from 46% to 59%. This is caused by fairly high iron (172) and fairly low transferrin (291), though both are within normal range. My doctor
707twitcher
in
Restless Legs Syndrome
8 months ago
Iron levels and huge TSH drop
Hi I've got two questions for today if thats ok: 1. I've finally managed to get my iron panel results (second time of trying) and the results are as follows: All in range: Iron 16 TIBC 64.5 UIBC 48.5 Out of range: Transferrin saturation 24.8 Ferritin 13.4 So from what I gather from reading
Hi I've got two questions for today if thats ok: 1. I've finally managed to get my iron panel results (second time of trying) and the results are as follows: All in range: Iron 16 TIBC 64.5 UIBC 48.5 Out of range: Transferrin saturation 24.8 Ferritin 13.4 So from what I gather from reading
Cybob
in
Thyroid UK
8 months ago
First time posting here with questions
Hello, I was wondering how to tell if you need b12 injections when you take oral b12 and your serum b12 always comes out looking great? I haven't had it tested recently but past tests always come out way over the range. Anyway, I saw a post by @Marz in which she said that she takes b12 due to having
Hello, I was wondering how to tell if you need b12 injections when you take oral b12 and your serum b12 always comes out looking great? I haven't had it tested recently but past tests always come out way over the range. Anyway, I saw a post by @Marz in which she said that she takes b12 due to having
shirlzoni
in
Thyroid UK
8 months ago
The most common failures in relation to the treatment of RLS, from my experience:
My name is Kimberley Bradfield and I am a clinical negligence solicitor at Switalskis Solicitors. Switalskis is a large firm that specialises in clinical negligence and has offices across the UK. We have successfully settled a number of clinical negligence cases relating to the negligent treatment of
My name is Kimberley Bradfield and I am a clinical negligence solicitor at Switalskis Solicitors. Switalskis is a large firm that specialises in clinical negligence and has offices across the UK. We have successfully settled a number of clinical negligence cases relating to the negligent treatment of
Switalskis
in
Restless Legs Syndrome
8 months ago
Any help? My doctors are useless
Had a blood test done two days ago and my hematocrit is 55% my hematocrit of 44% is classed as high my haemoglobin is 168 and the optimal range is 155 (high end)alongside my liver and calcium levels and my ferritin has dropped again to 26. My TSH was 2.90 optimal range of 0.25-4.90. My white blood cells
Had a blood test done two days ago and my hematocrit is 55% my hematocrit of 44% is classed as high my haemoglobin is 168 and the optimal range is 155 (high end)alongside my liver and calcium levels and my ferritin has dropped again to 26. My TSH was 2.90 optimal range of 0.25-4.90. My white blood cells
Soxakita
in
Thyroid UK
8 months ago
Help with test results - haemochromatosis with iron deficiency?
A few years ago I regularly had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had the gene mutation. I used to get blood drawn to treat it and bring down my iron levels. However, recently I had blood tests which showed low ferritin
A few years ago I regularly had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had the gene mutation. I used to get blood drawn to treat it and bring down my iron levels. However, recently I had blood tests which showed low ferritin
tnefeh
in
Pernicious Anaemia Society
8 months ago
blue fingers when in hot bath??
Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what. About to go for a colonoscopy this week for the anemia and a high positive FIT test but I can’t see it being linked to that.
Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what. About to go for a colonoscopy this week for the anemia and a high positive FIT test but I can’t see it being linked to that.
Newfylady
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
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