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Pernicious anaemia
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What do you think? Advice please new to this.
Yesterday I got a phone call from hospital and was told i had
pernicious
anaemia
and I’d had it since my last colonoscopy/gastroscopy!!!! This was news to me- I’d had no symptoms whatsoever and was walking 10km a day for almost year when covid first hit.
Yesterday I got a phone call from hospital and was told i had
pernicious
anaemia
and I’d had it since my last colonoscopy/gastroscopy!!!! This was news to me- I’d had no symptoms whatsoever and was walking 10km a day for almost year when covid first hit.
Tellingbones
in
Pernicious Anaemia Society
2 years ago
Besremi and Zyrtec
Hi.........I'm going through the process of getting approved for Besremi. My not specialist hem is worried about me taking Zyrtec, She told me that I need to stop taking once I start Besremi. I take it for bad allergies and my PV JAk2+. Anyone been told this or are there folks still taking Zyrtec?
Hi.........I'm going through the process of getting approved for Besremi. My not specialist hem is worried about me taking Zyrtec, She told me that I need to stop taking once I start Besremi. I take it for bad allergies and my PV JAk2+. Anyone been told this or are there folks still taking Zyrtec?
nyelynndesigns
in
MPN Voice
2 years ago
Buprenorphine - what are the pluses?
I'm currently on 1800 mgs of Gabapentin, which, after a brief reprise, is failing to suppress my PLMs sufficiently. They wake me up and I continue to experience them until they're dismissed by walking up and down. I have just been issued with a Buprenorphine patch. I'm acquainted with the various side
I'm currently on 1800 mgs of Gabapentin, which, after a brief reprise, is failing to suppress my PLMs sufficiently. They wake me up and I continue to experience them until they're dismissed by walking up and down. I have just been issued with a Buprenorphine patch. I'm acquainted with the various side
dickJones
in
Restless Legs Syndrome
2 years ago
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Private FIT test recommendation
Hi, I'm still very much in that 'more questions than answers' phase regarding my health with a mix of thyroid, anaemia and perimenopause issues going on. Due to repeated low iron over many years, I'm thankful the NHS is now looking into the cause and I have a colonoscopy and gastroscopy arranged
Hi, I'm still very much in that 'more questions than answers' phase regarding my health with a mix of thyroid, anaemia and perimenopause issues going on. Due to repeated low iron over many years, I'm thankful the NHS is now looking into the cause and I have a colonoscopy and gastroscopy arranged
Insomania
in
Thyroid UK
2 years ago
How MTHFR mutation can affect cyanocobalamin injection?
Does MTHFR mutation affects enzymes related to cyanocobalamin processing after injection. What ethnicity have more MTHFR mutation? Is there any other mutation affects cyanocobalamin injection required enzymes for processing.
Does MTHFR mutation affects enzymes related to cyanocobalamin processing after injection. What ethnicity have more MTHFR mutation? Is there any other mutation affects cyanocobalamin injection required enzymes for processing.
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
How to know I'm not with MTHFR mutation person?
In case if being MTHFR mutation person is that possible still inject cyanocobalamin and symptoms get improved or we need inject cyanocobalamin? Obviously folic acid can't get processed in such a mutation
In case if being MTHFR mutation person is that possible still inject cyanocobalamin and symptoms get improved or we need inject cyanocobalamin? Obviously folic acid can't get processed in such a mutation
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Pernicious anaemia with normal b12-ncbl
There are several internet references regarding normal b12 levels in
pernicious
anaemia
,.
There are several internet references regarding normal b12 levels in
pernicious
anaemia
,.
Hidden
in
Pernicious Anaemia Society
2 years ago
Lab Work Preparation
This isn’t really regarding B12 but you all seem to be so helpful and more research based than other groups, so I’m hoping you can help me. I am having routine bloodwork done in a couple weeks for my hematologist appointment. I’m regards to folate and iron, do I need to stop those for any length of times
This isn’t really regarding B12 but you all seem to be so helpful and more research based than other groups, so I’m hoping you can help me. I am having routine bloodwork done in a couple weeks for my hematologist appointment. I’m regards to folate and iron, do I need to stop those for any length of times
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
REMINDING EVERYONE THAT IF THEY USE AMAZON , PLEASE USE “AMAZON SMILE”, And CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS THEIR CHARITY .
“Every little helps”! There no cost to you .
“Every little helps”! There no cost to you .
wedgewood
in
Pernicious Anaemia Society
2 years ago
Follow up post after call with GP
You kindly recommended getting calcium, Vit D, coeliac, and
pernicious
anaemia
tested. Can we do these ourselves privately ? Do medicheks do them and which tests should we choose? We’ve also pushed for EDS to be looked at again but the GP seemed reluctant to help.
You kindly recommended getting calcium, Vit D, coeliac, and
pernicious
anaemia
tested. Can we do these ourselves privately ? Do medicheks do them and which tests should we choose? We’ve also pushed for EDS to be looked at again but the GP seemed reluctant to help.
sunnyday7
in
Thyroid UK
2 years ago
Husband’s recent iron panel labs show dire ferritin but other levels appear to say he shouldn’t supplement. Unless I’ve misunderstood
We requested an iron panel as it was clear his GP wasn’t going to offer even though husband falls asleep at the drop of a hat. I’m glad we asked because his ferritin is very low having fallen from his usual 50-90 over the years 26/07/22 Ferritin 19.2 (22 -322) Serum iron 21.4 (14 - 31.3) 42.77%
We requested an iron panel as it was clear his GP wasn’t going to offer even though husband falls asleep at the drop of a hat. I’m glad we asked because his ferritin is very low having fallen from his usual 50-90 over the years 26/07/22 Ferritin 19.2 (22 -322) Serum iron 21.4 (14 - 31.3) 42.77%
Noelnoel
in
Thyroid UK
2 years ago
Should I be taking an iron supplement?
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
WhyAmISoTired
in
Thyroid UK
2 years ago
Trying to get a diagnosis of PA via a GP
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
4daughters1971
in
Pernicious Anaemia Society
2 years ago
Action Plan going forward and are these supplements ok?
Serum B12 was 343 (180-900) In March I am also going to pay for private testing for
pernicious
anaemia
and lupus and a full iron panel.
Serum B12 was 343 (180-900) In March I am also going to pay for private testing for
pernicious
anaemia
and lupus and a full iron panel.
Chasing-rainbows
in
Thyroid UK
2 years ago
Can you take too many sublinguals?
So I know that you can't take too much b12 but I keep wimping out of self injecting and need to get myself through the few weeks before my next injection so I'm going to trial taking lots of sublinguals and see if that helps, I think they do help a tiny bit but no way near enough. Anyone tried this
So I know that you can't take too much b12 but I keep wimping out of self injecting and need to get myself through the few weeks before my next injection so I'm going to trial taking lots of sublinguals and see if that helps, I think they do help a tiny bit but no way near enough. Anyone tried this
Clare184
in
Pernicious Anaemia Society
2 years ago
Evusheld results
I thought it might be helpful to share the antibody results of my Evusheld injections. I was first diagnosed with CLL in 2013 and started Ibrutinib in February 2020. I received my first Evusheld injections on February 1, 2022 and 2nd injections on March 3, 2022. Covid antibody tests were done in
I thought it might be helpful to share the antibody results of my Evusheld injections. I was first diagnosed with CLL in 2013 and started Ibrutinib in February 2020. I received my first Evusheld injections on February 1, 2022 and 2nd injections on March 3, 2022. Covid antibody tests were done in
rbg4410
in
CLL Support
2 years ago
B12 Deficiency and Arthritis
Blood tests where done and they found she had a
Pernicious
Anaemia
and she required a B12 jab, she previous had these jabs every three months until 2019 when told no longer needed them so went on an over counter B12 supplement.
Blood tests where done and they found she had a
Pernicious
Anaemia
and she required a B12 jab, she previous had these jabs every three months until 2019 when told no longer needed them so went on an over counter B12 supplement.
Baz44
in
Pernicious Anaemia Society
2 years ago
What is the relationship between COPD and anaemia?
I hope I will stop posting so frequently once I have a formal diagnosis. However, currently, whilst I wait for tests, I have found myself wondering about all sorts of things. First of all, I have anaemia which I had assumed was the result of my restrictive diet. However, I take an iron pill daily and
I hope I will stop posting so frequently once I have a formal diagnosis. However, currently, whilst I wait for tests, I have found myself wondering about all sorts of things. First of all, I have anaemia which I had assumed was the result of my restrictive diet. However, I take an iron pill daily and
d0ttysslave
in
Lung Conditions Community Forum
2 years ago
RLS restlessness vs electric shock feeling
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
RC723
in
Restless Legs Syndrome
2 years ago
Does everyone with PV have high platelets?
Right now I only have slightly elevated RBC, hematocrit, and hemoglobin but all my other cell counts are normal.
Right now I only have slightly elevated RBC, hematocrit, and hemoglobin but all my other cell counts are normal.
Kdfotigr
in
MPN Voice
2 years ago
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